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Thread: Do you think this is Tourettes?

  1. #1

    Default Do you think this is Tourettes?

    Hello,

    My 7 year old son has alway been a bit hypersensitive but it wasnt unmanageable. He was bothered mostly by seams in socks and putting on sports gear but it wasn't terrible. One other thing is he would complain of his feet falling asleep occasionally, usually on long car rides.

    But in the last 40 days or so life has changed for him and us.

    It started with him complaining about his feet and hands falling asleep. Again we 1st noticed it in the car but then it started happening several times a day, even when he was walking around. It started bothering him so bad he would start slapping his feet, throwing fits on the floor, hitting the couch, screaming etc. This is when we got worried and started looking at the problem, and looking for medical attention. I did some research and my 1st thought was diabetes, but the blood test said no.

    A few weeks into this he started wooping outloud when his feet or hands were asleep or he was stressed or his clothes bothered him. Then we got real concerned and made an appointment at a Neurologist in the city. It took two weeks to get an appoiontment and in the meantime I was googling his symptoms and I was scared it was MS although he had no muscle weekness or coordination problems.

    When we explained things to the neurologist, he turned around to the computer and started googling touretts or tic dissorders and he immediatly said he thought it was a tic disorder, and he explained that tics are sometimes preceded by parasthesia (tingling in his feet or hands) The neurologist explained a bit about it, gave us some handouts, gave us some drug pamphlets but he didnt think drugs were necassary, and he also scheduled an MRI for next month to rule out MS, which he said he doubts.

    Now his symtoms (or tics?) have evolved even more this week. When his feet or hands or clothes bother him, or if he doesn't get what he wants, or if he is stressed he starts to "woop" or he throws fits of rage, hitting walls, hitting the couch, slamming whatever he can get his hands on, slapping himself in the face, yelling "GOD JESUS CHRIST" he just goes berzerk.

    I've been reading everything I can to see if I can believe he has touretts or if it's something else. What makes me doubt it, is that he can control it at school or in public, he doesnt have any strange jerky movements or twitches... just the wooping and slapping his face sometimes, but he doesn't do it at school or in public. Sometimes we wonder if he's exagerating his symptoms to get attention.

    I'm looking for opinions on this forum from people who have been there, and I dont seem to see alot of people talking about parasthesia, although I did find some people on here have hypersensitivity problems.

    Thanks in advance for your opinion on my sons symtoms!

    Herschal

    ---------- Post added at 09:16 PM ---------- Previous post was at 08:50 PM ----------

    One correction... the wooping started just before we went to the neurologist, when we mentioned that is when he started talking tics or touretts.

    Also in the last week or two.. if you ask him a question where he has to make any sort of decision.. example: "do you want to go skate or go hunting" he will put both hands over his ears and squeeze his head and scream.. it's as if any little decision is just too much for his mind..

    Also the neurologist suggested "Habit Reversal Therapy" which we are waiting for the MRI before we get into that, cause we aren't competely convinced it's a tic dissorder.

    We are also considering a second oppinion..
    Last edited by herschal; January 7, 2012 at 10:18 PM. Reason: adding more

  2. #2
    Join Date
    Apr 2005
    Location
    Ottawa, Canada
    Posts
    5,939

    Default Re: Do you think this is Tourettes?

    We are also considering a second oppinion..
    This would be your best strategy, considering the information you have received.

    Tourette syndrome does not have a diagnostic test, as you probably know, so an accurate diagnosis can only be made through observation and interview by a medical practitioner with training in movement disorders and clinical experience with Tourette.

    Not all physicians have a clinical interest or adequate training in Tourette, so you need to investigate and locate someone in your area know for their expertise in Tourette Syndrome.

    Resources that can help are local Tourette support groups, particularly those associated with National Tourette advocacy organizations such as the Tourette Syndrome Association in the U.S. Their website lists local Chapters HERE.

    It sounds like you are on the right path, where your son is being evaluated medically in order to rule out conditions that might be causing his behaviour, and if the process seems to point toward Tourette, in your son's best interests, have him seen by a Tourette specialist with a proven track record in understanding the disorder.

    By doing so, you will be able to provide your son with the best possible resources at the earliest possible time in his life so he and you can deal with whatever the diagnosis happens to be.

    In the meantime, we will be pleased to offer you the information and support you might need.

  3. #3

    Default Re: Do you think this is Tourettes?

    Steve,

    Steve,

    Thanks for your advice and words of wisdom.

    However, please don't feel like you're gonna scare me or offend me.. I'm really looking for you or anyone in this forum who's been around it to give me their opinion as to wether you think these symptoms look like touretts.

    Based on my original post what do think? anyone?

    FYI he's had a great day today, I've kept him busy and he's only had 1 very slight moment of tingles but no fits..

    Thanks

    Herschal

  4. #4
    Join Date
    Apr 2005
    Location
    Ottawa, Canada
    Posts
    5,939

    Default Re: Do you think this is Tourettes?

    Based on my original post what do think? anyone?
    As a matter of policy and ethics, we don't diagnose Forum members or their family on the TSFC Forum and we discourage others from doing so.

    An accurate diagnosis of Tourette Syndrome can only be made by a trained medical professional who can observe and interview the patient, after having access to their medical history, and use the diagnostic criteria for Tourette.

    Please see What is Tourette Syndrome? Overviews Brochures that contains several information articles, including the diagnostic criteria in post #1. A trained professional would be required to rule out any other medical issues you son might be experiencing.

    Internet diagnoses are dangerous, misleading and unethical. You would be doing your 7 year old son a disservice by trying to determine his diagnosis on the internet.

    We are here to provide support and information to you when you have obtained a reliable diagnosis, or need to find a resource to provide a diagnosis. We cannot make or confirm a diagnosis.

    To repeat what I suggested earlier, if your present medical team cannot point you to a competent practitioner with Tourette clinical experience, contact your National Tourette Advocacy organization which in your case, I believe is the Tourette Syndrome Association and/or the local Chapter for names of physicians trained in diagnosing Tourette in your area.

    Also the neurologist suggested "Habit Reversal Therapy" which we are waiting for the MRI before we get into that, cause we aren't competely convinced it's a tic dissorder.
    The MRI may serve to rule out other medical conditions, but will not confirm a Tourette diagnosis, because there is no diagnostic test for Tourette.

    Have you tried contacting the TSA or the local Chapter for resources near you?

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