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Thread: Upset

  1. #1
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    Default Upset

    I need to vent about my first neurologist.

    From when I was first diagnosed with TS back in 1999 to the time I changed neurologist, I was on various neuroleptics and Nitoman which as many of you know come with bad side-effects. They did help me but there was a big price to pay in the quality of life I had or didn't have. During a brief period this summer where I wasn't taking anything, because I couldn't live with the side-effects anymore, I was doing reasonably well until my tics came back in force. I am now on Clonidine, which has virtually no side-effects compared to neuroleptics and Nitoman, except for a drop in blood pressure which in my case is virtually a non-issue due to the small dose I take.

    This brings me to the reason I am upset which is: Why hadn't my first neurologist started me first on Clonidine? It would make sense given its very tolerable side-effects profile. I mean at one point I was on Orap which required me to go for regular ECGs, apart from it being the most drowsy and apathy inducing med I ever took. Also, my current neurologist doesn't understand why I wasn't given Clonidine first.

    Stuff like this really upsets me.

  2. #2
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    Default Re: UPSET

    Obviously we might never know why you other doctor chose the protocol he did.

    However, it should be realized each physician has his/her own clinical experience with certain medications and certain medication protocols, based on their training, any research work in which they may be involved and the influences of their own peers.

    Based on the symptoms with which you presented, and your medical history, that doctor may have had a protocol he followed by first ordering a particular medication, with his own preferred choices as backups.

    There are differences in prescribing philosophy among physicians depending on their training background, the hospital in which they practice, and sometimes the factors I mentioned earlier such as research etc.

    Modern medicine is as much art as it is science, and it is not unusual for differences among practitoners to occur.

    Thanks toyour persistence, however, you were able to eventually find a treatment option that works for you.

    Instead of being upset, be thankful you now have relief with a treatment you seem to tolerate.

    :Two ThumbsUp:

  3. #3
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    Default Re: UPSET

    Steve,

    I agree with what you say, however the fact that my current neurologist doesn't understand why I wasn't put on Clonidine early on is what upsets me.

  4. #4
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    Default Re: UPSET

    I understand how you feel! My current investment advisor wonders why the previous one did not recommend I buy Apple stock when they talked about launching iPods:stung:

  5. #5
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    Default Re: UPSET

    You may get another chance at Apple stock. :untroubled: I read that Apple is rumored to be coming out with its own TV by late 2012, probably called Apple TV. If it takes-off like the iPod and iPhone then the stock will have more to climb. But I wouldn't want to be Sony, Toshiba, Samsung, etc if that happens. :dread:

  6. #6
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    Default Re: UPSET

    I agree with the Clonidine. its amazing stuff, well atleast for me it is. I get pretty dopey, but i dont mind because it also helps me sleep. I think maybe the issue is that I was perscribed it by my family doctor, and you by a neurologist. its original use isn't for tourettes symptoms, but blood pressure, and is still listed as a blood pressure medication. So i think maybe that your neurologist, not being familliar with treating such conditions as high blood pressure, may not have been aware that the drug can be used for such conditions as TS, ADHD, and anxiety disorders.

  7. #7
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    Default Re: UPSET

    maybe that your neurologist, not being familliar with treating such conditions as high blood pressure
    Not likely, Aidan because physicians and especially specialists are aware of so called "off label" uses for medications, especially within their own specialty.

    These "off label" uses are commonly discussed in medical journals, medical conferences and would be common knowledge.

  8. #8
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    Default Re: UPSET

    One more thing I noticed with taking Clonidine.

    It's been almost one month now that I am on it and I noticed that in my case it's very sensitive to alcohol. I used to have half a glass of wine every night with supper when I was taking neuroleptics or Nitoman and it didn't do anything. However I noticed that even consuming half a glass of wine per day (and I noticed this every time) it reduces the effectiveness of Clonidine. This is intriguing because I thought that neuroleptics would have been more affected by the intake of alcohol than Clonidine would be. I guess with medications the individual's own metabolism plays a big part.

    So now I have half a bottle of light beer, Molson 67, with supper and it's fine. So much for having wine! But who cares, as long as the Clonidine does it's job. :sneakiness:

  9. #9
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    Default Re: UPSET

    Quote Originally Posted by ts1999 View Post
    One more thing I noticed with taking Clonidine.

    It's been almost one month now that I am on it and I noticed that in my case it's very sensitive to alcohol. I used to have half a glass of wine every night with supper when I was taking neuroleptics or Nitoman and it didn't do anything. However I noticed that even consuming half a glass of wine per day (and I noticed this every time) it reduces the effectiveness of Clonidine. This is intriguing because I thought that neuroleptics would have been more affected by the intake of alcohol than Clonidine would be. I guess with medications the individual's own metabolism plays a big part.

    So now I have half a bottle of light beer, Molson 67, with supper and it's fine. So much for having wine! But who cares, as long as the Clonidine does it's job. :sneakiness:
    I've noticed this too. I usually have a beer or two before going to bed ( i like my beer around 5-6 percent) and whenever have a beer and relax now that i've started the clonidine, it feels more like i've had 5 or 6. This isn't a problem. Its effectiveness in my treatment by far out weights my need to have more than one beer a night.

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