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Your input into the Tic Parade will provide valuable insights for parents of children with Tourette, adults with Tourette in addition to health professionals treating persons with Tourette.

The Tic Parade is a library or encyclopedia of Tourette tics in which each tic is described by the person who experiences or observes that tic.

Some tics are preceded by an urge or sensation in the affected muscle group, commonly called a premonitory urge. Some with TS will describe a need to complete a tic in a certain way or a certain number of times in order to relieve the urge or decrease the sensation.

By providing insights into what is observed as well as what is experienced might help the person with the disorder as well as those living with the person cope and know how to deal with their tics.

When posting the description of the tic you wish to discuss, go to the appropriate Forum section Head and Neck, Torso, Limbs or Vocal and title your message with one or two words that describe the tic.

For example some topic titles could be:
  • Barking
  • Finger Flicking
  • Head Twisting
  • Shoulder Rolling
  • Choking Sounds
  • Abdomen Twitch


When discussing coprolalia, please use common sense in describing the nature of the words or terms being used. Although some latitude will be allowed in the use of the actual word or term, any exaggerated or flagrant use of profanity on the Forum will not be tolerated and postings will be removed.

Coprolalia - Involuntary utterances of obscene or inappropriate statements or words

See also Overview of Tourette Tics
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No Movement Except Tics

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  • No Movement Except Tics

    Does anyone stop all movement except for the ticcs?

    Stop walking, talking, or anything you are doing except for ticcs? Steph

  • #2
    No Movement Except Tics

    stop all movement except for the tics?
    Interesting question and will look forward to hearing how others respond.

    I find that tics are incorporated in whatever is the activity at hand..like multi tasking :P
    Steve
    TouretteLinks Forum

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    • #3
      No Movement Except Tics

      This is so true:

      I find that tics are incorporated in whatever is the activity at hand..like multi tasking
      I am the queen of multi-tasking and many people around me don't understand it. My tics are mild and most people rarely notice them... but the ADHD is obvious everyday. I can juggle many things and stay connected with them all... I call it a gift most of the time.

      A funny story about trying to stop movements except for tics was last night for my oldest son. I was cutting his hair (he keeps it pretty short) and he has a major head tic and I am focused on cutting and trimming around his ears and he is sat perfectly still... for a minute I forgot we both had TS :P and then his head did a major twist. He frightened me because I could have trimmed his ear not his hair. I said "my stars ! I wasn't expecting that" he said. " I told you I could feel it coming"... boy was I focused because I didn't hear the warning.
      Janet

      TSFC Homepage

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      • #4
        No Movement Except Tics

        I have seen him stop all activity and just ticc.

        He could be speaking or walking or other activities and everything else will just stop.

        I know it sounds like a seizure but it would have been picked up by the EEG, and that turned out normal.

        Janet that episode with cutting his hair would have freaked me out. Steph

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        • #5
          No Movement Except Tics

          Hey Steph

          He could be speaking or walking or other activities and everything else will just stop.
          I can probably relate more to this with my second oldest. He describes an internal tic he has as his "twister" and that would be that he feels like he is vibrating from the top of his head to his feet on the inside but he knows he is not vibrating on the outside. When this comes over him he does stop everything and you can watch him contort his body trying to probably stop it, but to your point, he stops everything until it passes. I emphasize with him ... I often wonder if it is like when you have cold shivers run up your back. You know how you will stop, let it pass and then go back to what you were doing.

          this is a great topic for discussion, I look forward to what others have to share.
          Janet

          TSFC Homepage

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          • #6
            No Movement Except Tics

            Good question Steph.
            First off- Janet, I have that vibrating feeling too like your son!! but mines only on the top of my head and neck if i try to keep it from jerking from the side in a wierd way its like your trying to shake it off.
            I stop what im doing alot tic...IF I get excited its like a outburst I seriously cant control it @ all I just do it. It happens really fast and I dont have that tension before i release it like usual b/c i just automatically do it like a serious of them until it feels ok. And then I can continue doing w/e im doing. Its always the second i feel excited I do it. Then I can continue to feel excited but the tics are like normal but not like an uncontrolable outburst. When im excited thres like cetain tics that r liek reserved that lol. I stop what im doing if something sets my tics off like if I look at the sun or bright light its like automatic tic. People @ school knows that ppl mimicing me triggers me and so they mimic me in my face to make me tic on purpose. Oh yeah and if I hold it in it builds up and i'll eventually hav a outburst but @ least I know its comming.....Other than that I multitask too. lol

            `Alley

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            • #7
              No Movement Except Tics

              Hi Alley,

              they mimic me in my face to make me tic on purpose
              I am sorry that they treat you this way. We know that you are a nice person and that is what counts.

              Just try and ignore the people who are like that. In a few years, you will be finished high school.

              Hang in there, and remember we are always here to talk to. Steph

              Comment


              • #8
                No Movement Except Tics

                Steph:

                TS is reasonably new to your son and if I understand it correctly you have not really explained much about it yet to him.

                When my son started his major motor tics and louder vocal tics he responded the same way.
                He told me that if felt weird and it scarred him some so he tried to stay very still to make it stop.

                Once we had a couple simple talks about TS he stopped turning into a board with he tic's.

                Now we just carry on and we ignore other people that turn into a board watching him tic.
                PJK

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                • #9
                  No Movement Except Tics

                  PJK,

                  Once we had a couple simple talks about TS he stopped turning into a board with he tic's.
                  My son, the other day, looked at me and said:

                  Mom, I am different right and you are a nurse I know that you know!

                  I said yes, you are special.

                  You have a syndrome which means that you make little movements that other people don't make.

                  Then he said I have all these thoughts and how come I have to work harder than the other kids. I told him about ADHD and he smiled.

                  It was absolutely the right thing to do, and I am sorry that I didn't tell him earlier. It was like he was relieved and he had been happier about his movements since.

                  Thank you for the push to do the right thing. Steph

                  Comment


                  • #10
                    No Movement Except Tics

                    Steph

                    I am glad you were able to speak to him. It will make so much difference for him in his future. :D

                    Mark my word it will not be the last talk either, which is good.

                    I have an open line of communication with my son over his TS and he now works with me to make it better when tics are severe instead of fighting it or just suffering.

                    It is a peace of mind, children all need understanding that they are important and it is ok.
                    PJK

                    Comment


                    • #11
                      No Movement Except Tics

                      PJK,

                      open line of communication with my son over his TS
                      That is the goal with my son. Not only with his Tourette Syndrome and ADHD but with life in general. Steph

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                      • #12
                        No Movement Except Tics

                        some times it feels like I just can't move at all but then I can shortly after

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                        • #13
                          Re: No Movement Except Tics

                          PJK,

                          I am glad you were able to speak to him. It will make so much difference for him in his future.
                          My son knows all about his TS and ADHD for a little while now and it has made a great difference.

                          He would walk up to anyone and tell him that he has TS.

                          He is so open that I had to tell him that we keep that information to our family only.

                          Steph

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