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Your input into the Tic Parade will provide valuable insights for parents of children with Tourette, adults with Tourette in addition to health professionals treating persons with Tourette.

The Tic Parade is a library or encyclopedia of Tourette tics in which each tic is described by the person who experiences or observes that tic.

Some tics are preceded by an urge or sensation in the affected muscle group, commonly called a premonitory urge. Some with TS will describe a need to complete a tic in a certain way or a certain number of times in order to relieve the urge or decrease the sensation.

By providing insights into what is observed as well as what is experienced might help the person with the disorder as well as those living with the person cope and know how to deal with their tics.

When posting the description of the tic you wish to discuss, go to the appropriate Forum section Head and Neck, Torso, Limbs or Vocal and title your message with one or two words that describe the tic.

For example some topic titles could be:
  • Barking
  • Finger Flicking
  • Head Twisting
  • Shoulder Rolling
  • Choking Sounds
  • Abdomen Twitch


When discussing coprolalia, please use common sense in describing the nature of the words or terms being used. Although some latitude will be allowed in the use of the actual word or term, any exaggerated or flagrant use of profanity on the Forum will not be tolerated and postings will be removed.

Coprolalia - Involuntary utterances of obscene or inappropriate statements or words

See also Overview of Tourette Tics
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Four Popular Misconceptions about Tourette Syndrome

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  • Four Popular Misconceptions about Tourette Syndrome

    Excerpt from the article:
    What Do We Know about Tourette's?
    Scientific American
    July, 2009

    Tourette’s disorder is the subject of popular misconceptions; we’ll examine the four that are most widespread.

    Misconception 1:
    All Tourette’s patients curse.

    In a survey of undergraduates by University of San Diego psychologists Annette Taylor and Patricia Kowalski, 65 percent endorsed this view. In fact, coprolalia, the use of curse words, and copropraxia, the use of obscene gestures, occur in only a minority—probably about 10 to 15 percent—of Tourette’s patients.

    But because these symptoms are so dramatic, they plant themselves firmly in observers’ memories. They also garner the lion’s share of media attention, as in a 2002 Curb Your Enthusiasm episode featuring a chef with Tourette’s disorder, who curses uncontrollably in front of his customers.

    Misconception 2:
    Tourette’s symptoms are voluntary.

    Because Tourette’s sufferers can often suppress their tics for brief periods, some have concluded mistakenly that patients generate them of their own accord. In fact, they have little or no control over premonitory urges and can inhibit tics only for so long, just as you can only briefly avoid scratching an itch. Moreover, tic suppression typically results in a later “rebound” of tics.

    Misconception 3:
    Tourette’s *disorder is caused by underlying psychological conflict.

    As medical historian Howard Kushner, now at Emory University, noted, the idea that Tourette’s results from deep-seated psychological factors held sway in American psychiatry for much of the 20th century. As recently as the mid-1980s, one of us (Lilienfeld) was told by a psychologist in training that the tics of Tourette’s patients represented symbolic discharges of repressed sexual energies.

    Today we know that the disorder is substantially heritable. A 1985 study by R. Arlen Price, then at Yale University, and his colleagues found that in identical twins (who share virtually all of their genes) with Tourette’s, both twins had the disorder 53 percent of the time, whereas in fraternal twins (who share half their genes on average) with Tourette’s, both twins had the disorder only 8 percent of the time.

    Still, stress can increase tic frequency, so genes are unlikely to tell the whole story. Brain-imaging studies of Tourette’s patients reveal abnormalities in areas related to movement, such as the basal ganglia, a collection of structures buried deep in the cerebral hemispheres.

    Misconception 4:
    People with Tourette’s are incapacitated by their symptoms.

    Many individuals with Tourette’s function successfully in society. Mort Doran, a Canadian surgeon with Tourette’s, manages to suppress his tics while in the operating room; he is also an amateur pilot. Neurologist Oliver Sacks wrote of a jazz drummer who reported that his Tourette’s disorder enhanced his musical performances by imbuing them with energy.

    Indeed, some have argued that Tourette’s can be a blessing rather than a curse, perhaps in part because the condition forces people to learn impulse-control skills that few of us acquire. This claim is intriguing but anecdotal. Former National Basketball Association point guard Chris Jackson, who changed his name to Mahmoud Abdul-Rauf, said that his Tourette’s made him focus with laserlike precision on his shooting. He twice led the league in free-throw percentage; during one stretch of play in 1993, he made 81 consecutive free throws.
    Steve
    TouretteLinks Forum
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