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Asperger Syndrome

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  • Asperger Syndrome

    Asperger syndrome (AS) is a neurobiological disorder that is part of a group of diagnoses called "autistic spectrum disorders." The term "autistic spectrum" refers to a range of developmental disabilities that includes autism as well as other disorders with similar characteristics.

    They are known as spectrum disorders because the symptoms of each can appear in different combinations and in varying degrees of severity: two children with the same diagnosis, though they may share certain patterns of behavior, can exhibit a wide range of skills and abilities.

    As a result, general terms such as "low-functioning," "high-functioning," "autistic tendencies," "pervasive developmental disorder," and others are often used to describe children whose behaviors fall within the spectrum. Children with AS share many of the same symptoms as children with "high-functioning autism."

    It's estimated that over 400,000 families are affected by AS. Because milder cases are being identified more frequently, the incidence appears to be increasing. However, like other autistic spectrum disorders, AS is often difficult to diagnose and treat.

    What Is Asperger Syndrome?

    The disorder is named after Hans Asperger, a Viennese pediatrician who, in 1940, first described a set of behavior patterns apparent in some of his patients, mostly males. Asperger noticed that although these boys had normal intelligence and language development, they had severely impaired social skills, were unable to communicate effectively with others, and had poor coordination.

    According to the Asperger Syndrome Coalition of the United States, the onset of AS is later than what is typical in autism - or at least it is recognized later. A large number of children are diagnosed after the age of 3, with most diagnosed between the ages of 5 and 9.

    Asperger syndrome is characterized by poor social interactions, obsessions, odd speech patterns, and other peculiar mannerisms. Children with AS often have few facial expressions and have difficulty reading the body language of others; they may engage in obsessive routines and may display an unusual sensitivity to sensory stimuli (for example, they may be bothered by a light that no one else notices; they may cover their ears to block out sounds in the environment; or they might prefer to wear clothing made only of a certain material). Overall, people with AS are quite capable of functioning in everyday life, but they tend to be somewhat socially immature and may be seen by others as odd or eccentric.

    Other characteristics of AS include motor delays, clumsiness, limited interests, and peculiar preoccupations. Adults with AS have trouble demonstrating empathy for others, and social interactions continue to be difficult. Experts say that AS follows a continuous course and usually lasts a lifetime. However, symptoms can wax and wane over the course of time, and early intervention services can be helpful.

    Signs and Symptoms

    Because the symptoms of AS are often hard to differentiate from other behavioral problems, it's best to let your child's doctor or other health professional evaluate your child's symptoms. It's not uncommon for a child to be diagnosed with attention deficit hyperactivity disorder (ADHD) before the diagnosis of AS is made later on.

    The following are a number of signs and symptoms that might be present in a child with AS:
    • inappropriate or minimal social interactions
      conversations almost always revolving around self rather than others
      "scripted," "robotic," or repetitive speech
      lack of "common sense"
      problems with reading, math, or writing skills
      obsession with complex topics such as patterns or music
      average to above-average verbal cognitive abilities
      average to below-average nonverbal cognitive abilities
      awkward movements
      odd behaviors or mannerisms
    It's important to note that, unlike children with autism, children with AS may show no delays in language development; they usually have good grammatical skills and an advanced vocabulary at an early age. However, they typically do exhibit a language disorder; they may be very literal, and they may have trouble using language in a social context. Often there are no obvious delays in cognitive development or in age-appropriate self-help skills such as feeding and dressing themselves. Although individuals with AS may have problems with attention span, problems with organization, and skills that seem well developed in some areas and lacking in others, they usually have average and sometimes above average intelligence.

    What Causes Asperger Syndrome?

    Researchers and mental health experts are still investigating the causes of autism and AS. Many believe that the pattern of behavior that characterizes AS may have many causes. There seems to be a hereditary component to AS, and research indicates that in some cases AS may be associated with other mental health disorders such as depression and bipolar disorder. Researchers are also looking into whether environmental factors that affect brain development might play a role in the condition.

    Contrary to the incorrect assumptions some may make about people with the disorder, AS is not caused by emotional deprivation or the way a person has been brought up. Because some of the behaviors exhibited by a person with AS may be seen by others as intentionally rude, many people wrongly assume that AS is the result of bad parenting - it isn't. It's a neurobiological disorder whose causes are not yet fully understood.

    Currently, there is no cure for the disorder - children with AS become adults with AS. But many individuals with AS lead full and happy lives, and the likelihood of achieving this is enhanced with appropriate education, support, and resources.

    Diagnosis of Asperger Syndrome

    Asperger syndrome can be very difficult to diagnose. Children with AS function well in most aspects of life, and so it may be easy to attribute their strange behaviors to their just being "different."

    According to mental health experts, if your child has AS, early intervention is very important. Intervention involving educational and social training, performed while a child's brain is still developing, is highly recommended.

    If your child exhibits some of the symptoms and behaviors that are typical of AS, it's critical to seek help from your child's doctor. He or she can refer you to a mental health professional or other specialist for further evaluation.

    When a specialist assesses your child, a thorough "psychosocial" evaluation will be performed. This includes a careful history of when symptoms were first recognized, the child's development of motor skills and language patterns, and other aspects of the child's personality and behavior (including favorite activities, unusual habits, preoccupations, etc.).

    Particular emphasis is placed on social development, including past and present problems in social interaction and development of friendships. A psychological evaluation and assessment of communication skills are usually conducted to determine your child's strengths and skills that may be deficient.

    Treatment of Asperger Syndrome

    Because AS can present patterns of behaviors and problems that differ widely from child to child, there isn't a "typical" or prescribed treatment regimen. However, your child may benefit from the following forms of treatment:
    • parent education and training
      specialized educational interventions for the child
      social skills training
      language therapy
      sensory integration training for younger children, usually performed by an occupational therapist, in which a child is desensitized to stimuli to which he is overly sensitive
      psychotherapy or behavioral/cognitive therapy for older children
      medications
      It will help if you involve all of your child's caregivers in the treatment. The health professionals who are caring for your child should know what the others are doing, and you will often find yourself acting as the "case manager" in this scenario. Teachers, babysitters, other family members, close friends and any other person who cares for your child should also be involved.


    It's important to know that there are many people who can provide support and treatment for your child. Finding the right program for your child is key, and getting help early is important. Children with AS can and do experience great gains with the appropriate treatment and education.

    Helping Your Child

    Although AS presents challenges for both affected children and their parents, there are a number of steps you can take to help your child adjust and help support his progress.

    Look into educational or training programs for parents. You are not only your child's first teachers, you will also continue to be the cornerstone in supporting your child throughout his development.

    Teach your child self-help skills. Encouraging the learning of these skills will help your child achieve maximum independence.
    Because it's not always obvious to others that your child has AS, alert others to the fact that your child has special needs. As a parent, you may have to take on the role of educator when dealing with teachers, medical personnel, and other caregivers.

    When seeking a program for your child, try to find one that addresses your child's specific needs or areas of "deficiency." The Autism Society of America (ASA) encourages family members to talk to the program director to determine if the curriculum or program addresses their child's particular issues.

    Choose special programs or treatments that focus on long-term outcomes and that take the developmental level of your child into consideration.
    Remember that your child is part of a family unit and that your child's needs should be balanced with the needs of other family members.
    Get support for yourself and other family members. You can't help your child if you are not meeting your own emotional and physical needs. Your community may offer support groups at a local hospital or mental health center. There is considerable state-to-state variation in the types of government-sponsored services and other programs available to children with autism spectrum disorders and their families.

    The Future for Your Child

    Currently, there are few facilities specifically dedicated to providing for the needs of children with AS. Some children are in mainstream schools where their progress depends on the support and encouragement of parents, caregivers, teachers, and classmates.

    However, some children with AS go to special schools for children with autism or learning disabilities. Many people with AS can function well in most aspects of life, so the condition does not have to prevent your child from succeeding academically and socially.

    You may feel overwhelmed and discouraged if your child is diagnosed with AS. Remember that your child's treatment team can provide enormous support and encouragement for your child - and your family.

    August 18, 2004, KidsHealth.org
    Steve

    Dum spiro spero....While I breathe, I hope

    Tourette Canada Homepage
    If you enjoy the TC Forum, please consider a Tourette Canada membership
    Please visit our sister Forum: Psychlinks Psychology and Mental Health Support Forum

  • #2
    Asperger Syndrome

    Steve, even though you tried, by putting the description of Asperger Syndrome into Tourette Plus, I am quite unhappy with it. It's a very one-sided description, making AS sound like an illness (as most people view autism in general) that needs to be treated at all cost.

    Also, it only talks about children (other than saying that AS children will grow up to be AS adults). Because people don't seem to realize that before the 1980s people weren't diagnosed with AS, most adults who were born before that time have a terrible time getting diagnosed or getting any help.

    The reality is, we don't need 'treatment' and medication, but we need support and some help to be able to function in everyday life. Yes, depression is a huge issue with AS. But that is simply because people are forever trying to change us into somebody we cannot be, not valueing us for who we are.

    I have had that problem all my life. My own mother told me every day that I am good for nothing and nothing good will ever come from me. She also told me I am ugly and stupid and nobody would ever want to marry me.

    I would really have benefitted from getting coaching in social skills (as in how to make friends, I never had any until just a few years ago), in recognizing body language, in recognizing when somebody tried to 'put one over on me' (I am terribly gullible), and in learning to manage stress better.

    I sometimes had (and still have) meltdowns (looking like temper tantrums to the outsider), when sensory overload would set in, or when the stress of living gets too much, or when I am critiziced continuously, feeling like not only do I do things wrong, but that I am wrong (as in my whole being is all wrong and no good).

    Medications might make it easier for others, as they don't have to bother trying to understand, if the kid is drugged into being a good little zombie, who won't cause any trouble. But those drugs don't help the kid to learn to function so he will be able to manage later on in life. They don't fix the cause for the child's anger, which is often (as it was in my case) incessant bullying by classmates, family, coworkers etc., and people trying to 'fix' the person into being 'normal' (whatever that means), rather than trying to understand.
    German citizen, married to a Canadian for 28 years, four daughters, one son, eight grandchildren (and one on the way).

    Comment


    • #3
      Asperger Syndrome

      Uschi:

      You made some very good points in your response.

      I do not think however the the medical community has a clear view of AS for adults. It appears that they are still floundering with the one they have of children.

      A Dr. once said that my son had AS, yet he does not fit any of the concerns. Everything I have found on AS is textbook and generic reading.
      Although informative, does not provide a clear over view of the condition for all cases.

      I think with any medical concern, proper support should be provided to give child or adult the skills to manage. If medication can help without making someone behave and look like a "B" rated horror movie then it should be considered for the "individual".

      It is hard with any disorder to find the delicate balance of medications to therapy to maintain a healthy average life. I see this with my own son as they try to drug him for this that and the other thing to make their lives easier while he is in the care facility.

      Everyone is an individual that should be provided common respect and the ability to keep their dignity in tact.
      PJK

      Comment


      • #4
        Asperger Syndrome

        I thought I'd provide some links so people who are interested to learn more about AS can get more information.

        The first is Tony Attwood's site, who is one of the most respected Asperger specialists in the world (he is in Australia). www.tonyattwood.com.au

        This one has been put together by a woman in the UK, who has AS herself. I find it is an excellent resource. It also lists conditions that can accompany AS, one of them being TS (some of which I also have, like sensory dysfunction, dyspraxia, TS, CAPD, low stress tolerance, depression, as well as dyscalculia and others). http://www.as-if.org.uk/index.htm
        German citizen, married to a Canadian for 28 years, four daughters, one son, eight grandchildren (and one on the way).

        Comment


        • #5
          Asperger Syndrome

          Uschi,

          Thanks for adding those resources!

          Is there a diagnostic test for Asperger or is it diagnosed by observation and interview in the same way as Tourette?

          Which medical specialists are most likely to have a professional interest in Asperger?
          Steve

          Dum spiro spero....While I breathe, I hope

          Tourette Canada Homepage
          If you enjoy the TC Forum, please consider a Tourette Canada membership
          Please visit our sister Forum: Psychlinks Psychology and Mental Health Support Forum

          Comment


          • #6
            Asperger Syndrome

            Yes, there are a few tests that help in identifying people with AS. But also talking to the people with AS, their partners, parents etc. is helpful, because the Aspies themselves aren't often able to see their own behaviour as very different from the norm.

            Here are some links to tests that give you an idea if you might have AS:

            The tests are not diagnostic, but offer a general guide to traits and signs of autism.

            http://www.thegeeksyndrome.com Over 25 points suggests aspergers traits.

            http://www.rdos.net/eng/Aspie-quiz.php Aspergers quiz

            The two next ones were developed by Simon Baron-Cohen, the other leading AS specialist in the world (besides Tony Attwood), he is in England.

            http://www.wired.com/wired/archive/9.12/aqtest.html Over 32 points suggests aspergers traits.

            http://www.guardian.co.uk/life/news/...937443,00.html EQ and SQ tests, for empathy and systemizing.

            For information on autism and aspergers -
            http://www.autismencyclopedia.com

            http://www.neurodiversity.com

            Autism specialists should understand about Asperger syndrome, but often do not. Plus, they don't understand how adults who have learned to cope in this world (get by is more like it) can cover up their oddities, learned to smile, know how to force eye contact can be Aspies anyway. Often they'll claim that if you appear normal at first, you must be.

            Social workers with an interest in AS are good resources (but their diagnosis won't be recognized by the government for disability purposes or help in school). Psychologists who have studied AS are good. I don't trust psychiatrists, much of the time they're odd themselves. Many of them are arrogant as well as ignorant, and refuse to listen to reason if somebody disagrees with them or tries to educate them on things they don't understand. Unfortunately, in order to get an official diagnosis, you might have no choice but to try one of them.
            German citizen, married to a Canadian for 28 years, four daughters, one son, eight grandchildren (and one on the way).

            Comment

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