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Thread: Head & Neck jerking

  1. #1
    Join Date
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    Default Head & Neck jerking

    Have others experienced this with thier children or themselves?

    Do vocal tics or limbs respond at the same time?
    PJK

  2. #2
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    Default Head & Neck jerking

    My oldest is 13 and he has had a head and neck tic for over 2 years. He can sit and read with his head repeatedly twisting to the left and then it would stop only a few minutes and then go again. I have asked him to describe it but he use to just say "I didn't even notice". About 6 months ago he suddenly would add in a full rotation of his head ie his head would twist 3 times to the left and then rotate so that his face would be looking up to the ceiling and roll his head all the way round to the starting point.
    Janet, mom of 4

    TSFC Homepage


    "Intelligence is always increasing; accommodation allows your intelligence to do what it has always done." Cassie Green, Washington College

  3. #3
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    Default Head & Neck jerking

    Janet:

    My son does the same thing and now if he is upset during one of these moments his arms bend, elbows beside him and his wrist twist and flop back. He also has eye movement back and to the left side.

    For some odd reason always the left side gets it first from the neck up.
    PJK

  4. #4
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    Default Head & Neck jerking

    At what age did your son start this? has it ever left? My son has not had a break from this one. He would complain of neck and back pain and I was not surprised. He's better at describing how things feel and I haven't asked him lately but perhaps I should to see if I could get some insight into it so I can share. I have never noticed any odd eye movements with him. I have noticed that when on the computer or reading he does this and doesn't seem to miss a beat. I asked him how he can keep track of what he is reading and he told me that he don't know because he's been doing it so long that he's just adjusted. It doesn't interfer with his work performance and when asked by his peers at school he passes it off and say "it's just one of my tics" !
    Janet, mom of 4

    TSFC Homepage


    "Intelligence is always increasing; accommodation allows your intelligence to do what it has always done." Cassie Green, Washington College

  5. #5
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    Default Head & Neck jerking

    Janet:

    Understanding our circumstances with my son, the first time I saw it was around 11 years of age.

    It shows up now under stressful moments more then ever.
    The case worker thought he was having seizures when she saw it, not understanding TS.
    PJK

  6. #6

    Default Head & Neck jerking

    i've had those. yea most of the times i would get them when i was stressed out. andthat thing you talked about the 3 twist, i dunno know about ur kid, but i used to do that for relief. its like, you can only twitch so much before its completely uncomfortable. it gets to the point were u just want to do it acouple of times in a role, sometimes it gives us a little more time of relaxation. but now the neck thing only happens to me during winter. i got this whole seasonal twitch thing going on.

    srry couln't answer ur question PJK, i dont have the vocal thing going on. but having multiple tics, i can tell you that a couple of them can be happening at the same time.
    Be the parent, not another doctor.

  7. #7
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    Default Head & Neck jerking

    Welcome to the TSFC Forum and I appreciate your response.

    You may have something when you mentioned the relief part...

    I appreciate getting feed back from someone that does relate, because when my son experiences the rough tic's that can cause pain, he does not want to relive it by explaining to me.

    Your response provided another point of view to consider and i think you are on target.

    Thanks
    PJK

  8. #8

    Default jsut a thought.

    yea, alot of the time the most embarassing part about having a tic is trying to explain it. especially to a parent. Whenever my mother asked me about it i would just feel ashamed. The best thing you can do, well the best thing any parent can do is not to mention it so much. i know its hard for you to see him twitch and stuff, but i bet what he'd want the most is for people just to not care.

    i know it sounds kind of weird, and it might sound like im attackign every parent for caring so much, but i believe the best cure is for the family not to care about it. being a parent i know its kind of hard not to care about anything ur kid does. But ts is a very embarassing deal. i dont know how old u kid is but when it comes to the age of being a teen, try not to push it. Ask him if wants to take meds, if he wants to go to doctors. make sure he's into a sport, or has a hobby. i've notice that when im doing my art im so concentrated on it that my ts goes away, or maybe its there i just dont notice it. and not caring about real makes me feel good. i dont twitch as much and i come up with some awesome art.

    Bottom line is, try not to zero in on ur childrens tics. he probably gets alot of stuff coming from teachers and other kids his age. let the home be his "safe zone" where the whole ts thing doesn't exist. it helps, alot.
    Be the parent, not another doctor.

  9. #9
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    Default Head & Neck jerking

    You are so right!

    We don't make a big deal over the TS in our home. Obviously I know when he has tic's but we just don't go there.

    He is no longer on med's for his tic's but still on some med's for the other disorders. He is doing pretty well with it now.

    He reads some postings here on occasion when they relate to what he is up against to help a bit so he does not feel isolated. AT times he will ask me questions or express frustrations or concerns to me but I do not start the conversation.

    Over all he is alright with having TS. His tic's can be hard on him and I understand the "embarrassment" factor in public/school.

    He will be starting a new school soon and I am having a in service worker come in advance to explain TS to the other students to hopefully calm down the bully attitude.
    I want him to feel alright about it and not feel like he has to defend himself. I have seen it so bad before that his aggression rises and someone always gets hurt and it is never him.

    If it does not work out, we have another option at home.

    He is very bright and a head of his age (almost 13) in reading. He likes to build websites and is a moderator for a major game on the net.

    We have a planning meeting this week with the school and they are familiar with TS and multiple disorders, so we have a better chance settling him in there then in the past.

    Thank you for your input and again you are right. Once a parent and child get to the point they understand TS families usual settle in for the ride.

    Our purpose here is to provide support and make them all feel like they are not alone and it is not just happening to them.

    I am very glad you have chosen to be part of the forum. You may want to check out the Youth section. A lot of the concerns you could relate too and have been through. We have others your age that participate in there but the forum title "Youth" has not been changed.

    I already addressed that for consideration but this site is still evolving.
    PJK

  10. #10

    Default Head and Neck Jerking

    My son tic's first with his head then his arm comes up like he's going to elbow someone then he clears his throat or coughs. This is just recent and quite surprising because this is a first that they have come in such a quick succession(one after the other).

    He has other tic's but none of the others are followed by other ones. (I hope this is making sense.) I was wondering if anyone else has expereienced this themselves or with their child?

    It seems that because of the frequency, it happens three of four times in a row several times a day, that there is pain also.

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