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Risperdal and Tardive Dyskenisia

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  • Risperdal and Tardive Dyskenisia

    Hello,

    My son started risperdal a month and a half ago and I have started noticing that is tongue has been going in and out of his mouth. His tongue does not go far past his lips but it is a unusual tongue movement that I have not seen him do before. I noticed it the other day and again tonight. He did it about a dozen times or so. He also has been covering up his mouth recently for long periods of time, i think he has been hiding this from me. I am a little scared as I heard that this med can cause this sort of tic that is not reversable!

    Sara

  • #2
    Risperdal and Tardive Dyskenisia

    Sara,

    Risperidone ( Risperdal ) is a medication frequently prescribed in treating TS. Read about the medication by clicking HERE

    The Canadian product monograph is available as a pdf file from Ortho Janssen HERE

    The side effect you are concerned about is Tardive Dyskinesia.

    Contact your physician to discuss your legitimate concerns, because to recognize Tardive Dyskinesia requires medical expertise.

    We do know that TS motor tics come and go, and new and different tics develop over time. This is not to say your concern should not be investigated, but might be one explanation.

    Let us know the outcome of your inquiry.

    How old is your son and how long has he been diagnosed with TS?
    Steve

    Dum spiro spero....While I breathe, I hope

    Tourette Canada Homepage
    If you enjoy the TC Forum, please consider a Tourette Canada membership
    Please visit our sister Forum: Psychlinks Psychology and Mental Health Support Forum

    Comment


    • #3
      Risperdal and Tardive Dyskenisia

      Thank you for all the info. My son is 8 and he was diagnosed in April 2005. I've noticed tics since Kindergarten but thought him to be fidgety and that's all. Once school became more difficult and he became more irritable I became very concerned and was referred to a pediatrician by my family doctor. The teachers at school also expressed their concern.

      My daughter did a school paper on disorders and her project was on tourettes syndrome and asked me if it was possible that her brother had tourettes and of course I told her she was wrong. Months later he was diagnosed by his pediatrician.

      At the moment my son is taking clonidine but risperodol might be better for him. I'll let you know.

      Thank you again.

      Comment


      • #4
        Risperdal and Tardive Dyskenisia

        Catia,

        If you would like some insights into clonidine, check here for this Forum posting containing some resources and discussion.

        [quote]
        At the moment my son is taking clonidine but risperodol might be better for him. I'll let you know
        The decision to medicate or not and/or to change medication should be made jointly with your son, his physicians and following intensive research by you on the proposed medications.

        It comes down to benefits vs risks, and making choices that will allow for the quality of life your son desires.

        Please do keep us posted on your progress, and feel free to share with us your thoughts and feelings about the process.

        Our Forum members are here to help, and your experience will offer insight for those beginning their journey.

        Also if you need help researching any of the proposed medications, let us know. We may be able to help by suggesting ways to make your searches most productive.

        Regards
        Steve

        Dum spiro spero....While I breathe, I hope

        Tourette Canada Homepage
        If you enjoy the TC Forum, please consider a Tourette Canada membership
        Please visit our sister Forum: Psychlinks Psychology and Mental Health Support Forum

        Comment


        • #5
          Risperdal and Tardive Dyskenisia

          Thank you for all your support and yes I will keep you posted on our decisions in the future. You have all been so helpful to me so far and it is comforting to me to get your replies and all your wonderful words of support and understanding.

          catia67

          Comment


          • #6
            Risperdal and Tardive Dyskenisia

            At the moment my son is taking clonidine but risperodol might be better for him. I'll let you know.
            Hi Catia, just wondering if you made the switch?
            Janet

            TSFC Homepage

            Comment


            • #7
              Risperdal and Tardive Dyskenisia

              Hi. No not yet. We increased his clonidine but I think I will try the other. We go back to the doctor on August the 18th.

              I expressed some of my concerns to the doctor regarding the new meds and she reassured me that they would benefit my son. She also said if I need more time to make my decision that that was fine and she said she doesn't want me to feel pressured into doing it. When I speak to my son about trying the new meds his only concern is if he will be able to chew it and not have to swallow it.

              I'll let you how the next visit goes.

              Thank you so much for caring.
              Catia67

              Comment


              • #8
                Risperdal and Tardive Dyskenisia

                Your son's physician appears to be a compassionate and caring professional.

                We'll be looking forward to hearing about your progress.

                In the meantime, feel free to join in any of our ongoing discussions!

                Regards,
                Steve

                Dum spiro spero....While I breathe, I hope

                Tourette Canada Homepage
                If you enjoy the TC Forum, please consider a Tourette Canada membership
                Please visit our sister Forum: Psychlinks Psychology and Mental Health Support Forum

                Comment


                • #9
                  Risperdal and Tardive Dyskenisia

                  When I speak to my son about trying the new meds his only concern is if he will be able to chew it and not have to swallow it.
                  Kids are kids...same concerns my 7y old has. If you make the decision to switch, this drug comes in tablet form as well as liquid just in case there is concern around his ability to swallow tablets.

                  I look forward to your update.

                  On a side note, I have been trying to gather information about parents experiences with childcare for their TS kids. If you have had childcare of any kind, then would you mind sharing your experiences in the parents forum?

                  Thanks :D
                  Janet

                  TSFC Homepage

                  Comment


                  • #10
                    Risperdal and Tardive Dyskenisia

                    Fortunately for me and my children I have always had family members available for babysitting while my husband and I are away at work or when I attend classes. I have never had to go outside the family for child care. I'm sure it would be a difficult situation. I have extended family members who I'm sure cringe at the thought of having to babysit my son.

                    Thank heavens there are those who find him wonderful and don't mind looking after him for us.

                    My mother and late mother-in-law have always been wonderful. I don't know what I would have done all these years without them. My sister-in-law (my husband's sister has always offered to babysit as well).

                    Comment


                    • #11
                      Risperdal and Tardive Dyskenisia

                      You have been fortunate... I'm green
                      Janet

                      TSFC Homepage

                      Comment


                      • #12
                        Tardive Dyskenisia or Tourettes?

                        I am a 56 year old woman who has been diagnosed with tardive dyskenisia and tardive dystonia from taking Risperdal or Abilfy. I stopped the offending medication at the beginning of December, but my symptoms have not gotten better. My Neurologist told me yesterday that I could have Tardive Tourettes because my son has Tourettes and I have started making noises. Is there such a thing? I was also told the my symptoms would level off after about a month, but they seem to be getting worse. Can they continue to get worse?
                        Thank you very much!

                        Comment


                        • #13
                          Risperdal and Tardive Dyskenisia

                          Hi Libby

                          Welcome. Have you ever been told you have TS before now. We talk in this thread about tardive dyskinesia (see Steve's Link above) and I have heard of the term Tardive Tourettes but I do not have any info to support it as an actual diagnosis. I have only heard it in reference to people having tic like movements as a side effect due to being on specific meds. I don't know if someone else may have more info.

                          Feel free to contact the TSFC office (toll free) because the people at the office have a wealth of information and they may be able to add more insight.
                          Janet

                          TSFC Homepage

                          Comment


                          • #14
                            Risperdal and Tardive Dyskenisia

                            Hi Libby,

                            I looked for Tardive Tourettes and I can't find anything on it.

                            I will keep looking for information for you.

                            Like Janet mentioned, contact the TSFC main office to find out more information.

                            They are very nice and will help you anyway they can.

                            Comment

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