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Thread: Cognitive Behavioral Therapy (CBT) Referral? Atypical TS signs? Advice please :)

  1. #1

    Default Cognitive Behavioral Therapy (CBT) Referral? Atypical TS signs? Advice please :)

    Hello,

    My child is 13 and recently not coping well with complex tics. Since preschool he has been experiencing simple tics that hasn't affected him physically, or with school & self-esteem etc. until recently. About two months ago, his simple tics ( 1-3 types) have gradually become complex (8-10), increasing in frequency and intensity primarily affecting his neck, head and face. He was admitted to Children's Hopsital for observation and to rule out other related concerns (seizure, motor disorder etc). He was discharged and we were told that he meets the criteria for TS and referred to a tic specialist based in an outpatient mental health clinic. We did not have a good experience at this clinic. I wasn't even formally told with a TS diagnosis and this neuropsychiatrist just came out telling my child that he has it and discussed about presenting his case in class, medication in detail etc. ?? You can imagine the increasing stress and confusion my son dealt with at the time. I figured this doctor would be more sensitive. Anyhow, this doctor mentioned about considering a new CBT intervention specifically for TS children that's in the works but the waitlist is huge.

    Hoping someone could refer me to a list of specialists providing Cognitive Behavioral Therapy? A psychologist or behavioral therapist with experience with TS?

    Furthermore, my son hyperventilates, stiffens up, drools and shakes his head everytime homework is brought up all of a sudden or whenever he doesn't want to do something, i.e. need to get out of the home for errands etc. Will CBT be relevant here to help him take steps back in to "school mode". He has missed the past two weeks of school as he still hard coping with his TS, understanding that it'll be a chronic health challenge, pain of his neck etc...


    Last week though, my child has been doing much better. Tics have gone back to about 4 relatively minor one's. We are waiting for a neurologist follow up to rule out a movement disorder as one of the doctor's feel my child manifests atypical TS movements.

    I hope his transition with high school, pressure of increasing workload etc is the main reason for this sudden onset of complex tics. As far as I know, bullying is not a factor. He has always been active, his first term report was a 3.3 GPA...


    Apologies for the lengthy background. I'm hoping someone's out there that can relate??


    Tx!
    Last edited by Eagle1Day; December 3, 2012 at 03:54 PM.

  2. #2
    Join Date
    Apr 2005
    Location
    Ottawa, Canada
    Posts
    5,945

    Default Re: Cognitive Behavioral Therapy (CBT) Referral? Atypical TS signs? Advice please :)

    Hoping someone could refer me to a list of specialists providing Cognitive Behavioral Therapy? A psychologist or behavioral therapist with experience with TS?
    Welcome tot he Forum!

    Where are you located?

    If you are in Canada, you may want to contact the TSFC office to see if they have people in your area.

  3. #3

    Default Re: Cognitive Behavioral Therapy (CBT) Referral? Atypical TS signs? Advice please :)

    I watched videos on this site (US based)
    and it helped me a great deal understanding TS and it's co morbid conditions and also explains the CBIT
    http://tsa-usa.org/Z_TSA_video/2012ConfVideos.html

  4. #4

    Default Re: Cognitive Behavioral Therapy (CBT) Referral? Atypical TS signs? Advice please :)

    Thanks for the replies!

    I'm from Vancouver. I left a couple phone messages with no response. I'm real interested in referrals and meeting up with support groups. Maybe I could drop by the office...

  5. #5
    Join Date
    Apr 2005
    Location
    Ottawa, Canada
    Posts
    5,945

    Default Re: Cognitive Behavioral Therapy (CBT) Referral? Atypical TS signs? Advice please :)

    I left a couple phone messages with no response. I'm real interested in referrals and meeting up with support groups. Maybe I could drop by the office..
    .

    If you are in Mississauga, you can certainly stop by the National Office. Perhaps send an email to the Executive Director, Lynn McLarnon lynn@tourette.ca to arrange an appointment.

    They would also arrange for your parking at the office building parking lot.

    There is a support group in Vancouver.

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