Announcement

Collapse

Please Read This Before Posting in Tic Parade

Your input into the Tic Parade will provide valuable insights for parents of children with Tourette, adults with Tourette in addition to health professionals treating persons with Tourette.

The Tic Parade is a library or encyclopedia of Tourette tics in which each tic is described by the person who experiences or observes that tic.

Some tics are preceded by an urge or sensation in the affected muscle group, commonly called a premonitory urge. Some with TS will describe a need to complete a tic in a certain way or a certain number of times in order to relieve the urge or decrease the sensation.

By providing insights into what is observed as well as what is experienced might help the person with the disorder as well as those living with the person cope and know how to deal with their tics.

When posting the description of the tic you wish to discuss, go to the appropriate Forum section Head and Neck, Torso, Limbs or Vocal and title your message with one or two words that describe the tic.

For example some topic titles could be:
  • Barking
  • Finger Flicking
  • Head Twisting
  • Shoulder Rolling
  • Choking Sounds
  • Abdomen Twitch


When discussing coprolalia, please use common sense in describing the nature of the words or terms being used. Although some latitude will be allowed in the use of the actual word or term, any exaggerated or flagrant use of profanity on the Forum will not be tolerated and postings will be removed.

Coprolalia - Involuntary utterances of obscene or inappropriate statements or words

See also Overview of Tourette Tics
See more
See less

Facial Tics - rubbing face

Collapse
X
  • Filter
  • Time
  • Show
Clear All
new posts

  • Facial Tics - rubbing face

    Anyone have a TS child that rubs part of their face?
    Our dd rubs a part of her face daily, leaving red marks and often making the skin bleed. She doesn't seem to be able to stop herself.

    Any suggestions?
    Yes, she takes medication but it doesn't help everything and we've tried many medications.
    Tictalkmom
    Being different is special.

  • #2
    Rubbing face

    Hi
    My 12 yr old son doesn't rub his face, but he scratches the same spot on his scalp to the place where he has a small bald spot. Yesterday he came home from school with a very blue spot on his head where he had been scratching it with a pen. He also can't seem to stop--I think he does it without realizing. Definitely does it more at school than at home.....We haven't tried meds for it yet...I am hoping he will stop before the bald spot gets much larger. If you find something that works, please post it...
    Good luck, and hopefully that tic or OCD will pass soon.
    Lena

    Comment


    • #3
      Facial Tics

      Thanks for your reply Lena.
      This particular tic has been going on for over a year now.
      Our dd is taking a medication called "Clonazepam", which helps with anxiety and has anti-tic benefits. It has helped with several of the tics, however it has not been effective with this particular tic.
      Tictalkmom
      Being different is special.

      Comment


      • #4
        Facial Tics - rubbing face

        hello, im sorry if this message is short but im late for the bell...


        i personnaly think that the medication cannot stop the facial tick, its stops the verbal toick but it annot stop the facial, that is what i beleive from first hand experience.

        Comment


        • #5
          Facial Tics - rubbing face

          I believe there is a variation of TS when a tic becomes self injurious. Some people will cause severe injury to themselves by biting at a particular site for example.

          Read more about this behaviour HERE

          Clonazepam is the generic name for Rivotril and is a minor tranquilizer in the benzodiazepine class of meds. Other examples of benzodiazepines are Valium, Serax and Ativan.

          Benzodiazepines have been found useful in treating obsessive compulsive disorder OCD, and is a treatment strategy often used in treating TS symptoms.

          Clonazepam appears to have good results in treating TS related OCD.
          Steve
          TouretteLinks Forum

          Comment


          • #6
            Thank you Olivier

            :D Thanks for your reply Olivier.
            Would like to read more from you on tics.
            My daughter is 15 with several tics. I noticed on the youth forum you are looking for a penpal. I'm sure you and my daughter would have a lot in common.

            As a parent, I'm always trying to learn more about Tourettes, and quite often learn alot from other people who have Touretees.

            Take care and e-mail me if you would like to consider being penpal with my dd. I will then send her your e-mail so she can reply directly to you.
            Take care.

            Tictalkmom (Diane)



            :D
            Originally posted by olivier
            hello, im sorry if this message is short but im late for the bell...


            i personnaly think that the medication cannot stop the facial tick, its stops the verbal toick but it annot stop the facial, that is what i beleive from first hand experience.
            :D
            Tictalkmom
            Being different is special.

            Comment


            • #7
              Facial Tics - rubbing face

              My son also has a rubbing gesture where he rubs upward on his nose. He often gets red and sore and currently we have not medicated him. OPour neurologist feels that he doesn't require medication at this time. When have other parents decided that it was time to medicate? Can medications help with rages as well?

              Comment


              • #8
                meds

                I have ts with many symptoms including rage. I believe that all the symptoms surrounding ts may come from different sources and that may rage seems to be kept in check when I eliminate sugar and caffiene. I also use homeopathy which can really calm me down right away as it is absorbed under the tongue and into the bloodstream. Also stress and frustration lead me to rage, I'm still workin on takin a time out and breathing.
                Fully researching any meds before taking them is common sense as there can be many side effects with pd prescrption drugs. Do u really want to tranquillize a child before tryin something a little softer and natural.
                Allergy testing can also help to get rid of any foods that may be irritating or stimulating symptoms. :D Scott

                Comment


                • #9
                  Facial Tics - rubbing face

                  >>>Fully researching any meds before taking them is common sense as there can be many side effects with pd prescription drugs. Do u really want to tranquillize a child before trying something a little softer and natural. <<<

                  Hello Scott!

                  You're right about researching and learning about medications that might be prescribed. In addition. it's a good idea to look at reputable and scientifically based drug interaction information, to ensure the meds you are prescribed can be taken together, and/or if there are any food or other restrictions with those meds.

                  Usually medications prescribed for TS are not tranquilizer type medications. Meds used in treating TS are specific to the purpose which is determined by a qualified physician.

                  Of course, as you allude to, the least amount of medication that achieves the desired therapeutic effect should be the goal.

                  Would you elaborate on the homeopathic substances you are using and on the benefits you have experienced?
                  Steve
                  TouretteLinks Forum

                  Comment


                  • #10
                    homeopathy

                    Hi Steve

                    Yeah i didnt know that there were pd prescription drugs specifically for TS but since I,ve given up on pd from really bad experiences I dont think I'll go back to them. Sometimes it does seem a bit like an experiment the way docs hand out pd's.
                    Ive been takin homeopathy for a little while, all it really seems to do is calm me down somewhat and allow me to focus on something else. There are many different kinds of homeo but what I'm takin is called Unda 226. My problem is that Ive been self medicating with cannabis for over 20 yrs that I dont really give the homeo a chance on its own. Cannabis worked so well at stopping my tics that the difference was like nite and day. But I dont really advocate its use as it can have side effects. I also consume cannabis now with a docs prescription but I would like to cut down or stop using it and replace it with another natural remedy. If anyone knows of anything natural that has helped with their tics especially coprolalia or aggressive rages I would love to know about them.
                    SCott

                    Comment


                    • #11
                      Facial Tics - rubbing face

                      Scott,

                      I did not explain myself correctly about TS specific meds. The medications generally used to relieve TS symptoms are indicated mainly for purposes other than TS, but have been found useful in the treatment of TS symptoms.

                      There may be meds specifically indicated for TS, but I am not aware of any at this time. If someone update us on that, it would be appreciated.
                      Steve
                      TouretteLinks Forum

                      Comment


                      • #12
                        Facial Tics - rubbing face

                        Steve,

                        I think your right with that there arnt any meds for TS specifically (although I very well could be wrong). I know the two meds im taking are not made for and only TS patients. One (clonidine) is actually for low blood pressure or something. The other (orap or pemizide) is used in alot of disorders affecting the nervous system (ADD, ADHD). But if there is a true medication used for TS I would love to hear about it. Im actually considering what else is out there. I think I might beb becoming used to the meds and they are not working fully anymore.
                        The other day at a local grocery store, I saw a rack with books on it and one of them said, "pregancy for dummies"............

                        Comment


                        • #13
                          Facial Tics - rubbing face

                          >>>I think I might beb becoming used to the meds and they are not working fully anymore<<<

                          Adam,

                          The phenomenon you are referring to is termed "tolerance". With some medications, some people develop tolerance which means they require more of the medication to achieve same effect, after a period of time.

                          Tolerance is different from addiction or habituation.

                          So if you believe you have developed a tolerance to your medications, it should be discussed with your doctor. To research if thetwo meds you referred to are associated with tolerance, try a Google search for the combined search words " clonidine tolerance" (without the quotations) to see what you come up with.
                          Steve
                          TouretteLinks Forum

                          Comment

                          Working...
                          X