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Thread: ottawa mom

  1. #1

    Default ottawa mom

    I have a 7 year old boy who has been having tics for as long as I can rememer. I distinctly remember his earliest tic (eye blinking) he was barely 3years old. Now it changes, goes through phases with blinking, nose twitches, lip licks, coughs, throat clearing, stomach rolling, obsessive thoughts, head turns and his newest, little hops. He actually will do up to 3 different ones at a time. He has not been diagnosed with anything because the doctors and pychologist feel it is not hindering his daily life yet and is managing well. He has had bouts of anxiety but with help has been able to move past it. He does not seem to have any other symptoms so I'm not even sure if he has TS or not. Maybe he's just a quirky kid who is generally happy. BUT I can't help and wonder and worry. If he started so early will it get so much worse when "they say" TS peeks. Will we have more bouts of obsessive thoughts or aniety in the future. Will he be able to cope. I think of this daily...

    I'm glad to have discovered this site and look forward to chatting with you.

  2. #2

    Default ottawa mom

    Hi! Great to meet ya!!

    Just wanted to let you know that there is no reason for us to believe that age of onset has anything to do with his ticcing frequency or intensity when he gets older. :D

  3. #3
    Join Date
    Apr 2005
    Location
    Ottawa, Canada
    Posts
    5,886

    Default ottawa mom

    Welcome to the TSFC Forum Sandi! Glad you found us and we'll be glad to answer as many of your questions about Tourette as we can.

    To better understand the diagnostic criteria used by physicians in making a diagnosis for Tourette please read this.

    There is a very active TSFC Chapter in Ottawa which conducts regular meetings from September to June on the second Tuesday of the month at 7:30 p.m., usually at the ROH location

    Check for details HERE

    He has not been diagnosed with anything because the doctors and psychologist feel it is not hindering his daily life
    Your doctors' posture is puzzling as one has to wonder how a diagnosis would somehow be construed as an impediment. A definite diagnosis would provide you and your son with the information and tools you both need to deal with whatever needs to be dealt with.

    Are there plans to pursue getting a second opinion?

  4. #4

    Default ottawa mom

    After seeing the eye doctor( to make sure his tics weren't related to eye sight problems) , having chest x-rays (to make sure his constant gasping for breath wasn't asthma related), the 1st time I brought him to see a specialist my son had stopped all tics (this lasted a couple of months) he was only 5 and the doctor said who knows if the symptons would even come back, maybe some of his neuroligical wires may have just crossed. Oh, the symptons came back and then some. The 2nd doctor told me to read a book and that I was doing everything right, and the 3rd told me that he was too young to treat and come back anytime the symptons got out of hand. He was never diagnosed with anything. Maybe he is just a quirky kid and is just fine but the not knowing is what nags at me. I guess it's because of his age and only time will tell. Maybe I need to be treated for anxiety.

    No seriously, I'm not an anxious parent, maybe too informed for my own good. it doesn't help that I work with children with developmental disabilities and delays. :roll:

  5. #5

    Default ottawa mom

    Sandi,

    Your concern for your son is very understandable. As far as the tics go, unlike many diseases out there, there is no "real" factual test to prove tourettes and I believe the old theory of the number of twitches to equal tourettes is no longer in effect. The best way is to have your son checked out by someone who is qualified in either tourettes or neurological disorders. But it has been said that a child (or adult) my hold back their tics when visiting a doctor in fear of the disorder itself. Also, you will read this on many threads, people with tourettes experience tics in a wax and wain affect, so it may not always be constant.

    I do agree with steve that the doctors opinion on the diagnosis was "strange". But I will say that doctors again may not even be "experts" on TS (tourettes). I had a doctor tell me once that TS doesnt affect the lower half of my body. (I needed an MRI on my knee and I didnt wanna twitch) But many children do experience a "tic" or habit and eventually it goes away.

    You have a right to be nervous for the safety of your son but I will assure you, whether he has TS or not, he can lead a "normal" and fulfilling life like anybody else. I think many here may agree, it wasnt having TS that was as annoying as trying to find out before the diagnosis, what it was that made them twitch. But please feel free to ask any questions you have and browse our other threads for more info. :D
    The other day at a local grocery store, I saw a rack with books on it and one of them said, "pregancy for dummies"............

  6. #6

    Default ottawa mom

    Thank you Adam

    Actually it isn't the tics that concern me the most it's fear of having the OCD thoughts (they were quite ugly, disturbing thoughts) come back or the fear of depression as he gets older and the fear that he will turn to substance abuse. I have family with commoflaged "quirkiness" because they have become addicts and never diagnosed with nothing else but depression. I fear his future and want the most information and techniques now so i can give him the tools to cope and not go down that ugly path.

  7. #7
    Join Date
    Mar 2005
    Location
    Ontario
    Posts
    962

    Default ottawa mom

    Sandi

    Welcome to the TSFC forum!

    My son started his vocal tics at age three but until his TS became a real "problem" for him by age 11 no one out there really considered diagnosing the TS.

    My son also has TS+; this means he has other disorders with is his TS. He is treated for the other disorders now and not the TS.

    I would suggest that you visit your local chapter meeting and you will find parents and other children with TS+ concerns. It is not uncommon that one disorder effects a child more then another.

    Keep a journal and record your daily findings and experiences. Take this journal with you when you visit your Doctor. They look for consistency in behavior to know if they should refer you. These notes will help.

    If you find you should be referred, ask for a someone that treats TS & other disorders. We were referred to a Pediatric Psychiatrist. She was able to confirm or concerns and create plan of action for our family Doctor.

    Please keep us posted on your findings and ask any question you need to on this forum. There is no need to feel like you sound anxious. You are a concerned Mom that has a background in special needs so you would naturally be more sensitive to the concern.

    Take care and remember you are not alone.
    PJK

  8. #8

    Default ottawa mom

    Thanks, I appreciate it.

    perthaps i will go to one of those meetings but I'm not even sure if he has TS yet. Like the first doctor told me, "if it quacks like a duck then it must be a duck". i wasn't too impressed by the specialists choice of words but I understand that TS is hard to diagnos and he was hesitant to place a label on my barely 5 year old child at the time. Things have changed but it still isn't clear to me. Can symptoms like OCD come and go???? :?:

  9. #9
    Join Date
    Apr 2005
    Location
    Ottawa, Canada
    Posts
    5,886

    Default ottawa mom

    I understand that TS is hard to diagnose
    Sandi,

    Diagnosing Tourette should not be overly mystified, which is why a specialist with a professional interest and adequate clinical training in Tourette should be consulted for a competent diagnosis.

    Unfortunately many health care providers do not possess sufficient clinical experience in diagnosing Tourette and are hesitant to commit themselves.

    If you feel at some point you want to pursue a competent diagnosis in Ottawa, drop into one of the support meetings of the Ottawa Chapter where you can get some direction.

    The Ottawa Chapter is active in maintaining lines of communication with several physicians in Ottawa who are competent in diagnosing Tourette.

  10. #10
    Join Date
    Mar 2005
    Location
    Ontario
    Posts
    962

    Default ottawa mom

    Sandi:

    You can go to this site for answers about OCD. If you enter OCD diagnosis as a search you will find several sites that might help you.


    http://www.mentalhealthchannel.net/ocd/diagnosis.shtml
    PJK

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