Announcement

Collapse
No announcement yet.

Sexual dysfunction and Tourette's

Collapse
X
  • Filter
  • Time
  • Show
Clear All
new posts

  • Sexual dysfunction and Tourette's

    This is a bit embarassing for me but I figure I'm safe amongst fellow Tourette's sufferers. A little backhistory first, I was diagnosed at the age of 16 with tourettes. My TS manifested itself at age 8 but my Mother thought I was making faces trying to get attention. Needless to say I did not enjoy the negative attention, ie. physical abuse, I endured for the next 8 years. I was a shy little boy who did not know how to ask for help. Finally at age 16 I asked for help. Tried the drugs, didn't like them, had a negative reaction to halperidol. Decided I could live with my tics. Along comes puberty and the desire to want to experiment with girls. Right off the bat I notice that I have difficulty getting and maintaining an erection while I am with the my partner. I notice if i feel comfortable/relaxed, problems occur less. Finally after years of frustration, this is long before viagra and the openess of ED these days, I go to my doctor, he suggests viagra. Before I try it, I meet a girl and things are comfortable and I don't need the drug. Relationship ends and I'm back with being nervous and once again scared of trying to engage the oppsite sex for fear of "failing". I go to my doctor again, he says I'm depressed and proscribes anti-depressants, great for my depression, bad for the ED. I'm listening to the radio the other day and they are talking about the crystal meth. crisis. One of the things they talk about is how meth addicts burn out their dopamine receptors. I have an epifany at this point, TS is caused by an imbalance of dopamine in the brain. Dopamine transmits the pleasure signals. I'm now wondering if after all these years, 18 to be exact, if my Tourettes could be the cause of my ED problems? I have yet to see my doctor as I have been too busy with work and don't have time to make an appointment. Are there any other guys on this list that have had similar problems or am I grasping at straws?

  • #2
    Sexual Dysfunction & TS

    Bob,

    Welcome to the TSFC Forum and there is no reason to feel embarrassed here. Most of us live with TS every day so we understand there are issues that are not easily discussed.

    Your situation of enduring a difficult childhood is so very common. Unfortunately even up to a decade ago TS might have been misunderstood for so many other things.

    I am not aware of correlation between erectile dysfunction and TS, but it is a topic worthy of further research.

    It can be said, however that many medications used to treat various aspects of TS have the side effect of causing erectile dysfunction or impotence, haloperidol being one.

    CLICK HERE for info from the Canadian Product Monograph. Look under "Adverse REactions" then "Endocrine"

    More information on Erectile Dysfunction can be found HERE, where the causes and treatment of the disorder are given.

    I have yet to see my doctor as I have been too busy with work and don't have time to make an appointment
    May I respectfully suggest you take charge of your health care and make this a top priority if your quality of life is being affected. There are treatments available, but you must avail yourself of them in order to get them.

    Remember the old joke that no one has yet been hear to say on their death bed "I should have spent more time at the office".

    I would propose the following strategy:

    Determine if your family physician has a professional interest and expertise in Tourette Syndrome. Not all GP's have sufficient training in TS, so you would want to get a referral to a Neurologist or Psychiatrist with expertise in TS.

    On explaining your story and your concerns, you can expect that physician to either initiate treatment or perhaps refer you to a Urologist to evaluate your ED.

    Have you been in contact with a local TS support resource in your area? Check HERE to see if there is one in your area.

    Have you consulted any specialists to date to discuss your concerns?
    Steve
    TouretteLinks Forum

    Comment


    • #3
      Sexual Dysfunction & TS

      Bob,

      Hello and welcome again. Like steve said there is no need for feeling embarressed about this situation, or posting it here I guess. Anyways, it is true that dopamine is a "chemical" that is directly related to "sexual" feeling and it is true TS affects it. I to have not heard of TS being a main cause for ED but I have read before (I apologize, I dont remember where) that many doctors say that during sexual arousel, Touretters tic less due to a relaxed atmosphere and other complicated medical issues I probably dont understand. What I do know is that whoever said that very obviously does NOT have TS. Some of my worst tic are experienced during this time, which of course leads to more stress and anxiety which leads to more tics. So my point would be I guess, although there have not been any statements (at least to my knowledge) of TS directly causeing ED, sometimes doctors can be wrong or maybe just not know enough about this disorder to really give a 100% right answer. I would just suggest, like steve said, try to see a physician and make this the main point of the trip. Also, maybe visit some sites or books on ED and see if there is any helpful hints there as to what is the main cause of this problem.
      The other day at a local grocery store, I saw a rack with books on it and one of them said, "pregancy for dummies"............

      Comment


      • #4
        Sexual Dysfunction & TS

        Adam said "What I do know is that whoever said that very obviously does NOT have TS"

        LOL!

        ED is such a common problem for men. I really doubt it has anything to do with TS. I would definitely contact a doc for help about it though... I think a urologist is one of the first docs to see to rule stuff out? After that, maybe it's psychological? You mention having more success when you're comfortable and relaxed. That really sounds pretty normal to me...

        Comment


        • #5
          Sexual Dysfunction & TS

          ED is such a common problem for men. I really doubt it has anything to do with TS
          You might be right, but there is no doubt that many medications used to treat the manifestations of Tourette Syndrome do indeed suppress libido and the ability to perform sexually.

          Most common of these are selective seretonin re-uptake inhibitors (SSRI's) frequently prescribed for Tourette patients to control OCD or even depression.

          Neuroleptics as well as other commonly used medications exhibit similar side effects.
          Steve
          TouretteLinks Forum

          Comment


          • #6
            Sexual Dysfunction & TS

            You might be right, but there is no doubt that many medications used to treat the manifestations of Tourette Syndrome do indeed suppress libido and the ability to perform sexually.
            Hey, I figured out how to quote already! :D

            Agreed, but do meds have long-term effects? (I wouldn't be surprised!)
            He mentions he'd tried them, didn't like them, and was living med free..... though even if the meds did leave long-term side effects, technically, I'd still say it wasn't anything to do with the Tourette's itself.

            Comment


            • #7
              Sexual Dysfunction & TS

              I can't say for sure if my ed problems are caused by my TS definitively until I get some time off from work to go see a specialist. I'm in a catch 22 at the same time. I go to my doctor about my ED problems, he says I'm depressed and put's me on anti-depressants, anti-depressants even out my moods, but play havoc with my libido, thus getting me more worried and anxious. I know I wasn't always depressed and even at age 19 or 20 I would have problems performing. I noticed as I approached age 30 that I was nolonger getting daytime hardons and truth be told I can't remember the last time I got a freestanding hardon that wasn't self induced. As I said before, back in 1995 I tried an experimental TS drug and while I was on those meds I went over 3 months without a hardon of any sort. I decided that no drug with all it's side effects was worth putting up with. For the most part, I've been drug free with my TS and to be honest, I think i manage ok. I hate the cycles and I seem to be on a bad one that has gone on for longer than usual. When I have some news from a specialist I'll post it for everyone to read.

              Comment


              • #8
                Sexual Dysfunction & TS

                Bob,

                We'll be looking forward to hearing about your visit to a specialist regarding erectile dysfunction. Are you seeing a Urologist?

                The choice to medicate should be made in consultation with your physician on the basis of benefits vs risks and the potential for improvement of your quality of life.

                That being said, if you are afflicted with depression, consider that there are many choices in medication available today that can treat the illness. While it's true anti depressants can affect libido, not all anti depressants affect each person the same way.

                How many different anti depressants have you tried, Bob?

                It sometimes requires trying several different anti depressants and often changing the dosage before finding one that works for you.

                Sometimes after trying several medications, a return to one that previously failed will yield positive results.

                Bob, depression is a treatable illness, and patience is often required before finding just the right medication for you. There is no need to live with the pain of depression.

                Find the treatment that works for you, and once the specter of depression is lifted from your life, you may find that your sexual arousal will return on its own.

                The goal in treating depression is that you experience more good days than bad days. The cycles may continue, but with the right medication, the cycles of bad days decrease in number and in frequency.

                It's worth the effort and your quality of life will improve.

                Stay in contact with us and let us know how we can help.
                Steve
                TouretteLinks Forum

                Comment


                • #9
                  Sexual Dysfunction & TS

                  Guys, just to clarify something, I'm med free in regards to my TS, but I am on meds for my depression. The anti-depressants are working and the cycles I was referring to are my TS cycles, not the depression.

                  Comment


                  • #10
                    Sexual Dysfunction & TS

                    Bob,

                    Thanks for the clarification and it's especially good to know your depression is under control. Tourette tics do tend to wax and wain and at times seem to be more severe.

                    We care about about the members of our online community and we are here to help.

                    Kind regards,
                    Steve
                    TouretteLinks Forum

                    Comment


                    • #11
                      hello, i am a new member......

                      hello everybody, i just registered today and i am happy to be here. i have been browsing the discussions forums. it's so nice to read things and know exactly how someone else feels.

                      my name is michael, and i am turning the big 30 years old tomorrow (4 hours and counting). i have TS and ocd (no sure what else). at the present, my ocd symptoms cause me more distress than my tics do. officially diagnosed at the age of 20, but have had symptons for as long as i can remember.

                      my personal sex drive is good, but i do remember a time about a year ago, where i was off med's for 2 weeks and my sex drive went through the roof! it was unbelievable. one of the med's was indeed an SSRI.

                      i wanted to say hi to all of you and am very interested in the various discussions re: ts and adults.

                      thanks!

                      michael

                      Comment


                      • #12
                        Sexual Dysfunction & TS

                        Hello Michael,

                        Welcome to the TSFC Forum and we're glad you've joined us. Happy birthday on your 30th! :D

                        While SSRI's do affect libido and cause delayed ejaculation in some men, not all compounds affect all people in the same way. That goes for therapeutic effect as well as side effects, so if you find one compound unsatisfactory for either of these two situations, you might discuss with your doctor to try a different compound.

                        The decision to switch or to allow the body to acclimate to the present medication lies with your physician's experience with the drug while weighing benefits vs risks and inconvenience of certain unwanted side effects.

                        All that being said, it would be surprising that libido would peak during a two week period of drug withdrawl.

                        Though not impossible, and might well depend on the particular SSRI you were taking, depending on whether you tapered the medication prior to withdrawl or withdrew suddenly would affect the amount of active compound in your bloodstream due to the metabolic half life of the drug being taken.

                        Some SSRI's have a very long metabolic half life while others are very short requiring tapering the dosage to avoid withdrawl symptoms.

                        What was the reason you were off meds for two weeks, was it to flush out your system before switching to another med? How was the previous med withdrawn...gradually or suddenly?

                        Are you taking an SSRI now and is your libido being adversely affected?

                        This topic is very interesting and we'll be looking forward to your input and perspectives.

                        Hope you make the TSFC Forum part of your regular online activities!
                        Steve
                        TouretteLinks Forum

                        Comment


                        • #13
                          Sexual Dysfunction & TS

                          The SSRIs that I took, Luvox, Effexor, etc., really messed with my, well, you know. <grin> But one of them made it impossible for me to get rid of an erection - no orgasm, just erection. It was kinda spooky, and made my sex life (married at the time) really stressful. My wife of the time complained that she did not get the sense that I was enjoying it. I told her about the symptoms and side affects, and talked to my doctor, but she never got it. Did I mention she was my ex-wife? And for me, internally, it was very weird, because my body was NEVER done. Very strange. Of course, I not= doctor, but I understand these reactions depend on the person.

                          Guys, talk to your doctors often when you have these kinds of reactions to medicine, whether it affects your libido or your 'mechanicals'. It is possible (don't panic - I am saying this as a layperson, have no idea how likely or unlikely this is) that you can damage the testes or the urethra (sp?) or other parts of the 'mechanicals' by overstressing them, as in when you are having trouble performing sexually due to medication. WARNING, bluntness ahead! This is not as complicated as it sounds - in my case, I risked straining myself or rubbing my skin raw because it took a couple of HOURS to have an orgasm, if I was lucky, during the above mentioned scenario. Now I REALLY, REALLY hope my Mom is not reading this stuff. The 'mechanicals' are just not designed to be involved that way for that long on a regular basis, as in over the weeks it takes you to decide that the medication can, pardon the word and the pun, FU** OFF.

                          One last thing on this: for the life of me I can not remember if those medications helped my neurology. Ladies, take our word for it, we are obsessing in a normal, healthy way more about what the medications are doing to our equipment and/or ability to have children in the future, then we were obsessing due to the neurology without the medications.

                          This last part has nothing to do with ED or the bizarro opposite affect, but here is another analogy to re-frame this last part of the irony. I took Wellbutrin, bupropion, and it had a peculiar affect on me, which I have not heard from anyone else personally, but my M.D. confirmed was caused by the medication. The Wellbutrin had a wonderful, positive impact on my attention span and flexibility. I was aware and attentive every single time I had to run to the toilet with diarrhea.
                          Darin M. Bush, The Tourette Tiger, author of "Tiger Trails"
                          http://www.facebook.com/tourettetiger

                          Comment


                          • #14
                            Sexual Dysfunction &amp; TS

                            I've been on SSRI's most of my life. They completely demolish your sex life! But on the upside, you're not trying to kill yourself anymore :P But if you're on anti-depressants, I'd bet a good fortune on that being at least PART of the problem.

                            However, something else you may want to consider is an anxiety disorder. You say you do better whne you're comfortable and relaxed. It's when you're anxious that you have trouble. It's well-known that anxiety can cause ED. Perhaps you have an anxiety disorder as a comorbid condition of the TS? Every time your faced with this sexual situation, you get anxious becuase you know you've failed before. Your anxiety level skyrockets, and you're unable to have an erection as a result. A vicious cycle.

                            I'm no expert, but I wonder if this suggestion would work:

                            Try going to a naturopathic doctor. Explain the problem, including the fact that you're on anti-depressants. There are a lot of natural supplements and foods that can counter depression and anxiety problems. It may be possible that you can use these methods in place of the anti-depressants. Once you're off the medicine, see how much things change with the ED. This may give you a starting place. At least you'll know how much the medicine is contributing. Sometimes the easiest way to find out what's wrong is to find out what ISN'T wrong, ya know?

                            If after trying that you still have some problems, perhaps some counseling would work to help you relax in intimate situations.

                            I douubt if it's the TS itself that is causing it. But it may be a comorbid condition causing it. Or it may be the medicine for depression, which is often related to TS. So it's probably tied in there somewhere, even if it's not the TS itself doing it.

                            Good Luck!

                            Comment


                            • #15
                              Sexual Dysfunction &amp; TS

                              Some SSRI's and an SNRI report lower sexual side effects. It is also reported that Selective Seretonin Reuptake Inhibitors demonstrate a different response in some individuals, so not one works the same for all.

                              Your physician may vary the does, sometimes deceasing as well as increasing to see how it is tolerated or will sometimes switch to an different compound altogether.

                              communication with the physician is very important to report how one tolerates the new med and if changes in does or prescription need to be made.

                              This communication between doctor and patient should be the normal course of events when treatment for this type of disorder is initiated.

                              The patient must be a full partner with the physician in ones health care.
                              Steve
                              TouretteLinks Forum

                              Comment

                              Working...
                              X