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Welcome to the updated and refreshed Tourette Canada Online Forum!

Tourette Canada Online Forum is a free, safe, moderated online community where registered users can exchange ideas, information and support about issues related to Tourette Syndrome. Tourette Canada has recently changed the server and refreshed the pages so returning members will notice a brighter look. Tourette Canada welcomes back two former moderators, Janet Rumsey and Cathy Wylie, to the Forum. Their knowledge and insight will serve the Tourette Forum participants with dedication and expertise.

We would like to thank the administrators and moderators who have dedicated countless hours to build and maintain the Forum. We look forward to continuing to provide a place for individuals and families affected by Tourette Syndrome and its associated disorders to get information, exchange information with others, and connect with the affiliates and support available across Canada.
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Please Read This Before Posting in Tic Parade

Your input into the Tic Parade will provide valuable insights for parents of children with Tourette, adults with Tourette in addition to health professionals treating persons with Tourette.

The Tic Parade is a library or encyclopedia of Tourette tics in which each tic is described by the person who experiences or observes that tic.

Some tics are preceded by an urge or sensation in the affected muscle group, commonly called a premonitory urge. Some with TS will describe a need to complete a tic in a certain way or a certain number of times in order to relieve the urge or decrease the sensation.

By providing insights into what is observed as well as what is experienced might help the person with the disorder as well as those living with the person cope and know how to deal with their tics.

When posting the description of the tic you wish to discuss, go to the appropriate Forum section Head and Neck, Torso, Limbs or Vocal and title your message with one or two words that describe the tic.

For example some topic titles could be:
  • Barking
  • Finger Flicking
  • Head Twisting
  • Shoulder Rolling
  • Choking Sounds
  • Abdomen Twitch


When discussing coprolalia, please use common sense in describing the nature of the words or terms being used. Although some latitude will be allowed in the use of the actual word or term, any exaggerated or flagrant use of profanity on the Forum will not be tolerated and postings will be removed.

Coprolalia - Involuntary utterances of obscene or inappropriate statements or words

See also Overview of Tourette Tics
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Sometimes Tics

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  • Sometimes Tics

    I have recently received a diagnosis that my six year old has TS. I often wonder as he doesnt tick all the time. My question is one of the ticks he has is that his arms go up above his head but you can see his fingers go rigid. I tend to wonderif maybe this is something else. Does anyone else get this or should I be going back to the doctor?

  • #2
    Sometimes Tics

    Hi

    Your son will not necessarily tic all the time. Tics are more prevalent at some times of the day, and less prevalent at others. In general, when stress levels are high, tics are more noticable. Tics also change over time. A tic your child has now may be replaced by different ones in a few weeks or months.

    Tics can include movements where a part of the body tenses, or seems to be rigid. However, if you are concerned, check with your doctor.

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    • #3
      Sometimes Tics

      Hiya! My son (now 14) had a very similar tic when he was mucher younger. It too, like other tics waxed and waned and eventually went away to be replaced by something new. tics come in many different forms, and any concerns could possibly be answered by your doctor. GOOD LUCK!

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      • #4
        Sometimes Tics

        We haven't been officially diagnosed yet but I think my son does have Tourettes. He has a tic similar to what you describe, my son put his hand behind his head but wiggles his fingers and it messes his hair, he has another one where he brings his hands to his face on either side of his nose and holds his fingers rigid in a curl and breaths in hard. He has a new one as of today, hands go up to his ears and do a wiggle. We will have days that there are very few and others with much more. The car is the worst for him, almost continual.

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