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Welcome to the updated and refreshed Tourette Canada Online Forum!

Tourette Canada Online Forum is a free, safe, moderated online community where registered users can exchange ideas, information and support about issues related to Tourette Syndrome. Tourette Canada has recently changed the server and refreshed the pages so returning members will notice a brighter look. Tourette Canada welcomes back two former moderators, Janet Rumsey and Cathy Wylie, to the Forum. Their knowledge and insight will serve the Tourette Forum participants with dedication and expertise.

We would like to thank the administrators and moderators who have dedicated countless hours to build and maintain the Forum. We look forward to continuing to provide a place for individuals and families affected by Tourette Syndrome and its associated disorders to get information, exchange information with others, and connect with the affiliates and support available across Canada.
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  • New here

    Just wanted to introduce myself and hopefully learn as much as I can so that I can help my son. He is almost 10 yrs old and was diagnosed with Tourettes a few months ago. He started to get tics after the first time he was put on Ritalin at the age of 3. It would only be one tic at a time, either blinking or sniffing. We stopped the Ritalin for other reasons a year later and nothing changed. He was put back on Ritalin when he was 9 and that's when the tics became more severe, we stopped the Ritalin, the tics stayed and more behaviors began to show. Originally he was diagnosed with ADHD and ODD at age 3. He now has been diagnosed with ADHD, ODD, Tourettes, OCD and anxiety. He has several different tics now ranging from eye blinking or bulging, sniffing, nose blowing (which is more OCD related), head jerking and a sort of swaying with his head. We think he may have the blurting out as well but because he is ADHD, we aren't sure which is causing it. He is currently on Concerta and Clonidine. We are struggling with the Tourettes and the OCD. It is heartbreaking to see him struggle. He currently has a cold and between the usual nose tics and the obsession with having to have nothing in his nose (blows it constantly even though its not necessary), he is losing sleep and finding it hard to cope. His nose hurts but he can't stop.
    This is all new to us and we want to do the best for him. He is a great kid who loves hockey and plans to be the next Ray Emery.
    Sorry for the story, I am looking forward to getting to know all of you and learn more about Tourettes.

  • #2
    Re: New here

    Welcome to the TSFC Forum, tjsmum!

    We're glad you found us and we'll look forward to discussing your questions and comments.

    Is there any local Tourette support in the area in which you live?

    How is your son dealing with the knowledge of his diagnosis and what about your own family members?

    Sorry for the story
    Never any need for apologizing for sharing your story or questions here. You can feel free to speak with as much detail as you feel comfortable with.
    Steve

    Dum spiro spero....While I breathe, I hope

    Tourette Canada Homepage
    If you enjoy the TC Forum, please consider a Tourette Canada membership
    Please visit our sister Forum: Psychlinks Psychology and Mental Health Support Forum

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    • #3
      Re: New here

      Glad you found us and welcome this is a great place to be for knowledge and support. People here are great with great advice, if you wanted something looked up they would be happy to do it.

      Comment


      • #4
        Re: New here

        Welcome to the forum.

        You will find a lot of great information here. Feel free to browse through past postings. If you can't find what you are looking for please ask questions.

        Everyone here is more than happy to help.

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        • #5
          Re: New here

          Thanks everyone! Jay deals with it like every other dx he has. He doesn't like it but has learned to accept it and do his best. We have never let him feel sorry for himself and never let him treat it as a crutch. He is pretty unaware of most of his tics or at least doesn't say much about it, unless he is in the obsessive mode, which is what we currently are dealing with regarding his nose. We are very fortunate that he is a very outgoing and athletic kid so I think many overlook his tics because of his personality. He is also seems to be able to keep them fairly under control until evening time. To be honest, you'd probably have to get past his two-toned hair to see the tics, lol!
          We are coping as best we can. Supportive and encouraging to him and sad, frustrated and overwhelmed when he is not around. His ADHD and ODD are a walk in the park compared to the Tourettes and he's s pretty severe case of ADHD. His older sister is also very sad and worried about him especially when he is having a bad night. She takes care of him and said that when she grows up she wants to be a person who can help kids like him.
          We live in the Ottawa area so it seems there is a chapter very close by us. I am going to try and go to the next meeting.
          Thanks again for the welcome. I am looking forward to finally being able to talk to people who really do understand what we are going through.

          Comment


          • #6
            Re: New here

            We have never let him feel sorry for himself and never let him treat it as a crutch.
            This is truly the key to helping your son become independent in life while developing the self confidence and self esteem to live his life to the fullest.

            We live in the Ottawa area
            You are correct in that there is a very active Chapter of TSFC in Ottawa, with monthly meetings all winter. In addition there is a summer picnic where your son has the opportunity to meet other kids with Tourette.

            Click HERE for the Affiliates page of TSFC then go to the website of the Ottawa Chapter for more information.
            Steve

            Dum spiro spero....While I breathe, I hope

            Tourette Canada Homepage
            If you enjoy the TC Forum, please consider a Tourette Canada membership
            Please visit our sister Forum: Psychlinks Psychology and Mental Health Support Forum

            Comment


            • #7
              Re: New here

              Welcome the the TSFC forum!

              It is common to tic during the evening more then the day. Sometimes repressing around others and feeling safer at home lets them all out.

              This says something wonderful about you as a parent to know you give Jay safe haven after all the signals bombarding him during the day.

              My son is 13 & has TS+ too.

              I would recommend contacting your local chapter for some support and direction. I am sure you will find this forum a great resource for answers, examples and support. It certainly has made a big difference for us.

              How does Jay feel about his TS?

              The motor tics you describe my son has had. They were much worse during the period of acceptance for him when he was still learning about TS and what made him respond the way he did. Stress & anxiety rises during this process as in my son's case he felt out of control of his body responses.

              You may want to discuss his diet with your physician too. We cut out the processed sugars,(offer dark chocolate, homemade bake goods) caffeine (dark sodas) and increased his fish in-take instead of using fish oil.

              My son's specialist calls me a naturalist, but I am not. Making the changes in my son's case has helped.

              Once my son had a better handle on the TS the motor tics decreased and he was not so concerned about others reactions. This lowered his anxiety about others and himself.

              Self esteem improves and tics just don't seem to matter as much anymore. We have also been through the phrases, corpora, vocal (still has mostly during the evening).
              For my son video games, computer and TV stimulate him and make the tics worse while he is stressed or even just trying to relax.
              Sometimes his vocal tics are loud and he does not even realize he is doing it. We usually ignore them and if someone is trying to sleep I take him off task and suggest we do something else together.

              You mentioned your son had been recovering from a cold. For a lot of kids being sick and have TS+ just makes responses more intense and tolerances lower then normal. In our case the TS gets worse and compulsive behaviors increase. May I suggest you speak to your son's Doctor about what to give him to relieve the cold? In our case I can't use over the counter products as they just push my son over the edge. His Doctor gives him a prescription and his responses are less intense.

              I hope you find the forum helpful and you are able to spend some time reviewing all the sections. The search function is great to find topics you need some help with.

              Look forward to you joining in and take care.
              PJK

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