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Clonazepan ............ Our Miracle Drug

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  • Clonazepan ............ Our Miracle Drug

    Our dd of 14 has taken several drugs to help with her tics.
    She has tried every Anti-Psychotics available for TS and had severe
    side-effects.........mostly weight gain and horrible sweats. The side-effects certainly outweighed any benefits. She would tell us the tics were easier to live with than the side-effects of these drugs.

    We just want to inform all who are interested of a new medication that has been a miracle for our dd. She's been battling this for several years now and this drug has been a blessing from up above.

    Clonazepam.
    It's an Anti-Anxiety drug that has Anti-Tic qualities to it.
    The best part for my daughter is that it had had no terrible side-effects, other than a little fatigue the first week. It helps her sleep at night, and helps her face the anxieties of her day in highschool. It has had a hugely positive effect on reducing her tics. She still has some tics, but they are very mild and don't seem to bother her as much.

    Just wanted to share this information with all at TSFC.
    Take care.
    Tictalkmom
    Being different is special.

  • #2
    wondering about clonazepam myself

    Hi tictalkmom,

    My 10yod son has been dealing with tics for about a year now. The pediatrician is keeping an eye on it and has not diagnosed TS yet.
    Right now he is having a vocal tic that sounds like almost constant laughing. Sometimes he has motor tics.
    I was wondering if he does need meds, if Clonazepam would be good for him simply because it seems to be the only med that I can tolerate without side effects. I have panic disorder, anxiety and related depression. I know the awful side effects from SSRI's and tricyclics. I don't seem to tolerate any of them well except at very low doses. I find that Clonazepam actually elevates my mood because the exhausting anxiety is gone. I have taken C for 10 years without any increase. So, with the genetic relationship between Mom and son, I was thinking that he might tolerate C well.
    By the way, how is your dd doing? I see this post is over a year old. I hope she is doing well.

    Grammy

    Comment


    • #3
      Clonazepan ............ Our Miracle Drug

      Grammy,

      Welcome to the TSFC Forum. We're glad you found us and I hope you will continue to use our Forum as an information resource.

      As your pediatrician is following your son's progress, you may wish to request a referral to a local specialist who has clinical experience in diagnosing Tourette, for a consultation.

      Local specialists can be found by calling the Tourette Syndrome Association in the U.S.

      As you are probably aware, Tourette needs to be diagnosed through observation and interview by a specialist with clinical training in movement disorders.

      Medication recommendations cannot be made on the Forum or any internet site because one person may respond differently to a given medication from another person and the only one who can determine if and what medication options might be considered is your physician.

      Whether to use medications to treat the various manifestations of Tourette is a decision based on benefits to quality of life vs the inconveniences of potential side effects and risks of the medication.

      Many people with Tourette find their quality of life would deteriorate if they took medications, particularly for tic suppression.

      Tic suppression can sometimes be achieved without medication.

      Clonazepam is a minor tranquilizer, in the benzodiazepine class of medications. Other examples of benzodiazepines are Ativan, Valium and Xanax.

      You may wish to contact your local Pennsylvania Chapter of TSA for support and information about local resources.

      Pennsylvania Chapter (Gettysburg) 717-337-1134
      e-mail Info@PATSaInc.org
      website: http://www.patourettesyndrome.org/

      We welcome you to join in any ongoing discussion or start another with any question or comment you might have.

      Thank you for joining the TSFC Forum!
      Steve

      Dum spiro spero....While I breathe, I hope

      Tourette Canada Homepage
      If you enjoy the TC Forum, please consider a Tourette Canada membership
      Please visit our sister Forum: Psychlinks Psychology and Mental Health Support Forum

      Comment


      • #4
        Clonazepan ............ Our Miracle Drug

        Hi Grammy,

        Welcome to the TSFC forum, we are glad that you have joined us.

        The pediatrician by not diagnosising right away is probably making sure that he is accurate with his assessment of your son.

        Medications that are effective for some people may or may not be effective for others. Also, the degree of known side effects of medications will appear differently in different people, even with genetic similarities.

        It is really good that you want to be as prepared as possible for the doctors visit. On the Tourette Syndrome forum we have a posting called asking the right questions for your doctor's visit. Also there is a file called questions to ask about medications . You can download them and they are really helpful.

        Let us know how your son is doing, we would love to hear from you. Steph

        Comment


        • #5
          Clonazepan ............ Our Miracle Drug

          Hi, I took Clonazopan for a couple of weeks. My Md said it was a muscle relaxer. I found it to give me nightmares and restless sleep. I would wake up suddenly with a panic attack. This went away after discontinuing it. After this experience I decided to go without Medications until research advances on this subject.

          Marc

          Comment


          • #6
            Clonazepan ............ Our Miracle Drug

            My Md said it was a muscle relaxer. I found it to give me nightmares and restless sleep
            Clonazepam is in the class of medications called benzodiazepines. Benzodiazepines are minor tranquilizers, examples of others are diazepam (Valium), lorazepam(Ativan).

            Each drug within the class has more or less of the following actions, depending on the molecule:

            muscle relaxant,
            anti anxiety
            hypnotic (sleeping pill)
            anti convulscent

            Possible side effects of clonazepam:

            The most commonly noted side effects associated with clonazepam are sedation, which is reported in approximately 1 in 2 people (one-half of patients), dizziness (one-third of patients), weakness, and unsteadiness. Other side effects include a feeling of depression, loss of orientation, headache, and sleep disturbance.
            Source Medicine Net
            Steve

            Dum spiro spero....While I breathe, I hope

            Tourette Canada Homepage
            If you enjoy the TC Forum, please consider a Tourette Canada membership
            Please visit our sister Forum: Psychlinks Psychology and Mental Health Support Forum

            Comment


            • #7
              Clonazepan ............ Our Miracle Drug

              One thing to remember: Clonazepam is addictive. I've heard a few doctors mention that any dose over 2mg/day can be dangerous, since the drug is very tough to come off of.

              If you're on it, and you need to come off, do it slowly. Perhaps temporarily substitute it for another Benzodiazepine at the end to make the withdrawl period limited.


              I made this mistake, and went through a week of painful, painful withdrawl. And I was coming off 0.5mg/day.
              Colin

              Comment


              • #8
                Re: Clonazepan ............ Our Miracle Drug

                Well!!!

                I've been diagnosed with tourette's and ADHD.
                In 88 not knowing what I had they gave me clonazepam at 2.mgs per day and in 2000 I decided to get off.

                After 7 years I'm I have 0.125 mgs to go and believe me if there is a worse place than hell I was there.

                It destroys the GABA receptors and takes years to recover.

                Comment


                • #9
                  Re: Clonazepan ............ Our Miracle Drug

                  Clonazepam is not addictive, though some people develop dependency on this family of meds.
                  Clonazepam was originally perscribed as an anti-seizure medication over 20 years ago.
                  My neurologist has been prescribing Clonazepam 2mg for me for almost that amount of time.
                  Sometimes I don't take it all and that can be for several days, because my tics and in general the TS is quiet inside of me.
                  There are other times when I take up to 8-10 mgs at one time because my head feels like it's going to explode with electrical-type tics.
                  My neurologist is fine with these amounts and how I know when to and how much to take at one time and per day.
                  Clonazepam has a much longer half life than other benzos, like Valium, etc.

                  My prime meds for TS, and I am a middle aged person, are medical marijuana and Clonazepam, all approved by my neurologist and GP.

                  As far as medicating children, I am very wary of the potential damages to any young person on a long term bases.
                  For children, I would be more apt to work on a change of diet and use natural remedies and behavioral therapy.

                  Comment

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