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Anyone with TS without the other problems?

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  • Anyone with TS without the other problems?

    Hi All,

    My son is 5 1/2. We are new to TS also. We don't have a dx yet, although we and the doctors are pretty sure this is TS since there are several motor tics and some sniffing....but it hasn't been one year yet and we are not sure if the sniffing is definitely a verbal tic. But the neurologist pretty much prepared us that this is probably TS.

    Anyway, I have been trying to learn as much as possible about TS. I keep reading about the psychiatric issues that often coexist with TS. My son definitely has an anxiety disorder and sensory issues. We are not sure about OCD or ADD. I believe I've also read that it is common to get Bi-polar disease with TS. I am just wondering if how often these comorbid diseases happen. Are there any stats on this? Anyone out there with TS who only purely has tics without other things? I just pray it only ends up being tics, anxiety, and sensory. It's already so much to deal with. I cannot imagine adding add, ocd, and bi-polar to the mix.
    Thank you all so much. Andrea

  • #2
    Anyone with TS without the other problems?

    Andrea,

    Welcome to the TSFC Forum! Sounds like you have been doing some great research!

    The issue of TS and depression or bi-polar disorder is not clear. It's a subject I began recently researching and have not yet found convincing evidence one way or the other.

    Would you care to share the resources you've read on the subject ans this topic is of interest here on the Forum.

    What are the sensory issues affecting you little boy?

    Glad you've joined our online community...willl be looking forward to your insights.

    Regards,
    Steve

    Dum spiro spero....While I breathe, I hope

    Tourette Canada Homepage
    If you enjoy the TC Forum, please consider a Tourette Canada membership
    Please visit our sister Forum: Psychlinks Psychology and Mental Health Support Forum

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    • #3
      Anyone with TS without the other problems?

      Because postings in the TS Forum are threaded, resulting in a continuity of discussion on a given topic, it is requested that multiple postings of the same topic be avoided.

      Splitting a topic in two places reduces the chances of getting responses.

      It's no big deal and the volunteer Forum staff is here to help.

      Thanks for your understanding.
      Steve

      Dum spiro spero....While I breathe, I hope

      Tourette Canada Homepage
      If you enjoy the TC Forum, please consider a Tourette Canada membership
      Please visit our sister Forum: Psychlinks Psychology and Mental Health Support Forum

      Comment


      • #4
        Anyone with TS without the other problems?

        HI Andrea

        Just wanted to say I have met some children at the Clinic where we go that only have Tourettes and not any other conditions. It does seem as though there are often other conditions with it. My son has ADD along with the Tourettes. Some of the things like anxiety tend to come and go somewhat. The ADD is not as much of an issue now with him getting older, he is 12 going on 13, and will be in Gr 7. He still takes meds for the ADD only on school days, weekends and summers we don't bother with it. His Tourettes has been worse the last year or so. In the summer now when he is at home, his Tourettes is better. His vocal tics are the hardest to deal with. I don't know how others find it, but when one thing is really bad, then something else kinds lets up, or maybe we are just not focusing on it as much.

        I want to encourage you....Tourettes is sometimes hard to understand, hard to accept, but on the whole, it doesn't have to affect your child that much. It is only a small part of him. I know it can seem overwhelming, but you learn to live with it....accept and go on and it will all work out.

        You're not alone in this.....Lena

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        • #5
          Anyone with TS without the other problems?

          Aprager

          Welcome and thanks for sharing your story. There are some stats available however, what I have found in my experience and from the research I have done is that many people with TS have co-morbidity but keep in mind that TS can cause the behaviors of these other disorders.

          Some TS people will share that they have TS with ADHD/OCD but really they have attention deficite and obsessive complulsive tendencies or behaviors which is much easier to cope with. For example, you may find that some people have the need for things to be balanced or even for example (OCD) but don't ever get to the point that they become so compulsive that they cannot function. What makes TS so complicated is that it is a syndrome and presents so differently from person to person.

          There is a great resource book available through the TSFC called Understanding Tourette Syndrome, Handbook for Educators. This is a book that is affordable and easy to read. It covers many of the associated behaviors that have been dicovered with TS and provides strategies for home and at school... strategies that are good for all kids.

          Looking forward to your continued participation.
          Janet

          TSFC Homepage

          Comment


          • #6
            Anyone with TS without the other problems?

            Janet, don't forget that TS+ is a spectrum of disorders. Think of skin color. It 'happens' in millions of different ways.

            Tourette's syndrome proper is JUST tics. Period. OCD and ADHD (or OC symptoms and AD symptoms if you prefer) can be so minor as to be an annoyance only, or a novelty. You can tell folks with just TS, and no co-morbidity very easily. They are normal, but can't sit still. They don't have academic or social cognition issues. They perform at the level of their IQ. And the specialists don't see them.

            My mother (Sherry Pruitt) once diagnosed a kid with TS as "Mom needs a hobby". No wait, don't throw things at me yet - he had all A's in high school, a scholarship to play football at a prestigious college, and was dating the same girl for YEARS. And he ticced. See what I mean? How can you worry about this kid? He's gonna do great, except at sitting still. I hate him. Ha ha ha.

            Keep in mind that these symptoms have very different mechanisms in the brain. TS does not do anything in the frontal lobes, and ADHD is only (or at least mostly) in the frontal lobes. We have to remember that when trying to categorize the co-morbid disorders of the GTS gene.
            Darin M. Bush, The Tourette Tiger, author of "Tiger Trails"
            http://www.facebook.com/tourettetiger

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            • #7
              Anyone with TS without the other problems?

              Hi Darrin

              Are we saying the same thing or are we saying different things? You have lost me.

              I have heard your Mom speak @ conference in Winnepeg as well as Vancouver and I will be in Montreal, so I am aware of her sense of humor... so I won't be throwing anything at you.
              Janet

              TSFC Homepage

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              • #8
                Anyone with TS without the other problems?

                Janet, no problem. I do that to people. Ha ha.

                I am saying that Tourette is not a spectrum on a line. It is a spectrum on a spreadsheet (like MS Excel) or an x and y graph (from algebra). I have mild TS, severe ADHD, and moderate OCD. My genetic brother has severe OCD, and maybe moderate ADHD, and milder TS than I do. Each disorder or symptom group has its own intensity, independent of the others. Figuring out how to sort through the vegetable soup to look at just one symptom is very very difficult, and usually unsuccessful in full blown TS+.

                If I was not clear, let me add: we have to look at the 'TS+ grid' (my term) in one way for diagnosis, and a completely different way for treatment. If someone has OCD, but it is so mild no one cares, including the Touretter, then we won't worry about it. However, we must separate this from the discussion of the genetics of that same person. If you have OC personality disorder, then it is NOT genetic. If you have TS+ with OCD, then it most certainly is genetic. Does the genetics matter to a 12 year old? No, not yet. How about an engaged 22 year old, who is thinking about having children of their own? See what I mean? I don't want the 22 year old to start taking Prozac if they have no SYMPTOMS, but they need to know that they are likely to give the GENE to their children, and then you roll the dice as to how that child manifests the TS+ gene.

                And, finally (whew!) I think my Mom would agree that really, we treat the person, not the disorder. If you are unhappy, and you have symptoms, let's come up with a way to get around them, and live a happy life. I know a guy who got diagnosed with TS at the age of 75. He came to my support groups. 75! His attitude: I am not dying today, and I could be happier.
                Darin M. Bush, The Tourette Tiger, author of "Tiger Trails"
                http://www.facebook.com/tourettetiger

                Comment


                • #9
                  Anyone with TS without the other problems?

                  Hi Andrea
                  I have had tourettes since I was about 4 years old. I only have tourettes, as a child I never showed signs af ADD, ADHD, or OCD and I don't have any symptoms of these disorders now. Sometimes I may have a liitle bit of anxiety but that could be due to my tics and the degree in severity that particular day, some days are a little better than others. So yes you can have only TS and not the other disorders that may or may not follow suit with TS.

                  Kim

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                  • #10
                    Anyone with TS without the other problems?

                    Hi Kim,

                    I think a higher baseline of anxiety is pretty common in TS. Therefore it doesn't take much to push someone's anxiety level pretty high.

                    I have to say that you are lucky that you only have Tourette Syndrome.

                    Kim, I am happy that you have joined our forum. Thanks for sharing, Steph

                    Comment


                    • #11
                      Anyone with TS without the other problems?

                      Kimberly, we need Touretters like you to skew the curve and keep the scientists on their toes! Thanks for sharing and participating. We'll try not to hold your lack of symptoms against you.

                      :-)
                      Darin M. Bush, The Tourette Tiger, author of "Tiger Trails"
                      http://www.facebook.com/tourettetiger

                      Comment


                      • #12
                        Anyone with TS without the other problems?

                        Hi Andrea & All

                        I just want to let you know that my 12 year old daughter has TS only. She has no signs of any other disorder and has not in the past either. Very much like the kid tourettetiger spoke of, She is a B+ student with a strong social circle. Same two best friends since grade 2. Several motor and physical tics but no issues other than adolescence and hey, We've all been there right (albeit many years ago for some of us). There is hope. My daughter went to a TS camp this past weekend and on the ride home she piped up from the back seat and said, "Mom, I am so lucky". When I asked why she said because she didn't have all of the comorbid disorders she say in many of the other children. The camp was a great way for her to put her syndrome in perspective! Many others are affected differently but I'd wait to see how your son develops before you get too wrapped up in all of the things he "may" have.
                        Blessings,
                        Cherry

                        Comment


                        • #13
                          Anyone with TS without the other problems?

                          Hi Cherry

                          The camp was a great way for her to put her syndrome in perspective!
                          this is what attending the national TSFC conference did for my oldest son
                          Janet

                          TSFC Homepage

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