Announcement

Collapse

Please Read This Before Posting in Tic Parade

Your input into the Tic Parade will provide valuable insights for parents of children with Tourette, adults with Tourette in addition to health professionals treating persons with Tourette.

The Tic Parade is a library or encyclopedia of Tourette tics in which each tic is described by the person who experiences or observes that tic.

Some tics are preceded by an urge or sensation in the affected muscle group, commonly called a premonitory urge. Some with TS will describe a need to complete a tic in a certain way or a certain number of times in order to relieve the urge or decrease the sensation.

By providing insights into what is observed as well as what is experienced might help the person with the disorder as well as those living with the person cope and know how to deal with their tics.

When posting the description of the tic you wish to discuss, go to the appropriate Forum section Head and Neck, Torso, Limbs or Vocal and title your message with one or two words that describe the tic.

For example some topic titles could be:
  • Barking
  • Finger Flicking
  • Head Twisting
  • Shoulder Rolling
  • Choking Sounds
  • Abdomen Twitch


When discussing coprolalia, please use common sense in describing the nature of the words or terms being used. Although some latitude will be allowed in the use of the actual word or term, any exaggerated or flagrant use of profanity on the Forum will not be tolerated and postings will be removed.

Coprolalia - Involuntary utterances of obscene or inappropriate statements or words

See also Overview of Tourette Tics
See more
See less

New tic - scared mom

Collapse
X
  • Filter
  • Time
  • Show
Clear All
new posts

  • New tic - scared mom

    Hi!
    I have a 8 yr son who has developed a facial tic, with his eyes (looks like he's making faces or rolling his eyes) occasionally his whole head twiches. I have been researching on the internet and am confused and scared by what I've read. I was initially convinced he had allergies and that's what was causing his recurrent blinking. The blinking started about 6 weeks ago and coincided with a 8 day febrile illness that the dr's could not diagnose, (they never tested him for strep) things got better for a bit and than he went away for 2 days and came home with the tic... I'm trying to find out how fast this usually comes on. We have a optometrist appt this week and a dr's appt too (we have no pediatricians or neurlogist in our town). We saw one dr and he thought the tic could be from sun damage to his eyes... I am scared and worried but can't find info on the beginning stages of tic disorders only all the problems and concerns after a TS diagnosis.....we may need that info in the future but right now I'm wondering about the types of tics and how long before I should expect a new one to start.. its been about 4 weeks since this eye tic started... if anyone knows a web site that might give me some insight I would really appreciate it.

    thanks

  • #2
    new tic - scared mom

    Welcome to the TSFC Forum. Hope we can point you toward some answers.

    As you mentioned a febrile illness in a reference to strep, I'll point you to some information on PANDAS

    "PANDAS" is an acronym for "Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections."

    Click HERE for an overview on PANDAS and then HERE for some further links.

    How far away is the closest paedeatric health facility where you son can be evaluated?

    Your son needs to be diagnosed by a competent specialist familiar with tic disorders in order to rule out various causes for your son's tics.

    To assist you in your understanding Tourette Syndrome, here are the Diagnostic Criteria

    A) Both multiple motor and one or more vocal tics have been present at some time during the illness, although not necessarily concurrently.

    B) The tics occur many times a day (usually in bouts) nearly every day or intermittently throughout a period of more than 1 year, and during this period there was never a tic-free period of more than 3 consecutive months.

    C) The onset is before age 18.

    D) The disturbance is not due to the direct physiological effects of a substance (e.g. stimulants) or a general medical condition (e.g. Huntington's disease or post-viral encephalitis).

    Source for Diagnostic Criteria: Diagnostic and Statistical Manual of Mental Disorders - Fourth Edition (DSM-IV - Text Revision), published by the American Psychiatric Association, Washington D.C., 2000, the main diagnostic reference of Mental Health professionals in the United States of America and Canada.

    Please keep us posted on the reports from the physicians whom your son will be seeing.
    Steve
    TouretteLinks Forum

    Comment


    • #3
      new tic - scared mom

      The blinking started about 6 weeks ago
      About 10% of the population has tic disorders, and the vast majority of them are transient tic disorders that show up in childhood, are around for awhile and then disappear.

      Though the majority of people with TS report that eye blinking is one of the first tics they had, this is also a very common tic in all the tic disorders.

      There is no minimum or maximum time between when 'the first tic' shows up and other tics appear. Studies of the course of tics show that simple motor tics are usually the first to develop. Vocal tics develop later.

      As Steve's message states, TS is only diagnosed if both motor and vocal tics are present and the tics have been present for over a year.
      Cathy
      Forum Moderator

      Comment


      • #4
        new tic - scared mom

        thanks Steve and Cathy for your info.

        I guess I've been really upset because the eye blinking started 6 weeks ago and with in 2 weeks seemed to change into a different twitch, one where his eyes roll and I can actually see what looks like nerves jumoing in his forehead. Very much like he is making faces and rolling his eyes. Occasionally within the last week his whole head jerks slightly while he is doing the other twich, but the constant blinking had stopped. He does this almost constantly, all day long, but not in his sleep. If he concentrates on something, reading on playing games it is really really bad....

        Just trying to make some sense of this, I live in a really small town about 2and a half hours from Toronto which I believe is the closest ped. neuro but will they even see us before the tics have been happening for a year...

        thanks again for the info

        Comment


        • #5
          new tic - scared mom

          Hi there

          welcome to our bb. you can certainly start the process and get a referral to the neurologist based on what you have you observed so far. start journaling all your concern because the apointment could have a long wait time. the more uou have documened around conerns with his behavior the better it will be for you when the appointment time arrives... it will be a record of your child's history. there are several tests that they may require just to rule other conditions out. there is no medical test for Tourette so the more documentation you have the better.

          hope this helps and feel free to post any questions or concerns you have. there are many people on this forum who live with TS everyday as well as many parents who have children who happen to live with TS.

          stay connected with us and you may want to visit some of the posts made in the thread for parents to see what others have shared about their children.
          Janet

          TSFC Homepage

          Comment


          • #6
            new tic - scared mom

            I have one more question regarding hereditary trait. If I know 100% that there has never been any tic disorder or Tourettes in either side of our family all the way back to great grandparents, does that mean there is no chance that my sons tic will become Tourettes??

            Comment


            • #7
              new tic - scared mom

              Unfortunately, no, it's not that clear. Tourette's could come from higher up, or develop on its own further down the line.

              There are no known cases of Tourette's syndrome in my family in previous generations -- but both my brother and I have it.
              Colin

              Comment


              • #8
                new tic - scared mom

                Not having a tic disorder in the family does not mean that TS will be completely ruled out. Certainly the majority of people who are diagnosed with TS will have someone in the family with some sort of tic disorder, however, the disorder could be very mild and/or never diagnosed -- for example a small tic around the eyes that was thought to be caused by squinting in the sun, or someone who had a transient tic as a child that they forgot about.

                Most doctors also look for other neurological disorders such as ADHD, OCD, etc. when taking a family history.

                There are also other tic disorders other than TS. TS is the least common and the most complex of the tic disorders. The other tic disorders are described here.

                You were asking whether a pediatric neurologist would even see your child before a year is up. Yes, they will. There are other explanations for tics other than TS and your child would need to be assessed in order to rule out other causes. A neurologist can assess your child before the symptoms have been showing for a year since he will not be screening for TS only.

                As Janet said, it will be easier to provide the information the doctor will be looking for if you make note of the types of tics your child is having and the frequency of them. You don't need to record this every day, but record what you are seeing now, and then if you notice changes in the types of tics, or their frequency, make note of the date and the changes you have observed. This will help the doctor determine what is going on with your child.
                Cathy
                Forum Moderator

                Comment


                • #9
                  new tic - scared mom

                  Hi there

                  When my oldest was diagnosed, he was the first ever to be diagnosed in our family. From his diagnosis came mine. This was the case due to the fact that there was no awareness in my family of this disorder. The tics I had as a child were mild and were described as bad habits... The storms I had as a child were explained away as being "touchy" ie sensitive... I was described as "she cries over everything, or she is always crying!" With the education I now have on Tourette and the associated bevaviors, I now can see that others in my family have displayed mild symptoms over the years as well. (I was one of six kids growing up)

                  As Cathy said, they will look at other neurologies in families when taking your family history. There have been cases where Tourette has resulted from the cummulation of neurologies ie an ADHD dad and a High anxiety mom produce a child with TS plus.

                  Just keep track of your concerns and share as much information as possible when you see your doctor.
                  Janet

                  TSFC Homepage

                  Comment


                  • #10
                    new tic - scared mom

                    hi !
                    We saw our family dr today and he is going to refer us to a pediatriciann and an allergist..( just in case allergies are causing our tics???)
                    are F.D. said this tic soes not look like anything he's seen before, and hinks we need to see a neurologist asap, but.......... we must see a pediatrician first and than they refer us, the family dr can not..... this kind of stuff is very frustrating!


                    I find that my sons tic gets worse when he is watching tv or reading, or playing video games, but nearly subsides while riding his bike or playing with his friends?? Isn't it usually the other way around??

                    Comment


                    • #11
                      new tic - scared mom

                      Not really. Tics can come out in burts during any type of brain stimulation. When Im playing a sport, basketball or football, I tic so little I dont even notice but when Im in a calm setting but must concentrate on a specific thing, my tics go up, like driving or playing video games. Most generally, anything that increases anxiety or stress will be a naturally time for tics to become more noticable.

                      The best thing right now is to mentally take note of what you see or notice of his actions and when you see the pediatrician and/or nuerologist, let them know what you have seen. That will better help them with a diagnosis and help you understand more of what the casue and remedy will be.
                      The other day at a local grocery store, I saw a rack with books on it and one of them said, "pregancy for dummies"............

                      Comment


                      • #12
                        new tic - scared mom

                        hello!

                        Over the past 3 days my sons tic has decreased substantionally. He is barely doing it at all and that is good, but it has me worried about waxing and waning I've heard about. If this is what is happening can we expect the next time the tic starts for it to be the same one or a new one?? Or do tics usually die down a bit occasionally. He went from maybe ticcing 30 times a minute all day long to maybe doing it 30 times a day..... it's a dramatic decrease. Any ideas?

                        Comment


                        • #13
                          new tic - scared mom

                          Tics can decrease dramatically and almost disappear for a time. There is no set pattern to how long they may decrease for, or how the tics will reoccur. If they reoccur, you may see the same tic, or group of tics, or you may see some new tics.

                          In a previous posting you said your son has only had the tics for awhile and they appeared after an illness. You may actually be dealing with a transient tic disorder and the tics may be subsiding. This is quite common in children. Unfortunately only time will tell if this is transient, or if the tics will reoccur.

                          Are you seeing your son's doctor soon? Keep track of the pattern and frequency of the tics and provide the doctor with that information. It will help with a diagnosis.
                          Cathy
                          Forum Moderator

                          Comment


                          • #14
                            new tic - scared mom

                            Confused Mom: the tics are like the clothing worn by other people you work with. You don't know until you see them. And you start over the next day. No one can predict tic patterns, at least not yet. Chaos theory gives us a way to say what is likely, but you never know.

                            For example: I do not know what day my shoulder separating tic stopped. That vague sense of the tic is exactly what you want. It needs to become background noise. Then, when the anxiety or reaction goes away, most tics that are not part of that Touretter's "Tic Theme" (my term) also go away.

                            Let me try again, in English this time. The last thing I remember about my shoulder tic is that it hurt, and I was upset about it. I do not have any memory of saying to myself, "Hey! That tic just went away." It does not work that way. But I think that once I was not worrying about it, it went away. Weird how stress increased the tics 'inertia' - it was stuck to me, as long as I fed it a response.

                            This is getting flaky, but it is important. I am of the opinion (get out the pitchforks and torches) that OCD is NOT a subset of TS. I am convinced, from my personal experience, the research and textbooks, and from talking with hundreds of folks with TS over the years, that Tourette's sydrome is a subset of OCD. <cue scary music>

                            If I am right, that would explain the stress / anxiety component of tics to a degree that would greatly support a holistic / natural remedy to tics. But how easy is it to get a teenager to calm down, even when they don't have these wonderful disorders? Especially when the opposite sex is in the room...
                            Darin M. Bush, The Tourette Tiger, author of "Tiger Trails"
                            http://www.facebook.com/tourettetiger

                            Comment


                            • #15
                              new tic - scared mom

                              confused Mom:

                              most of what you have described, we have already lived through. It took 6 years for my son to be diagnosed properly, now he is getting the help he needs.
                              Make sure you require a pediatric neurologist to care for your child. They can handle the concerns much better then one always seeing an adult.
                              Document all the moments and changes while you wait. Sometimes a pattern surfaces and other times its just good to have a record of it.
                              My son is 12 now and throws his head back and to the left as you roles his eyes back in his head and glares side ways. This is most uncomfortable for him and now his wrists spin too. Someone seriously thought he was having seizures...before I told them it was a combination of tics.

                              Hang in there and push for answers. I have found that after researching and spending more time on this site, sometimes Mom's know more then the professionals our children get passed around too. It helps to be able to clarify the issues and concerns. Make sure you make notes before seeing the Doctor and take notes when you speak to them.

                              Tic's come and go, sometimes new ones appear and other old ones come back ... you have to be patient and help your child understand that they are alright and TS is not the end of the world.

                              Books are referenced on this site for good reading and the school should invest in a kit to help support your child's needs.

                              They are the hardest to educate at times and less likely to go out of their own pattern of support to assist or tolerate your child's behavior.
                              PJK

                              Comment

                              Working...
                              X