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Thread: Introduction/New

  1. #1

    Default Introduction/New

    Hi All,

    My name is Julie and I am a student at Sheridan College in Oakville. I am enrolled in the Educational Assistant program and currently taking 'Exceptional Person in Society' course. One of the assignments we must complete is to join an online support group and submit a paper on our learnings and experience. I work as an E.A. with the TDSB but has not worked with any students who has TS and do not know much about this diability. I have been browsing through your site and I now know a little about TS. In the weeks ahead I will have questions about TS. My first question - Is it easy to diagnosed and is it at an early age? Thank you and I know I will be learning a lot from your forum.

    Julie

  2. #2

    Default Introduction/New

    Hi Julie, and welcome to our forum.

    To your question if TS is easy to be diagnosed, I can only say: It depends. It especially depends on the parents. If a child has caring, loving parents who will have concerns checked out (if they're concerned to begin with), then it is likely that a child will be diagnosed early and will get help and support.

    On the other hand, as you can see by my signature, I got diagnosed at the age of 51. My mother would just admonish me to stop those 'terrible nervous habits'. What I got was ridicule, anger and abuse. I diagnosed myself eventually, and had that confirmed by a Tourette specialist.

    I don't think I am such an isolated case, either.

    Also, it depends on the severity of the tics, and how noticable they are. If most of your tics are things everybody does sometimes, then people don't necessarily notice (I fall under that category, I have over 40 tics, but none of them are terribly obvious most of the time). On the other hand, if somebody yells, swears, frantically waves their arms, pulls grimaces etc., then of course people will know something is wrong, and this person has likely been diagnosed long ago.
    German citizen, married to a Canadian for 28 years, four daughters, one son, eight grandchildren (and one on the way).

  3. #3
    Join Date
    Jan 2004
    Posts
    557

    Default Introduction/New

    I agree with what Uschi said -- it depends.

    10 years ago the most common theme we heard from parents was the long road it took to diagnosis. Most parents would have been at multiple specialists -- allergists because their child was always sniffing, ENT because of blinking -- and it would take YEARS before a knowledgeable doctor put all the pieces together and made the diagnosis.

    Now it is more common to hear that the diagnosis was made relatively quickly. The biggest frustration is the waiting period to get to specialists.

    Another factor that has changed from 10 years ago to now is the knowledge of TS. In the past most parents had little or no knowledge of TS and were completely in the dark up to the point of the diagnosis. Now a significant number of parents are suspecting TS or other neurological disorders before they even go to the first doctor's appointment.
    Cathy
    Forum Moderator
    TSFC Homepage

  4. #4
    Join Date
    Apr 2005
    Location
    Ottawa, Canada
    Posts
    5,870

    Default Introduction/New

    Is it easy to diagnosed and is it at an early age
    Welcome to the TSFC Forum Julie. Feel free to post your questions or join any ongoing discussion on the Forum.

    For information on the diagnostic criteria for Tourette, Click Here

  5. #5

    Default Thank you

    Thank you to everyone for your feedback. Uschi, I agree parents have to be involved in their children's lives and know what is going on. Some doctors will tell you that they can make an early diagnoses of any ailment going from information provided by you, the patient. You are right Cathy I was one of those people who had not heard of TS until about two years ago, I am 46 years old. I am glad I am learning so much from my courses at Sheridan College and the many disabilities. I look forward to learning more about TS from your forum. Cathy, what does the acronym ENT stand for? I'm thinking Ear, Nose, Throat. We're supposed to ask these questions! Thanks.

    Julie

  6. #6

    Default Introduction/New

    Hola Julie. Nice to meet you. How do you like being a student? I'm also a student, and at the age of 37, sometimes I gotta admit it's a little weird. :|
    My first question - Is it easy to diagnosed and is it at an early age?
    that's such a hard question to answer. Like mentioned, I think it's much more likely to be diagnosed nowadays.. I've never been 'officially' diagnosed. I suspected I had TS after seeing a documentary on TV when I was about 21 and confirmed it for myself many years later at 28 or so when I started researching it on the internet. (As a child, the doctor told my parents I was 'just bored'.. *sigh)

    But I think it also depends on the person ticcing, the doctor, and any comorbids... I still hear of doctors who think the child must be barking or screeching or cussing to qualify for a diagnosis. That's not true, but it's hard to keep doctors up-to-date on every diagnosis out there, I guess. And just because a child tics doesn't mean she has Tourette's.... autistic stims and tics can be troublesome sometimes to distinguish between, for example. I have a correspondence with a woman who is autistic but also tics and says it was assumed for years that her ticcing was stimming.

    Anyway, not sure if I quite answered your question.. hope I did, but my brain's been a bit fuzzy lately.

    Nice to have you here.

  7. #7
    Join Date
    Jan 2004
    Posts
    557

    Default Introduction/New

    what does the acronym ENT stand for
    Sorry - ENT = Ear, Nose and Throat.

    I'm too used to acronyms!
    Cathy
    Forum Moderator
    TSFC Homepage

  8. #8

    Default Thanks

    Cathy thanks for your reply.
    Haejinn thanks also for your response. Being a student at 46 is definitely challenging. I enjoy going to class one night a week but have to be motivated and have time to do my assignments - I have 4 for this course!But with the help from people like you and other forum members I am able to get information to complete one. Good point you made about autistic stims and tics, I wondered about that.
    Question to anyone. Can tics be controlled, for how long, and is it an easy thing to do? Thanks so much.

    Julie

  9. #9

    Default Introduction/New

    Julie, I am autistic as well as having been diagnosed with Tourettes. With a lot of things I do I don't have a clue if it is a tic or a stim, and it doesn't really matter, either. With some of my tics I am certain they're tics though, like blinking my eyes, clearing my throat, coughing, raising my eyebrows, stuff like that. They don't help me feel good, but can be very annoying. A stim feels good and helps you cope in times of stress (like me sitting and rocking back and forth when I am feeling anxious).

    It's possible to redirect some tics for a while, or to suppress them. But it's a conscious effort which takes a lot of energy, and it's never easy to do. And eventually you have to allow the tics to come out or you feel like you're going to explode and lose it completely (okay, that's the way it is for me, anyway). But there are some tics I am unable to suppress. They're eye blinking and throat clearing especially. I will get the feeling something is stuck in my throat and HAS to come out, and I can't stop myself from clearing my throat, no matter how hard I try. I have do it, often very loudly and many times in a row. And if I try to suppress it, it will be a ton worse a few minutes later and will be a worse disturbance and more noticeable.
    German citizen, married to a Canadian for 28 years, four daughters, one son, eight grandchildren (and one on the way).

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