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Thread: Possible TS?

  1. #1

    Default Possible TS?

    My son, 6, has had a compulsion to rock back and forth on the couch since he was about 18 months, and it continues today. In the past when I have asked him about it, he always tells me he 'has to', or his head will hurt. I used to think he was just wanting to stay up later, get out of whatver I had asked of him, etc. Now I'm beginning to think differently. Recently he has begun to add neck jerking, seemingly spontaneously, and also sort of turning his arms and 'cricking', (as he calls it), his wrists and hands. He seems to do these additional things even when we are simply talking, or he's watching a video, or at any time - not all the time, just at moments during the day, but on a regular basis. His rocking or bouncing as I have always referred to it, seems to come on when he is mad, sad, bored, and/or tired - is this merely a coping/comforting technique, or a possible indication of TS? Should I go to a doc for a diagnosis? How is TS diagnosed? Any insight is greatly appreciated.

  2. #2

    Default Possible TS?

    The rocking sounds more like stimming than ticcing, which is more like the coping/comforting technique that you suspected, and often starts at younger ages than tics. Many people with developmental and autistic traits are known to stim frequently, but really, we all have our little things like twirling hair, fiddling with pendants, pacing... so, the presence of one stim-like behavior shouldn't worry you if he's otherwise developing 'normally'.


    The other movements you describe do sound more tic-like and age 6 is a typical age to see these types of things. Many children your son's age tic and it goes away after a few months and so is called Transient Tic Disorder. You can go into almost any classroom of 6-8 year olds and see kids ticcing.

    Tourette's is diagnosed by observing. There are no tests. The doctor MAY give other tests to rule out other possiblities like seizures, toxins, Huntington's, head trauma, etc. Some of the 'qualifications' for a Tourette's diagnosis include both motor and vocal tics (though some of us think this distinction is unnecessary), and the presence of these tics for a period of one year.

    Most importantly, how is your son doing behavior-wise and developmentally? Tourette's itself, is not a big deal for most people. But sometimes people with other issues, developmentally or behaviorally, get slapped with a Tourette's diagnosis and then the REAL cause of their problems doesn't get addressed properly.

    Because of his stimming behavior, I'd suggest you take a quick look at this site http://www.udel.edu/bkirby/asperger/ and click on the button "What is AS" on the left side just to see if that description clicks or not. I don't want to overwhelm you with info, but I think it would be good for you to be able to rule this in or out.

    And, the good thing about TS is there's no urgency! You have plenty of time to research and figure things out. And it doesn't sound, from your post, like your son is having any problems at this time. So please, take your time, do some reading, and please keep posting and asking questions and let us know how things are coming along.

    ((hug))
    :D

  3. #3
    Join Date
    Apr 2005
    Location
    Ottawa, Canada
    Posts
    5,886

    Default Possible TS?

    Mathwig,

    Welcome to the TSFC Forum!

    As Haejinn mentions, Tourette is diagnosed through observation and interview, so you need to do a bit of research on the specialists or physicians in your area on their familiarity with Tourette.

    Not all physicians have the training or professional interest in Tourette Syndrome to make a competent diagnosis.

    Do you know if there is a Tourette support group in your area, where you may gain some insights on physicians interested in Tourette?

    Look through the resources on the TSFC homepage as well as the various forum sections here to get more information.

    You may find this printable comprehensive description of Tourette Syndrome helpful.

  4. #4
    Join Date
    Jun 2005
    Location
    St. John's NL
    Posts
    1,147

    Default Possible TS?

    Welcome Mathwig

    I am so glad you found us. One of the criterion for a TS diagnosis is that there be both vocal and motor tics. Has your little one ever had any vocal type tics? Check the info Steve shared and see how many things you can relate to.
    Janet, mom of 4

    TSFC Homepage


    "Intelligence is always increasing; accommodation allows your intelligence to do what it has always done." Cassie Green, Washington College

  5. #5
    Join Date
    Mar 2005
    Location
    Ontario
    Posts
    962

    Default Possible TS?

    Welcome to the TSFC forum!

    I hope you visit often and keep us posted. Please feel free to join in to any discussions and ask questions.
    PJK

  6. #6
    Join Date
    Apr 2005
    Location
    Ottawa, Canada
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    5,886

  7. #7

    Default Possible TS?

    Not all physicians have the training or professional interest in Tourette Syndrome to make a competent diagnosis.
    Isn't that the truth!! You'll STILL find doctors who'll say "Your child can't have Tourette's, he does't bark." or "Your daughter can't have Tourette's, she's doing too well socially."
    WHAT???

    I have to admit, I feel like a parent is better off researching Tourette's herself/himself first, THEN going to the doctor, so they can judge better if the doctor even knows what he/she is talking about. Eeek!!

    :\

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