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Thread: I am not sure if this is TS

  1. #1

    Default I am not sure if this is TS

    Hi, Iam a 27 yr old mother of 2 children . My son is 7 years old and in the last couple months I have noticed my son blinking quite alot,but its just not blinking its the muscles around the eyes hes pushing them closed.(if you get what I mean.) I am allergic to pollen so this is what I have thought it was this whole time.

    I have asked him if his eyes are itchy ,he says" NO". I asked him if his eyes feel dry or sandy felling ,he says "NO". He says "They just feel heavy ,I just do it."

    So I am pretty worried right know. I am going to bring him to the doctors this week. I have a couple questions though:

    1. How long does it take the doctor to diagnos Ts?

    2. Do they analyis the person for awhile?

    Well I just needed to vent alittle if you have answers to my questions please reply .Thank you so much for your time.

  2. #2
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    Default Iam not sure if this is Ts

    Hi Bootech

    Welcome to our forum. I understand your concern and I think it is great that you posted your questions here. You were totally on track by asking your son so many questions to try to get to the root cause of his eye blinking/twitching.


    1. How long does it take the doctor to diagnos Ts?
    2. Do they analyis the person for awhile?
    There are no tests or blood work to diagnose TS. Many tests that doctors do are to eliminate another diagnosis. It can be a long process to get a final diagnosis because it is a syndrome and there are not a lot of doctors who are not totally familiar with all the aspects of this disorder. TS is a syndrome because it presents so differently in everyone. For that reason doctors do a lot of exploring to get to a diagnosis. There has to be a history of behaviors for TS to be diagnosed. TS is genetic and tics (both motor ie. movements and at least 1 vocal i.e sound) have to be present for at least a year, doctors don't jump into a diagnosis.

    Has your son demonstrated any other tic like behaviors, for example:
    Eye blinking is a common motor tic with TS; but other common tics are facial movement, movements of limbs, nose twitching, head twitches, to name only a few. Some simple vocal tics are clearing your throat, sighing, clucking, humming, sniffing(which often gets explained away with allergies), again to list only a few?

    Do you have anyone in your family or in his dad's family who has TS? What made you think TS?

    To prepare yourself before going to the doctor this week read some of the articles posted on the TSFC site and take a few minutes to journal any other concerns you might have. If you think TS and you suggest that to your doctor it may trigger him or her to start asking you more questions and that is when your journal will come in handy.

    Your little guy may just have an eye issue but don't be fearful if you are dealing with TS... There are so many resources available. TS is a social disorder but it is not life threatening. There are so many various degrees of TS too. Some people have very simple tics and go through life quite easily, while others have more complex tics and present with more severe symptoms... and many more people are somewhere in between the two extremes.

    Many children are diagnosed between the ages of 6-9years because that is quite often when the tics start to present.

    Stay connected with us and you will find that you will get lots of replies from all the great members we have on this forum. Everyone will openly share their experiences, suggestion and ideas. Keep us posted with how your appointment goes.

    looking forward to your participation going forward
    Janet, mom of 4

    TSFC Homepage


    "Intelligence is always increasing; accommodation allows your intelligence to do what it has always done." Cassie Green, Washington College

  3. #3
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    Default Iam not sure if this is Ts

    Hi Bootech

    I also suggest you check with your son's teacher and ask if he/she has noticed any tics, such as the eye blinking, during the school year.

    Because TS is diagnosed from observation, doctors will often ask for both the parents and teachers to fill in a observation sheet. Since it is so close to the end of the school year you may want to catch the teacher while you can, and get her/his observations to include in the information you provide to the doctor.

    As Janet says, the symptoms have to be present for at least a year (at least one vocal and one movement tic), so you may find that your doctor will require more observation before a diagnosis can be made. Also, it is possible that this is a transitory tic and it will resolve on its own.

    Let us know how things go.
    Cathy
    Forum Moderator
    TSFC Homepage

  4. #4
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    Default Iam not sure if this is Ts

    Bootech,

    Welcome to the TS Forum...feel free to ask all your questions here.

    When you are ready check out the TSFC affiliated Chapters or Contact Representatives in your area who can point you to local resources. CLICK HERE for the list of TSFC Affiliates.

    For additional reading on TS, have a look at the articles on TS HERE

  5. #5
    Join Date
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    Default Iam not sure if this is Ts

    Janet nailed it pretty well. I have OCD, so I have to comment. Ha ha.

    The doctor does not have to personally see tics for a year. That is not what the book means. The doctor has to find history of tics for a solid year. This is really just to keep away from TS if the child in fact has something pretty normal, called "transient tic of childhood". It lasts months, not years, and has nothing to do with TS that I know of.

    Also, there are 100 other things that cause tics. The best / worst example is the one I use in my lectures. Moms, please do not read anything into this - it is just an example, not Tourette's specific. The doctor should NOT diagnose Tourette's during heroin withdrawl.

    I second the motion on asking the teachers. All of them. If he started school at age 5 or so, go back and talk to past teachers, too. It can not hurt.

    About the eyes: trust your son, and trust your instincts. He describes his eye symptoms pretty well to my mind. Sounds like he has a 'feeling' in his eyes that he can not describe. It is like static electricity, building up in his muscles. (I = not MD) You might ask him to try and NOT move his eyes for a few minutes (whatever he can tolerate - your call) and see how he reacts. If it hurts, then you might be looking at tics. Especially if there is a flurry of eye movements after you tell him he can relax. If it causes anxiety, it might be an OCD component. If he can do it, and has no reaction, it might just be allergies. Another trick: what about while he is asleep? Most of us tic during sleep, although it might be different tics. The jury is still out on this last part.

    Keep in mind, most of the Touretters in my generation went to the allergist, the eye doctor, got our ears checked more than needed, and had various bizarre treatments before we heard about Tourette's. Eye twitching and sniffling are two of the most prevelant symptoms of TS. Is it any wonder why we see these specialists so often?

    Good luck. And remember, there is worse than TS.
    Darin M. Bush, The Tourette Tiger, author of "Tiger Trails"
    http://www.facebook.com/tourettetiger

  6. #6

    Default Iam not sure if this is Ts

    It takes initally one year for someone to be able to be diagnosed with TS. And to have TS, you need to have had adleast 4 different mortor tics, and one vocal tic (not all those tics need to be occuring at the same time, but they do need to happen with in the 1st year of onset)

  7. #7
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    Default Iam not sure if this is Ts

    Hi net5dd

    I was just wondering if you could tell me where the idea of having to have at least 4 motor tics came from. I have not heard that before. Everything we have available refers to having motor tics and a min of one vocal and the time frame of 1 year is pretty consistent.

    The benefit of having so many people on this forum is that we are getting new info all the time. thanks for sharing
    Janet, mom of 4

    TSFC Homepage


    "Intelligence is always increasing; accommodation allows your intelligence to do what it has always done." Cassie Green, Washington College

  8. #8

    Default Iam not sure if this is Ts

    I just wanted to reiterate what Tourettetiger said about Transient Tic Disorder.

    It is surprisingly common for children to have tics for a short time frame. I don't know any statistics, but I bet you could go into almost any 2nd or 3rd grade classroom and find children who tic. My father, my ex-brother-in-law, my boyfriend, my stepson, and my brother all had a tic for a period of time at about that age... and TS does not run in the family (I was adopted).

    The good thing is that whether or not this is TS, it is not an urgent matter. You have lots of time to read and learn about it, if you choose. And the great thing is you should find that Tourette's is really not a big issue for most people. There are some who have a hard time with it, of course. But the majority of us do just fine.

    What really makes a difference is how YOU react to it! If he continues to display tics, and senses that it upsets you, it's going to upset him and cause him to negatively view his tics (and himself). But if he can tell that you're cool with it, then he'll likely also deal with them better...
    and that is the number one thing that will determine how well he deals with it in the future.. his perception of it all. :D

    And really, that's GREAT news! It means you, as a parent, actually have more control over the situation than you think! (((Hug)))

    Hope all this helps and please keep asking questions if you have them.
    :D

  9. #9
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    Default Iam not sure if this is Ts

    Bootech:

    Welcome to the TSFC forum and I am glad you found us.

    You can ask all your questions here and bounce idea's and concerns around too.

    Early on, I found keeping a journal on the tics made a difference. It creates a pattern you can share with the Doctor.

    Keeping the teacher informed and having her report back to you is very helpful too.

    Have you had your child's vision checked? Might be a good idea to do. Doctor's prefer to rule out any possibility before offering a diagnosis that will stick for life.

    If the action takes away from the enjoyment of life and is not related to any physical concern, then push a bit to get your Doctor to help you. :?

    If the pattern of blinking is not consistent, look for triggers, usually stress or excitement like Cartoon's on the TV, video games...
    See if you can limit the triggers by reducing the time for cartoons for example...

    Please keep us posted and visit often. Spend some time in the Parent section and tic parade section of this forum. It will provide some experiences other parents have been through and possibly you will find some comparisons too. It does not matter how old the last post is, add one yourself and others will respond to the topic.
    PJK

  10. #10
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    Default Iam not sure if this is Ts

    Quote Originally Posted by net5dd
    It takes initally one year for someone to be able to be diagnosed with TS.
    Net5, I am not sure exactly what you mean here, but I am concerned, so I am going to comment. A lot of people, many new to the entire TS+ conversation, read these forums and I feel obligated to clarify. Chalk it up to my OCD if you wish. Nothing personal of course.

    It does NOT take a year to get a diagnosis of TS. This is a common mistake, and I have actually heard some doctors make this mistake before.

    It takes a year worth of tics for it to BE TS, give or take. Let me 'splain. No time, let me sum up. There are a LOT of other things that have tics besides TS. Doctors need to have evidence that the child has been ticcing for a year, because if it has only been a few months, it might NOT be TS. And if the parent(s) have seen tics for 12 months, the doctor should (in most cases - there are always exceptions) take that as good evidence, and diagnose accordingly.

    One last small thing here: does anyone know ANYONE who got diagnosed with TS and it turned out to be something completely different? I am racking my brain, and can not think of a one.


    Quote Originally Posted by Haejinn
    it is not an urgent matter. :) You have lots of time to read and learn about it
    You know, Haejinn, I had a hard time with that the first time I read it, being a TS+ parent, but two seconds later my brain went, "Yea, right on." TS is not the sort of disease that can quickly maim or kill if untreated, as compared to say, cancer or diabetes or rheumatoid arthritis. In fact, there is a school of TS+ thought (that I disagree with) that you should give no medication for any of the disorders. Parents are quite in their rights to do that, because it is NOT such a quick disease. It is just persistent.

    I would say, if you feel weird about medicating, sleep on it a few days, and get a second opinion. Of course, there are always those few Touretters who could really use help quickly (an adult who can no longer drive, for example) but I think that is rare. We get very upset and emotional as parents, and we forget to take a deep breath and not panic.

    Good thing to point out - thanks!
    Darin M. Bush, The Tourette Tiger, author of "Tiger Trails"
    http://www.facebook.com/tourettetiger

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