Please Read This Before Posting in Tic Parade

Your input into the Tic Parade will provide valuable insights for parents of children with Tourette, adults with Tourette in addition to health professionals treating persons with Tourette.

The Tic Parade is a library or encyclopedia of Tourette tics in which each tic is described by the person who experiences or observes that tic.

Some tics are preceded by an urge or sensation in the affected muscle group, commonly called a premonitory urge. Some with TS will describe a need to complete a tic in a certain way or a certain number of times in order to relieve the urge or decrease the sensation.

By providing insights into what is observed as well as what is experienced might help the person with the disorder as well as those living with the person cope and know how to deal with their tics.

When posting the description of the tic you wish to discuss, go to the appropriate Forum section Head and Neck, Torso, Limbs or Vocal and title your message with one or two words that describe the tic.

For example some topic titles could be:
  • Barking
  • Finger Flicking
  • Head Twisting
  • Shoulder Rolling
  • Choking Sounds
  • Abdomen Twitch

When discussing coprolalia, please use common sense in describing the nature of the words or terms being used. Although some latitude will be allowed in the use of the actual word or term, any exaggerated or flagrant use of profanity on the Forum will not be tolerated and postings will be removed.

Coprolalia - Involuntary utterances of obscene or inappropriate statements or words

See also Overview of Tourette Tics
See more
See less

Head shaking

  • Filter
  • Time
  • Show
Clear All
new posts

  • Head shaking

    My 6 1/2 year old just started having tics recently, she has been shaking her head non stop for about 3 weeks now. She also has some eye blinking tics as well. The head shaking is starting to make her feel sick, nauseated and headachey. Any advice out there on what I can do to help her with this? Thanks.

  • #2
    Re: Head shaking

    Hello Kelownamom,

    Has your daughter been seen by a pediatrician or neurologist experienced in treating children with Tourette?

    As you know, if your daughter has Tourette Syndrome, her tics are involuntary, so she is unable to stop on her own.

    At 6 1/2 she is probably just starting to express her tics, so she has little experience in even attempting to suppress, if indeed she can. Not everyone with Tourette is able to voluntarily suppress their tics, although some studies using cognitive behavioural therapy suggest some children can learn some suppression techniques.

    Other factors that might serve to increase tic activity might be stress caused, perhaps by family members showing disapproval for her tic activity.

    What is the acceptance level of the family in and around the home of your daughter's tics?

    Does your daughter have a "safe place" at home where she can be alone and express her tics at will and to the extent she needs without interfering with others, and not be interfered with herself?
    TouretteLinks Forum


    • #3
      Re: Head shaking

      She has not seen anyone yet. She has an appointment with a paediatrician in August. We have been trying to just ignore the tics. Her older brother has TS as well, so we know not to give them much attention, however his tics have never been as bad as her head shaking. She is also experiencing alot of anxiety lately as well, not wanting to go to school or social events, but seems to be her old self at home. She just started having tics about a month ago, the same time as her anxiety issues. I'm just worried that they are so severe, so quickly. And also, she complains of nausea everyday, so I'm thinking the head shaking is giving her some motion sickness.


      • #4
        Re: Head shaking

        She is also experiencing alot of anxiety lately as well, not wanting to go to school or social events
        Is it possible other kids might be drawing attention to her because of her tics, perhaps even teasing or at worst, bullying?

        If this is the case, you would need to speak to the teacher, or principal to determine their understanding of Tourette and what is their policy on children with the disorder.

        The TSFC has an In Service Training Guide for this very purpose and some local TSFC Chapters can provide a volunteer In Service trainer who will present the material to your child's school. If a volunteer is unavailable, it is designed so that you could present it yourself.

        Additionally, a presentation to your daughter's classmates, on Tourette can often be helpful.

        It may help your daughter if you help her with a ready explanation to anyone who is puzzled by her tics and where she feels she needs to explain.

        Usually if a child learns something like "I have Tourette Syndrome, a neurological (or brain) disorder that causes me to do or say these things. Tourette Syndrome is involuntary, adn I cannot control my tics"

        If she role plays and rehearses her little explanation with you, she can be ready to face the world.

        Print out a copy of one of our handouts that she can carry to give to someone when needed.
        TouretteLinks Forum