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    Hi I Am Desperate If Any One Can Offer Some Help Or Direction To Get Help Please Write. My Son Has Tourettes Syndrome& Sensory Disorder And Ocd As The Years Go On He Is Eating Less And Less Foods For Example He Will Only Eat About 6 Different Kinds Of Foods And Even Those Change On A Day To Day Basis One Day He Likes It Another He Would Rather Starve Than Touch It. The Problem Now Is He Barely Eats As Much As My Two Year Old. I Am Worried Sick About Him. He Isnt Gaining Wieght And Doctors Seem To Have No Advice Except Just Get Him To Eat What You Can. But He Wont, He Will Have A Couple Bites Of This And That Not Enough To Be Healthy. I Even Took Him To A Natralpath Who Did Some Testing That Showed He Was Anemic And Difficient In Several Vitamins And Minerals .the Other Problem Is He Wont Take The Vitamins And Minerals Supplements That Could Help His Growth And Nutrition And Because He Barely Eats I Cant Even Hide Them In The Foods. I Need Help. I Called Childrens But There Is A Waiting List. I Just Dont Know What To Do. Has Anyone Had A Similar Issue Or Any Advice I Would Be So Greatful. It Is Sooooo Hard To Want To Help Your Child And Not Be Able To.

  • #2
    Re: not eating


    Welcome to the TSFC Forum. Has your son been seen by a child psychiatrist in connection with his OCD and Sensory Disorder?

    Is it possible his not wanting to eat may not be realted to his Tourette but might be an eating disorder quite distinct from his other diagnoses?

    Having Tourette does not exclude someone from having Anorexia or Bulimia.

    I am in no way suggesting this is the case with your son, but he should be evaluated by a competent mental health specialist.

    How was the diagnosis of Tourette Syndrome arrived at?
    TouretteLinks Forum


    • #3
      Re: not eating

      he is 7 now and was diagnosed with tourettes in march of 2006 he had a severe head throwing tick, eye blinking, screaching,ankle twisting, foot pushing, wrist and lower arm swirling. He has had these eating habits since he was 4 but now they are just so severe it just is getting worse every day. I have thought the same thing that perhaps it is an eating disorder or perhaps part of the sensory issue/ocd. we are seeing a pshyciatrist at childrens mental health but they dont seem to have much help for me except they put him on celexa which isnt helping much except his anxiety. I aways think of an eating disorder to do with someone who wants to lose weight.Have you heard of a young boy with eating disorders or know any symptoms. I used to think perhaps it was his senosry issues / or ocd turning him off food because sometimes he says oh I just cant stand the smell of that (for examlpe pasta) or he will only eat orange colored yogurt and will only drink apple juice just very very particular even down to what fork he eats with and how it is cut.


      • #4
        Re: not eating

        At this point, he likely needs a further evaluation from a health professional that has experience treating pre-teens with eating disorders. A registered dietitian might be a good place to start. If he really wants to be healthy and not just thin, they might be able to help him plan a healthy diet and make sure he is getting enough calories, vitamins, and other nutrients, to be healthy and continue to grow normally

        Although eating disorders are more common in teen girls and young women, males can also develop an eating disorder. The incidence of eating disorders in males also seems to be rising, so it is important to also think about eating disorders in teen boys and young men.

        Have a look at this information document (pdf format) Boys and Eating Disorders

        It should be kept in mind that people with Tourette are just a susceptible to other diagnoses as the general population, so these behaviours should be evaluated by a competent medical professional.
        TouretteLinks Forum


        • #5
          Re: not eating


          I am glad you brought this concern to the forum.

          I have had experience in both not eating enough and in our case reactions to meds that motivate eating disorders to surface.

          In our case the sensory concern is the real problem. Not all children with sensory deficit are effected by all points of our sensory connections to the brain. In our case my son does and texture is a big thing when eating.

          With approval from your physician, there are gummy vitamins that might work if the texture is not an issue. They taste like candy and are easy to chew. In the mean time ask your physician if your son can be considered for some OT & sensory assistance. Both help teach us to manage and expand our perceptions of what we should or should not do.

          Also, for example I used to weight my son back wards on the scale every two weeks at the same time. Back wards so he could not see.
          I kept a flow chart and found foods high in carbs and some proteins. Unfortunately in our case when they don't eat enough too much protein can upset the stomach and make them want to avoid eating.

          Activity can increase appetite too like riding a bike or playing catch. Try finding foods he likes and stock up and see where the chart takes you.

          In our case it worried me since my son was so under weight but found as he grew he kept the same weight or would go back to that weight each time as he became taller. This lasted for about a year.

          Try asking your physician for someone to talk too about your concerns. Steve is right by saying your son may need to be assessed again or you may need confirmation he medication is not involved with his concerns.

          The motor tics (neck jerking) you describe my own son has experienced but in his case under great stress or anxiety. They returned this year after changing schools again and once balanced went away. They can be very painful and usually depress him as they are impossible to hide.

          Does your son understand what TS is and why he has it? Not understanding can really add to the anxiety early in our learning stages.

          Your son may be experiencing triggers you are not aware of. Keep a journal.

          Most Community Mental Health locations have sensory, anxiety and OT therapies and are able to provide assessments. If you feel you are slipping through the cracks try approaching them for some assistance.

          Please keep us posted on your findings and keep a journal. It is the best tool to communicate your concerns and life.

          Take care


          • #6
            Re: not eating

            Hi Mom3

            We too have dealt with this issue. In our case it is an OCD problem. Namebrands, the way foods look, they way they are prepared, the ingredients, color, texture all play a part.

            We have found that eating by candelight helps, that way he can not see the food as clearly. For example he will not eat chicken unless it is Lilydale and is all the same color once cooked. Have you ever seen a piece of chicken that was totally consistent in color once cooked? Candlelight helps make the chicken all the same color. ;)

            We also need to use medication in our case. Without medication he is unable to eat anything at all.

            It is always difficult to know when something is TS related or completely unrelated. I always try to keep that in mind when things like stomach aches (which is a common anxiety symptom for my son) come up. I am concerned sometimes that I will miss something important going on with my son's health by blaming everything on TS so we sometimes end up at the doctor's or dentist for no "real" reason.

            As the others have indicated it is always a good idea to rule out other medical conditions.


            • #7
              Re: not eating

              hi there thankyou for the feedback I have spoke with the dr an d they think it is his ocd causing these eating problems he is experiencing the medication they have given him celexa is not working may I ask what your son takes as you mentioned it helped his ocd eating.


              • #8
                Re: not eating

                We had problems last year with our then almost 6 yr old not wanting to eat- particularly at breakfast. At this time he was also diagnosed with OCD because of numerous compulsions, intrusive thoughts, and anxieties that were occuring. We were lucky to to get in to see some doctors and a psychologist who told our son about the importance of eating. We agreed that he would eat a "special shake" for breakfast. Hearing it from the doctors, and the novelty of this helped him at least try it. So, we introduced protein shakes at breakfast and also changed lots of the usual routine- we brought food and drink up to his room to eat while getting ready for school, and if he ate in the kitchen, he ate at a different location than usual. I don't know if any of this will work for your son, but the changes did help our son get back on track . Good luck, I know how painful it is.


                • #9
                  Re: not eating

                  HI Mom3!

                  I am so sorry for not replying earlier regarding your medication question. I did not see your post until today when cindy revived the thread with her posting.

                  My son takes Luvox and Anafranil. Luvox is a newer OCD drug and Anafranil is much older. My son was unable to take Luvox at a high enough dose as he had the side effect of aggression so Anafranil is used as sort of a booster. In general Anafranil has more side effects than newer drugs which is why we do not use it alone.

                  Everyone responds to medication differently though which is why it is so important to find a good doctor with experience treating TS.

                  Please update us on how you are making out with this.