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Trouble finding good help in Greater Vancouver

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  • Trouble finding good help in Greater Vancouver

    What is the best course to get help for some one who has recently discovered they have TS?

    We have realized that my husband clearly has TS. There is no doubt. He went to see a walk in doctor looked at him in horror and treated him poorly. She has referred him to mental health but told him it could take 6 months to see anyone. She indirectly told him he was a danger to his children even though he has never done anything dangerous at all.

    Ever since his talk with the doctor, his tics seem worse. They have been getting worse these last few years, he is no longer able to cover them up and that is when he told me about them. I had noticed them but I guess I developed a blind eye.

    He does not want to talk about these issues to anyone unless they are very familiar with this conditions as he is afraid to tell them that he often has "Consisting of repetitive, unwanted or bothersome intrusive thoughts" among other things.

    I have called the local Vancouver chapter but no one has returned my call yet.

    Does anyone know of anyone that deals with adult TS in greater Vancouver?
    Last edited by wifeofTS; June 22, 2011, 09:17 PM.

  • #2
    Re: Trouble finding good help in Greater Vancouver

    See:

    http://www.tourettesyndrome.ca/forum...ead.php?t=3095

    http://www.psychiatry.ubc.ca/teachin...ces_Centre.htm

    Mr. Ken Langford
    Office Address
    2749 West 3rd Ave.
    Vancouver, V6K 1M6
    Phone: 604 785-2129

    Dr. Josef Zaide
    205 - 2902 West Broadway
    Vancouver, V6K 2G8
    Phone: 604.724-0091
    Alternate Office:
    760 West 19th Avenue
    Vancouver, V5Z 1X2
    Website: http://members.shaw.ca/jzaide/

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    • #3
      Re: Trouble finding good help in Greater Vancouver

      Thank you very much. I forgot I could search the forum and I will be more aware of that next time. I have written one of the doctor's in the post via email.

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      • #4
        Re: Trouble finding good help in Greater Vancouver

        You're welcome. Good luck!

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        • #5
          Re: Trouble finding good help in Greater Vancouver

          If you can contact Dr. Roger Freeman, he is considered one of the leading authorities in North America on Tourette.

          If you have difficulty in making contact with the local Chapter or otherwise getting information locally, call the TSFC head office at (800) 361-3120 for information and local resources.
          Steve
          TouretteLinks Forum

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          • #6
            Re: Trouble finding good help in Greater Vancouver

            Steve,

            Thank you for the contact information. I have contacted Dr. Freeman. I wrote him an email and he wrote me back saying he can no longer take on adult patients at this time as his waiting list is unbearably long. He pointed us to a program at UBC.

            The way the program works is that you need a referral and an application package. The package is discussed with a panel and the panel decides if they need to take your case. The waiting list is also quite long.

            Dr. Freeman did briefly chat with my husband on the phone. He advised him that mental health may not be the best place to seek help. I am very grateful for his help and Dr. Freeman went above and beyond to help us in the little ways he could but in disbelief that it is this hard to find decent help in a timely manner.

            At this point it is just a waiting game. My husband has an appointment with my family doctor who has agreed to work with him on filling out his application but is not willing to take him on as a full time patient as he already has too many "disability" cases. I do like my family doctor and do think he will be willing to work with my husband.

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            • #7
              Re: Trouble finding good help in Greater Vancouver

              I'm glad to know you were ale to get some direction from Dr. Freeman. Getting local Tourette support can sometimes be a tedious process, so you need to be persistent in your search, as you are doing.

              Have you made contact with the local TSFC Chapter for their suggestions?
              Steve
              TouretteLinks Forum

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              • #8
                Re: Trouble finding good help in Greater Vancouver

                I have talked to some one at the local chapter who also pointed me to the doctor at UBC. Seems to be the place to go to.

                Comment


                • #9
                  Re: Trouble finding good help in Greater Vancouver

                  pointed me to the doctor at UBC
                  Excellent! Do keep us posted on your progress!
                  Steve
                  TouretteLinks Forum

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                  • #10
                    Re: Trouble finding good help in Greater Vancouver

                    It took just over a 14-15 months but my husband finally saw the specialist at UBC.

                    Comment


                    • #11
                      Re: Trouble finding good help in Greater Vancouver

                      Thank you for the update, Wife of TS!

                      It sounds like you and your husband have made terrific progress since you first reported that terrible encounter with an obviously poorly trained medical person at the walk in clinic last year.

                      I would love to hear from your husband here on the Forum, if he might be interested in joining and further discussing his situation. If he decides to join the Forum, he would have to register a separate login account, because two people using the same login account canbe confusing

                      How did the consultation with the specialist at UBC go, and what were the recommendations? What treatments, if any were prescribed?

                      How is your husband and the family dealing with his diagnosis,and more important, how is he dealing with his tic expressions? What about the intrusive thoughts you mentioned last year?

                      We're here to help and to provide support if you need it, so we would look forward to continuing the conversation.
                      Steve
                      TouretteLinks Forum

                      Comment


                      • #12
                        Re: Trouble finding good help in Greater Vancouver

                        The appointment went as well as can be expected. He answered most of my husbands questions and gave his suggestions moving forward and spent a great deal of time talking about how deal with his various tics at work. We have all come a long way in the last two years. My husband and I had done a great deal of research in the long wait for his appointment and found many strategies that work for us.

                        The doctor told my husband that he seemed to have a good grasp and that he should proceed how he has been the last few months. No treatment plan as we worked so hard on removing triggers that cause most of the bad episodes. I had to make changes and I let a lot of my anger go as I now understand why he does the things he does and I am okay with it. I imagine not having me mad at him a great deal of the time helps easy his stress too. I can't imagine the stress he had knowing he was saying all these things out of his control and having a wife that wouldn't let any of it slide. I didn't know, he never told me otherwise. I am sure I was nearly 50% of the problem some days.

                        As for dealing with the tics, he isn't doing much about the physical ones, they aren't a major bother to him now that he knows what they are. He just wanted to know why it happens, stopping it was never a concern. As for the vocal tics, they are still a problem but as I said before we have rooted out most of the triggers and that is the best we can do. He stopped talking to me about the intrusive thoughts. I really don't know. He doesn't like to talk about it. I respect that as I don't want to push him, he told me he would talk to the doctor about it and I never asked about the outcome.

                        We still have days where work was stressful and he worked to late therefore late for dinner and the nights are a mess. These days remind me that it doesn't happen to often now and it isn't every day any more.

                        Now all I have left is small questions which I am sure I can find answers to in the forums. My husband doesn't often feel comfortable talking about tics as he tend to find they start when he talks about them. I am going to try to be on the forums more often to do some reading and to ask my questions. I am just exhausted to night. All four of us have a nasty flu. I can barely keep my eyes open.
                        Last edited by wifeofTS; January 9, 2013, 01:44 AM.

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                        • #13
                          Re: Trouble finding good help in Greater Vancouver

                          Thank you for the update on your recent visit to the specialist.

                          I suspect a possibility your husband has difficulty discussing his Tourette expressions might be due to reactions he may have experienced as a child growing up from his parents, teachers or others who may have ridiculed, bullied or otherwise made him feel embarrassed.

                          It may take time for him to come to terms with his Tourette diagnosis, especially to overcome his embarrassment. One way to help him work through this could be to join the local TSFC Chapter in order to meet others dealing with Tourette.

                          Meeting other people who have experienced the same feelings and situations is most beneficial in understanding he is not alone in feeling this way and that others have traveled the same path..successfully.

                          From my own experience, it took me about two years to come to terms with my own diagnosis, which occurred late in life (in my forties). It took me at least a year before I was able to discuss it with my wife, who by the way assured me "it was no big deal"!

                          And for me, my greatest inspiration came from meeting other great people at the local TSFC Chapter whose life stories often paralleled my own.

                          It was this great sipport from family, friends and other people with Tourette that allowed me to live comfortably with my own Tourette.

                          So, wifeofTS, you are to be commended for your support and understanding of your husband, and for the modifications you have made in your own life for him. He is indeed a fortunate man to have you in his life.

                          We'll be looking forward to your participation in our Forum, and for reports on your husband's progress.

                          As always, he is most welcome to join us. It would be a pleasure to meet him.

                          Of course, when he is ready to join the Forum, he would need to register his own username and password to keep your individual accounts separate.
                          Steve
                          TouretteLinks Forum

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