Announcement

Collapse
No announcement yet.

Newbie!

Collapse
X
  • Filter
  • Time
  • Show
Clear All
new posts

  • Newbie!

    Hi, my name is Amy. I'm 20 years old, and I am a criminal justice student in university.

    I was diagnosed with Tourettes on November 30, 2006. I'd been suffering from the tics since I was sixteen. I blink a lot and I often bend my head to the side. I also need to slap my hand against something from time to time. My vocal tic is a noise I make in my throat, that sounds almost like a growl. They started when I was sixteen and got progressively worse. My university arranged for me to see a neurologist, who diagnosed me, and since then my school has been great in providing me with the tools that I need to succeed academically.

    I live in Ontario, Canada. Anyone else here from the great, wide North?
    In God We Trust
    Justice For All

  • #2
    Re: Newbie!

    Welcome Amy!

    I am so glad you are here! How lucky you are to have such a supportive school!

    What kind of "tools" does the University supply to you? There are several University students here who I am sure would benefit from hearing more about how TS is affecting your studies and how you are coping with that.

    I am really looking forward to your contributions!

    Comment


    • #3
      Re: Newbie!

      Some stuff that my university has provided for me have been mostly aimed at helping me with my attention problems, which is due not only to my Tourettes but also to ADHD. I was given a QuickPad so that I can type my notes in class instead of having to handwrite them (a QuickPad is smaller and much more mobile than a laptop). They also gave me some programs for my computer, including Kurzweil 3000, which reads my textbooks to me, and Inspiration, which I can use for brainstorming my term papers. I've also been signed up for my school's disability forum, which allows other students with disabilities to contact each other, access support groups, look in to tutoring options, and contact disability staff if they have questions or need help.

      The biggest advantage they've given me though is access to distraction-reduced rooms to write my tests and exams. I'm even given access to a laptop for most of my exams. They also give me a one-third extra time on all of my tests (i.e. I'm given 4 hours to write a 3 hour exam, or 2 hours to write a 1 1/2 hour exam). And if I need to take a break during my tests, it's fine. They don't deduct the time I need for a break from my writing time. My average has gone up 5% from when I was in high school, and I think it's going to improve more as I get more comfortable with these new tools.

      So, that's why Nipissing U rocks!
      In God We Trust
      Justice For All

      Comment


      • #4
        Re: Newbie!

        Welcome

        Great to hear that you are getting the accommodations you need to succeed at post-secondary level. My oldest with TS also has a written output disorder and we just downloaded Inspiration yesterday, he has not yet used it.

        Hopefully we will hear more of your experiences. Thanks for joining in.
        Janet

        TSFC Homepage

        Comment


        • #5
          Re: Newbie!

          Janet,

          I believe your child is going to enjoy Inspiration and really get a lot of use out of it, especially if he/she is a visual learner. I'm really enjoying my Inspiration program. It's made writing essays a lot easier for me. :Big Grin:
          In God We Trust
          Justice For All

          Comment


          • #6
            Re: Newbie!

            Amy, now that you have had some time to use your new tools do you think that it would have been helpful to you to have these in Jr High and High School or do you think that it was better to learn the basics without that kind of support?

            Janet - how is your son liking inspiration? And I am going to pose the same question to you that I asked of Amy above.

            I am going over my son's IPP as we speak and was wondering if I sould ask them to start using some of these supports yet or not. He is in grade 8.

            Comment


            • #7
              Re: Newbie!

              mom2TSguy,

              Well, one of the things I'm most proud of is that I did make it on my own merit all the way into my first year of university without any kind of support whatsoever.

              I'm not entirely sure I would have been comfortable accepting help from my high school simply because my particular school's response to anyone with a disability was to stick them in the special education program. Psychological assessments have revealed that I have superior intelligence and do not belong in a special ed. classroom setting.

              However, having the special tools that I now have at my disposal probably would have benefitted me in high school and lessened the stress I felt in my last two years before coming to university.

              Since your son is going into high school soon, I'd suggest contacting the school and asking them what they can do for your child. Then you can decide with your son whether or not the school's services would be beneficial to his education. Take your son's intelligence, abilities, and potential into consideration as you make your decision.

              Today is the anniversary of my diagnosis! It was tough getting here, but I think it's going to be a bit easier from now on. ;)
              Last edited by Amy Kate; November 30, 2007, 09:16 PM.
              In God We Trust
              Justice For All

              Comment


              • #8
                Re: Newbie!

                wow... your symptoms are so trivial and it started at 16???

                You must be the luckiest person in the world.

                I am now sitting home unable to go to school or get a job, i tried multiple times to attend post secondary school but i developed this new evolved tourettes i can't really explain in words... Life's great isn't it when you can go to school?

                im 19 btw, and i prob need serious help.

                Comment


                • #9
                  Re: Newbie!

                  Hi there

                  TS is not trivial if it has a negative impact on your quality of life regardless of how complex the symptoms are or the age of onset. We often hear that those diagnosed are above average intelligence and that it is the symptoms of the disorder that cause learning difficulties. If you want to change things you need to partner with people around you and get the help you need.

                  My partnerships led me to the information about this software that OI knew nothing about before. I downloaded inspiration and my son has not used it yet except for a family tree assignment. I have been trying to play with it first. Amy like you my son is very intelligent and we were told he is gifted probably in the top 3-5 % of his peer group. This does not help when he can't get his thoughts organized on paper. When he was younger his written output problems presented as he was assessed through occupational therapy and it was recommended he use assisted technology then and he did, from grade 4-7 and in grade 8 and 9 he didn't feel he needed it because of the types of testing and written work that was assigned in his school. I knew this would be an issue once he went to high school so this is why I needed the assessment because I needed to know that he was or wasn't at his full potential... and it proved he is not doing his best work because he needs the assisted technology.

                  mom2TSguy if you think your son would produce more qualitative or effective work then you should explore this. One of the pieces of my son's assessment was having him produce a response by hand, then another was evaluated when he responded verbally bit the best answer was when he could type the answer. Keep in mind when you type you don't get stuck on how things look, the spelling concerns, the duration ability of your arm keeping up with your need to write and when answering verbally you can't go back and review what you said already and often cause rambling or getting off track etc... does that make sense? talk about rambling LOL.
                  Janet

                  TSFC Homepage

                  Comment


                  • #10
                    Re: Newbie!

                    tmtitan911 - My onset was unusually late, but my doctors believe that I may have been exhibiting symptoms since adolescence that simply weren't obvious (i.e. blinking, attention problems, etc.). They became more pronounced when I was sixteen, probably because of the stress I was feeling in school as I was striving for the highest grades possible in order to get into my university of choice and qualify for scholarships. My tics aren't so bad now because I've found a medication that works for me (Clonidine) and I've also been trying stress-management techniques. I find that learning to manage my stress as really helped to reduce my tics as Tourettes is usually stress-induced. If your tics are really so bad that you can't work or go to school, I would recommend that you see your doctor/neurologist/psychiatrist... That's a serious issue that should be addressed.

                    I wouldn't consider myself the luckiest person in the world, though. Lucky would be not having Tourettes at all, lol! ;)

                    Janet - Inspiration will be great for your son if he has trouble organizing his thoughts. It'll be especially beneficial if he's a visual learner. I have a lot of problems organizing my thoughts as well (a psych analysis found my general intelligence to be in the 96th percentile for my age group, but my working memory is signifcantly lower than this). Inspiration is really great because you can just write stuff down as it comes to you and eventually you can bring it all together into a full report.
                    In God We Trust
                    Justice For All

                    Comment


                    • #11
                      Re: Newbie!

                      I've seen specialist, neurologists, psychiatrists..... tried many many medication, nothing has worked. It just made things worse. i kinda gave up on medical help now, I developed some kind of newly evolved tourettes I have not had before, its not just tics anymore, i can't describe it in words, its something that you have to experience to know what im talking about.

                      I used to go to college like you, until one day **** just happened lol. I thought my tourettes were bad before, and now its killed off all my career goals, chance of going back to college.

                      People always tell me, there are other people with tourettes and a lot of them are successful, it depends on the severity and type of tourettes they have. I don't know what I can do for a living with my current condition..... Any ideas?

                      Comment


                      • #12
                        Re: Newbie!

                        tmtitan911,

                        I'd suggest looking into some stress management techniques and see if it makes a difference. It might surprise you how much these techniques can help. Here's some websites you can look into:

                        http://www.mindtools.com/smpage.html

                        http://www.ivf.com/stress.html

                        http://www.bchealthguide.org/kbase/t...rlxsk/sec1.htm

                        http://en.wikipedia.org/wiki/Stress_management

                        http://stress.about.com/

                        http://www.optimalhealthconcepts.com/Stress

                        And if you need someone to talk to, I'm always here for you. We're all in this together
                        In God We Trust
                        Justice For All

                        Comment


                        • #13
                          Re: Newbie!

                          Welcome! Glad you got some answers from your diagnosis. Criminal justice sounds very challenging but rewarding at the same time

                          I've been diagnosed wince I was 8 but had tics since I was 4...I had almost every tic, except vulgar language and inappropriate words. I had mostly physical tics in my childhood, almost everything on the list for fine and gross motor tics, and then as I got older those balanced out with vocal tics, again almost everything on the list, and now it's mostly vocal with a total of a handful of tics compared to what I used to have. I had special help in High School and College, though in College I found I didn't need the support as much. Had the low-stress rooms for exams and such. It really did help.

                          I've been on Clonidine for the majority of my life after being diagnosed wth TS.

                          I'm from Ontario as well The north is fun, excpet for the cold. I don't like cold.

                          tmtitan, there's always the option of taking courses online. What kind of career are you thinking of?

                          Thanks for your input and hope we can help you out.
                          Marisa

                          Comment


                          • #14
                            Re: Newbie!

                            I was already thinking of it and was planning to take online courses until my symptoms get better. But my mom advises me not to as same thing happened when i wanted to be police officer and started taking courses in college..... my tourettes were very mild before entrance and half way through it was so severe i couldnt attend school in class. Her argument is that what if it gets even worse than now, i would waste more time and money taking online courses so she is suggesting trades. I have been to 5 highschools all in different area of north america and it screwed up my chances of getting into canadian "universities".

                            I have so much stress in my life.... i lost friends so many times and they are so far apart i cant even see them, my parents don't understand what tourettes does to me and expects me to do what normal person would be able to do.

                            My daily life right now is just sitting home 24/7 for past 7 months.

                            Comment

                            Working...
                            X