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TSFC Trek for Tourette 2013

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  • TSFC Trek for Tourette 2013

    Trek for Tourette celebrates 5th anniversary, keeps on growing
    Canada NewsWire
    MISSISSAUGA, ON, March 18, 2013

    It's one of Canada's largest national charity events without a major sponsor, and it shows no signs of slowing. The 5th Annual Trek for Tourette will be held in over 20 Canadian communities from Vancouver, British Columbia to St. John's, Newfoundland Labrador on Sunday, March 24 th, 2013, including Toronto at Evergreen Brick Works. Tourette Syndrome (TS) is a poorly understood, heavily stigmatized neurological disorder that affects as many as one in 100 Canadian children and adults. It currently has no cure.

    Last year, the Trek raised $147,000 for the TS cause. This year it is expected to raise even more.

    Read the full release: Tourette Syndrome Foundation of Canada: Media Room

    About the TSFC—Established in 1976, the TSFC is the only federally registered, charitable organization of volunteers assisting individuals affected by TS and its associated disorders through programs of education, advocacy, self-help and the promotion of research.
    TouretteLinks Forum

  • #2
    Re: TSFC Trek for Tourette 2013

    Make the Trek for Tourette
    March 21, 2013

    Make the Trek for Tourette. Emily Harrett, left, and her family — (clockwise from top) parents Bill and Tracy and sister Abigail — will be participating in the Trek for Tourette this weekend in St. Catharines, Ontario.

    Fundraising walk Sunday in Port Dalhousie, Ontario
    It was an unnerving situation when Bill and Tracy Harrett set out to diagnose what was happening with their daughter four years ago.

    As they prepared to move from Kingston to St. Catharines, the couple noticed some interesting actions Emily was displaying. There was constant blinking of the eyes, clearing of her throat and scrunching her nose. When they looked into it with physicians, what came back was even more confusing — a mixed response of everything from, Emily needed to undergo a battery of tests, to one physician’s suggestion that it was just a habit and she could stop it at her own will.

    Not satisfied, however, Tracy continued to research and finally upon doing some reading on the Internet, came across the symptoms of Tourette Syndrome, a neurological disorder characterized by repetitive, involuntary and sudden movements and vocalizations called tics.

    “We went to our doctor and he said we were on to something,” Tracy recalls.

    Emily, 12, has been officially diagnosed with Tourette Syndrome, albeit a very mild case of it. While at one time it was an additional stress in her day-to-day life, she’s your typical Grade 6 student, enjoying life to the fullest.

    “Sometimes I don’t even know I’m doing it,” said Emily, noting it’s often others — friends or her parents, for example — who notice the tics.

    Emily said she’s never had a problem over the years in school, but unfortunately some children face issues over the stigma and myths that are attached to Tourette Syndrome. While some symptoms include uncontrollable grunting, swearing and shouting, those types of tics aren’t the only indicators of Tourette Syndrome. Sadly, Tracy acknowledges, that’s the stigma attached to the disorder. There is poor understand about the neurological disorder, which begins in childhood and has no cure, yet it affects 1 in 100 Canadians.

    That’s where the Tourette Syndrome Foundation of Canada comes into play. With local chapters such as the Hamilton Halton Niagara Tourette Syndrome Foundation of Canada chapter, the organization assists individuals affected by Tourette Syndrome with a variety of support programs and services, aiming to educate the public and ensure those who have the disorder can be accepted and enjoy quality lives.

    Tracy’s experiences have led her to get involved directly in the chapter as a volunteer. She said the Foundation was fantastic in bringing a speaker to Emily’s school to explain to students about the disorder and raise awareness and address any questions.

    “I found I was more comfortable in school,” said Emily of the experience.

    The local chapter, which is headed by a West Lincoln resident Lisa Kaplaniak as president, is an opportunity to exchange discussion and support families from across Niagara and beyond. It’s also another way to raise further awareness. Bill said they recently set up shop in the Pen Centre with a booth and information, and it was a real eye-opener.

    “There still isn’t a lot of awareness out there,” he said. “We had people who didn’t know about the group and how it can provide support.”

    Lisa said the local chapter has a regular newsletter that goes out to families for communication purposes, and they provide support groups, develop youth workshops and programming, and much more.

    An annual fundraising event will take place this weekend in St. Catharines to support the local chapter and Canadian foundation. For the first time, the Trek for Tourette will take place in Niagara region, happening Sunday, March 24 in Port Dalhousie. The fifth annual walk, it’s a chance for participants to wear green and trek together to increase Tourette Syndrome awareness, and also raise funds through pledges. Team Emily will have a large representation this year, with friends and family walking alongside her.

    The five-kilometre walk begins at 2 p.m. at the Port Dalhousie Lions Club, 201 Main St. in St. Catharines, with a sign-in and registration taking place at 1 p.m. Pre-registration also takes place online at Tourette Syndrome Foundation of Canada.

    Residents are encouraged to participate in the walk, or they can visit the website and support a participant or team such as Team Emily.
    TouretteLinks Forum