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    HI MY NAME IS VALERIE & AM NEW TO THE FORUM! WE HAVE 3 CHILDREN OUR OLDEST SON WAS DX LAST YEAR WITH ADHD,ANXIETY,LD-NOS,ODD & JUST ABOUT A MONTH AGO WAS DX WITH TOURETTE'S+. WE DON'T KNOW MUCH ABOUT TOURETTE'S BUT TRYING TO FIND ALL THE INFORMATION WE CAN ( THIS FORUM IS AMAZING!!) WE ONLY KNOW A FEW OF HIS TIC'S HE SNIFF'S, MAKE'S FUNNY NOISES SOMETIMES,ONE TIME HE BIT HIMSELF ON THE ARM AT SCHOOL AND LEFT TEETH MARKS I COULD SEE AFTER SCHOOL. I JUST WANTED TO KNOW IF ANYONE OUT THERE KNOWS IF HITTING OTHERS COULD BE A TIC (HE ONLY HURTS HIS BROTHER & SISTER) BUT IT SEEMS TO BE ALL THE TIME THAT HE HAS TO BE EITHER HITTING,PINCHING OR PUSHING HIS FINGERS INTO THEM, IT'S LIKE HE DOESN'T EVEN KNOW HE'S DOING IT SOMETIMES! HE ALSO SUFFERS FROM RAGE ATTACTS THEY APPEAR TO COME FROM KNOW WHERE I ACTUALLY FEAR FOR MY OTHER TWO CHILDREN SOMETIMES BECAUSE HE JUST LOSES IT,HE HAS THREATENED TO CUT HIS SISTER UP WITH A KNIFE BEFORE. BUT THEN AS QUICK AS IT COMES IT LEAVES & HE IS LIKE WHAT'S THE MATTER? I REALLY BELIEVE THAT HE TOTALLY IS OUT OF IT WHEN THE RAGE ATTACTS COME!!!! WE HAVE A NEW PED. WHO DX HIM HE IS A REALLY NICE GUY! HE HAS PUT BRAYTON ON WELLBRUTRON? NOT SURE HOW IT SPELLED BUT IT'S NOT WORKING SO HE WILL BE TRYING SEAROQUIL NEXT. HE ALSO SEEMS TO HAVE SCHOOL AVOIDENCE I'M NOT SURE IF IT IS HIS ANXIETY OR TOURETTE'S THAT CAUSES HIM TROUBLE, HE SAY'S THAT HE DOESN'T HAVE ANY FRIENDS TO PLAY WITH SO WALKS AROUND ALL RECESS & LUNCH BY HIMSELF (IT HURTS SO BAD AS HIS MOTHER TO THINK THAT HE IS SOOO ALONE!!) HE WON'T TALK TO MY ABOUT HIS FEELINGS AT ALL, HE ALSO WON'T LET ME TOUCH HIM (WHICH WE'RE NOT SURE IF IT'S HIS SID) AGAIN SO SAD AS HIS MOM NOT TO BE ABLE TO CONSOLE HIM WHEN HE'S UPSET OR HURT, HE WILL ACTUALLY HIT ME IF I TRY TO HUG HIM IF HE'S UPSET! SORRY TO DRAG ON LIKE THIS BUT I HAVE SO MANY QUESTIONS, THANK YOU ALL FOR LISTENING,ANY SUGGESTIONS WOULD BE GREATLY APPRECIATED!!
    VALERIE

  • #2
    Re: New To The Forum

    Hello Valerie,

    Welcome to the Forum! Glad you have found the Forum and we'll be pleased to discuss all your questions and concerns.

    Feel free to look through the various Forum sections and post a reply or querry on any existing discussion or start one of your own.

    It would help if you would use lowercase when posting on the Forum, because UPPER CASE is surprisingly more difficult to read, and is considered as cyber shouting.

    Looking forward to your participation on the Forum.
    Last edited by Steve; January 27, 2007, 02:39 PM. Reason: spell
    Steve
    TouretteLinks Forum

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    • #3
      Re: New To The Forum

      Sorry Steve i didn't realize that !

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      • #4
        Re: New To The Forum

        No problem, Valerie! Online work is a continual learning process that never ends :eek: ;)

        Glad to have you aboard
        Steve
        TouretteLinks Forum

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        • #5
          Re: New To The Forum

          Hi Valerie

          Welcome to the forum. I am sure you will find it helpful.

          The rage attacks are very difficult for the family to deal with and scary. My son who is 12 now used to have rage attacks quite often. He rarely does now.

          In our case we had a long conversation with him (in a calm moment) about his rage and how it affected everyone. We let him know that we would not speak to him when he was in that state and he needed to remove himself to his room and calm down before we would discuss what had upset him.

          We also identified together what helps him to calm down. In his case it was listening to music. We further advised him that he would be responsible for anything he broke while in a rage.

          We never let a rage stop us from giving consequences when they are warranted. Rages were often triggered when he did not like a consequence we were giving him. If he needs consequences we give them AFTER the rage is over. He readily accepts consequences and understands why he needs them after the storm. We did not consequence for the actual rage though other than the natural consequence of needing to replace anything he broke and having him do something nice for us if he had been disrespectful.

          Another thing we discussed with him is cueing him when we know a rage is imminent. They key here is catching him BEFORE the rage begins. We found once it started there was nothing we could do to stop it. We agreed together that we would cue him to remove himself to calm down with a code word he chose.

          Unless he is at risk of harming himself or others we do not interfere with a rage. We let it play out. If he won't remove himself we remove ourselves.

          He has on one occaision picked up a knife. We know keep all knives out of his reach as we know that he will impulsively grab whatever is in reach while in a rage. He knows where they are and could if he wanted to climb on the counter to get them but he has never done that.

          We made it very clear that if his behaviour continued to be dangerous to himself or others we would have no choice but to remove him from the home for treatment. That seemed to be the turning point for him. He has not had a serious rage in a couple of years now.

          Cognitive Behaviour Therapy has helped us and him with all kinds of issues including rage. Your doctor should be able to point you to a therapist if you want to try that.

          There is also medication that you can try and again your doctor can help you with that. You need to weigh the pros and cons with your doctor. It is a very personal decision.

          In our case we used risperadal for a few years until the side effects became too much (weight gain). Sometimes medication will help the child get through a difficult time until he learns how to deal with his rage through therapy.

          The combination of medication and therapy worked well for us and our son no longer takes medication for rage.

          Hope this helps.

          Comment


          • #6
            Re: New To The Forum

            Hi Patty thank you for writting me back, I am going to look into the behaviour therapy. I have tryied to talk to him after these storms but he will not talk about it or even that it happened. i am wondering if anyone knows can hitting be a tic?, he hits all the time even when he's not angry. His school sofar is very supporting but i cant help but worry about him at recess & lunch walking around alone ( he has asked the on-duty lunch teachers for bathroom passes but they wont give them to him i personally think he needs this time to have away out of dealing with being alone. if anyone has any suggestions it would be great to hear. thank you all for listening! valerie

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            • #7
              Re: New To The Forum

              Hi Valerie,

              I am new here too. Have you asked his teachers as to whether he has any friends or not? My son used to say the same thing all the time and I felt just like you did, but it turns out according to the teachers he did have friends. If something didn't go well that day though, he would say that.

              Jays' (my son) teachers are aware of his Tourettes and they have an agreement that if he gets fidgety or talkative he is allowed to leave the classroom to move around for a break. Originally we all thought it was the ADHD, but realized after getting him on the right meds for that and it was still happening, that it was the Tourettes. It seems to help and he is actually starting to become aware himself when it starts to happen.

              He used to have rages too and could never remember what happened during them. I don't miss those days of flying chairs, safety gates....

              How old is your son?

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              • #8
                Re: New To The Forum

                hi tj'smum
                our son is 8 years old. Not a happy boy, I can only hope that with the new med's we are trying that he can actually be happy sometimes. it's so hard to be around him he is very negitive, arguementative,literal. I'm sorry to say all this, it doesnt sound very good a mother talking about her son that way but it has been a very difficult year with him.
                anyway if anyone out there has any ideas on how i can help our son with his low self-esteem & turn his negitives into postitives it would be greatly apprieciated thank you all valerie

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                • #9
                  Re: New To The Forum

                  Welcome to the tsfc forums.

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                  • #10
                    Re: New To The Forum

                    Valerie,

                    if anyone out there has any ideas on how i can help our son with his low self-esteem & turn his negitives into postitives it would be greatly apprieciated
                    Is it possible that well meaning family members, friends or teachers may have reprimanded your son for his tics and his Tourette associated behaviours?

                    At eight years old, he may not fully understand the involuntary nature of his Tourette, and the well meaning reprimands or requests to "stop the bad habits" may certainly have a damaging effect on his self esteem.

                    You may wish to consult a child psychologist for some effective strategies to reinforce his positive behaviours to build up his self confidence.

                    You may also want to rehearse some explanations about Tourette using role playing with your son. If he is equipped with a prepared explanation of his Tourette and the involuntary nature of his disorder, he will be better prepared to face people who challenge him in his daily life.

                    Does he have an understanding teacher at school?
                    Steve
                    TouretteLinks Forum

                    Comment


                    • #11
                      Re: New To The Forum

                      Thank you for writting back steve!

                      He has a very supportive teacher at school, the only time that he gets negative feedback from us is when he is hurting his siblings or if he is controlling the things that they are doing, which is most of the time!

                      steve do you know if hitting his siblings could be a tic? He always touching them whether it is hitting, pinching pushing his fingers into them. He also controlls what they are aloud to do,be it movies (that he will allow them to watch) if his younger brother is aloud into his room (witch is his brothers room too.)

                      We just dont know how to talk to him about his ways, he just gets really angry with us.

                      Thank again for listening everyone
                      valerie

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                      • #12
                        Re: New To The Forum

                        Your son is fortunate to have a supportive teacher. Do you know if your school system has ever had in service training in Tourette?

                        do you know if hitting his siblings could be a tic?
                        I would like to ask the opinions of some of our colleagues on this question.

                        My initial thought would be that actual hitting may not be Tourette related, but touching might be a compulsion associated with Tourette Plus.

                        Does your son have a physician with Tourette experience you can consult?
                        Steve
                        TouretteLinks Forum

                        Comment


                        • #13
                          Re: New To The Forum

                          Is your son involved in any extra-curricular activities? Jay is in hockey and it has done wonders for him. He feels important and because he's part of a team, there are many opportunities to make friends. Maybe scouts if he's not athletic or a group? It's finding something that they are good at or something that makes them feel good and important.
                          Jay has that control issue to an extent. We have spent many years working on that. It's not easy, constant reminding and letting others be in control. Drives him nuts sometimes but we always praise him when he handles it relatively well. At this point, we are praising him for not blowing his nose every 5 secs! Baby steps and not making the goals to difficult ;)
                          What meds are you starting for him?

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                          • #14
                            Re: New To The Forum

                            Hi tj'smum
                            Right now brayton is not envolved in any sports we tried t-ball 2 years ago & it didnt go very well he counld pay attention long enough to hear the directions so after he hit the ball his coach would pick him up & run him around the bases.

                            He is going to try go-kart racing this spring we have the kart, racing suit helmet & all the other good stuff that goes with it. But now he is not wanted to do it ( he seems to do this with everything he gets excited but then when the time comes he doesn't want too.Hopefully this wont happen with the kart, but we let him know that it is up to him, if he doesnt want to do it he doesnt have to.

                            The doctor tried wellbrutron? (it didnt work) so now he is starting seroquil hopefully this will work (even just alittle bit would be nice)

                            Is your son social? I can count on one hand how many friends bray's had (1 of them was his friend for 3 years) it was kind of cute he (the other boy) was just like a mum he would dress him to go outside,he would sit with his arms around bray & read him books.we really miss him but unfortunatly we had to move from our small town (of 300) to toronto for my husbands work.

                            surprizingly he has ajusted very well.

                            I will for sure try to look at the baby steps instead of everything changing over night.

                            hope to talk to you all soon
                            valerie

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                            • #15
                              Re: New To The Forum

                              Valerie,

                              I can't say that Jay is social. He doesn't have many close friends...I'm not sure he's capable of that just yet, but he does have kids he plays with. I run a daycare so I think it has helped him in learning how to play and deal with kids, especially when they all have different personalities. He gets along pretty well with others, but does try to control the situation.
                              We have a rule in our house that they must be in one sport. I don't care what, but they have to have something and they must give it a certain amount of time so that they learn that they have to stick with their choices.
                              Do you think maybe your son might be overwhelmed with starting something? Maybe start by taking him to see it, then another time try it out with others, ect.
                              I know we have struggled in the past with his self-esteem. I have found that having good teachers (we finally won that this year!) and having something that he feels he's good at (his hockey) has done wonders. Believe it or not, he have more self-confidence than his sister does and she has no dx's!

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