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Thread: unsure of how to proceed

  1. #1

    Default unsure of how to proceed

    I have a 9 year old boy who has developed a facial tic in the last while, he says its because his nose is bugging him. He does it about every5-10 seconds repeatedly throughout the day. He has always has sinus troubles, so it may be his nose bugging him. For reasons to long to lay out here, I am disinclined to go to doctors. I have been doing alot of research which is what has lead me here. Since he could talk he has repeated himself, not always, usually when he is excited. He has in the past had some"habits" like making himslelf burp- we passed that off as a boy thing. sniffing (like I said he has had sinus difficulties), so until this latest "tic" we weren't concerned. I just was curious to see if anyone out here is exploring alternative therapies. Drugs don't interest me as an option, at this point I'm not positive of what we are dealing with. It also sounds fairly vague on diagnosing TS anyway. What do I do in this"year" of observation. I have read some positive things about acupuncture and some one mentioned amino acid therapy. Any thoughts?
    BRIDGET

  2. #2
    Join Date
    Apr 2005
    Location
    Ottawa, Canada
    Posts
    5,886

    Default unsure of how to proceed

    Bridget,

    Welcome to the TSFC Forum!

    For reasons to long to lay out here, I am disinclined to go to doctors
    Obviously you have had some kind of negative experience with the medical profession. May I suggest that you find a way to resolve that issue and get it behind you, as you are performing a serious dis-service to your son and to your family to avoid competent medical care resulting from a grudge or memory of a negative experience.

    We are not unsympathetic to the real effects of post traumatic stress or the anxiety which may have been caused by some negative life experience.

    However avoiding competent medical care exposes one to charlatans and quacks who will tell you what you want to hear, drain your financial resources and potentially result in a condition that could have been treated with early intervention, to go undiagnosed.

    Your son needs to be seen by a physician who can rule out some acute disorder and determine the cause of his discomfort. The first step would be a general practitioner or pediatrician who might refer your son to an ear, nose and throat specialist.

    If indeed your son has Tourette or any other disorder, the internet is not the place to seek a diagnosis. You can gather information, but the information should be used to have a meaningful dialogue with a competent qualified specialist such as a neurologist, psychiatrist or pediatrician who understand and deals with tic disorders.

    Your son's health care should not be compromised by your personal prejudices or apprehensions about the medical profession.

    There are resources which can help you deal with whatever issues are causing you to fear or dis trust the medical profession.

    Have you sought out any of these resources?

  3. #3

    Default unsure of how to proceed

    I am not seeking a diagnosis for my son over the interenet. I am an intelligent person, however sites like this one help with narrowing down the possibilities. I want to know what those are and i need to do researching first, then seek help where and when it is needed for my son. I don't need to be personally attacked for asking questions. You have no idea what my personal experiences are for me or my son, I guess it's safe to say that this forum does not support the open discussion of alternatives to the mainstream. Too bad, you lost me.
    BRIDGET

  4. #4
    Join Date
    Apr 2005
    Location
    Ottawa, Canada
    Posts
    5,886

    Default unsure of how to proceed

    You have no idea what my personal experiences are for me or my son, I guess it's safe to say that this forum does not support the open discussion of alternatives to the mainstream
    Bridget,

    I am sorry you don't feel the TSFC Forum can provide the information you need. You're right, we don't know what difficulties you may have endured in the past, but I don't believe we should allow past bad experiences to block out the very resources that can help you.

    There may be some so called alternative therapies that might have some benefit in some situations, but unfortunately there is often little hard evidence to support their use.

    The bias of the TSFC is clearly in favor of therapies supported by published science evidence rather than anecdotal reports.

    Regrettably purveyors of alternative therapies will tell you what you want to hear, with exaggerated claims of effectiveness, described by medical half truths and self serving testimonials.

    There are no absolutes in medicine, so you may not always be told what you want to hear by a physician, but you can be assured that the information you receive has a proven scientific basis.

    If you are unsure about the medical opinion of one physician, you are free to seek a second or third opinion, then form a conclusion based on the facts.

    Hope you will reconsider leaving our Forum community.

  5. #5
    Join Date
    Jun 2005
    Location
    St. John's NL
    Posts
    1,147

    Default unsure of how to proceed

    Hi Bridget

    My oldest son presented very much like how you are describing your son. It was the facial grimace that led me to TS. You asked if others have tried any other treatments and those on here who have received a diagnosis have definitely shared various things they have tried. Keep in mind that seeking medical support to confirm the diagnosis only supports you in the future if such behaviors or symptoms start to interfere with school or peer relationships. Many parents here have sought a medical diagnosis and have not chosen meds. Depending on where you are located there are many other referrals that can result to areas such as Occupational Therapy or Cognitive Behavior therapy, etc.

    Please don't take anything posted here personally. We strive to stay focused on the situation and there is no intent to judge people for the decisions they make. If you stay on as part of this forum you will see there are many, many people from all over the world who take part and we are totally open to a wide range of discussions and debates
    Janet, mom of 4

    TSFC Homepage


    "Intelligence is always increasing; accommodation allows your intelligence to do what it has always done." Cassie Green, Washington College

  6. #6
    Join Date
    Mar 2005
    Location
    Ontario
    Posts
    962

    Default unsure of how to proceed

    Bridget:

    I am glad you found this forum and after much reading you will find that everyone has considered or tried other options. Most you will find have combined the support of their Doctor with other alternative therapy or treatment.

    When a child has TS a mother will do anything to make it easier for her son or daughter. This is only natural.

    I believe what Steve was expressing and Janet stated that seeking a proper diagnosis will confirm your concerns and provide you with the direction you need to find other resources for treatment.

    There are many individuals with TS that do not medicate to manage their tics there are others that find it is a relief.

    This forum provides experiences, ideas that have worked for others and others that may not have worked so well but most of all a confirmation that we are all in the same "boat" and for that we support each other.

    I hope you will visit often and if you find options in your personal research please feel free to post about them to see if others have tried the option too.

    Most importantly it would be wise to confirm your suspicions of TS with a proper diagnosis. This will not label your child but will give you the resources you may need in the future while dealing with school systems.
    Physicians that work with TS do not always prescribe med's and tend to be realistic with the condition.

    If your child has any problems down the road the system will assess him or misunderstand him. That option is much harder on your child and will be on you too. I've been there too while waiting for the answers we needed by professionals and I would not wish that confused & stressful experience on anyone.

    I wish you the best and I understand why you are exploring for answers. As a Mom we all do.
    PJK

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