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View Poll Results: Tics While Asleep (Multiple Choice OK)

Voters
8. You may not vote on this poll
  • I tic while asleep

    3 37.50%
  • I DO NOT tic while asleep

    5 62.50%
  • Tics while asleep same as when awake

    1 12.50%
  • Tics while asleep different from when awake

    0 0%
  • Have been evaluated for sleep disorders

    0 0%
Multiple Choice Poll.
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Thread: Tics While Asleep

  1. #1
    Join Date
    Apr 2005
    Location
    Ottawa, Canada
    Posts
    5,945

    Default Tics While Asleep

    Do you or the person in your life with Tourette Syndrome tic while sleeping?

    Are these the same tics that are expressed while awake or are they leg and arm movements?

    Are there any vocal tics, like the ones while awake or are the vocalizations different?

    Please participate in the attached poll to help us develop some indication of the prevalence of tics during sleep, and feel free to post a comment on your own experience with sleep.

    sleep-cartoon.gif

  2. #2
    Join Date
    Jul 2011
    Location
    Georgia, USA
    Posts
    287

    Default Re: Tics While Asleep

    Grinds teeth and frequent nightmares.

  3. #3

    Default Re: Tics While Asleep

    My son doesn't tic while sleeping. However if he wakes up even slightly, as we all do many times throughout the night, I will often hear his vocal tic.

  4. #4

    Default Re: Tics While Asleep

    I'm pretty sure I tic during my sleep -- at least with my most prominent tic, that of gasping suddenly with my diaphragm. I sometimes wake up with a feeling of dying for breath or choking... it could actually be that I don't tic in my sleep, but eventually the premonitory urge wakes me up?

  5. #5
    Join Date
    Jul 2011
    Location
    Georgia, USA
    Posts
    287

    Default Re: Tics While Asleep

    Or you could have sleep apnea?

  6. #6

    Default Re: Tics While Asleep

    Quote Originally Posted by Geneva View Post
    Or you could have sleep apnea?
    Yeah, I've actually suspected that before. Could be.

    I should have someone analyze me while sleeping to determine whether I tic. :P

  7. #7
    Join Date
    Apr 2005
    Location
    Ottawa, Canada
    Posts
    5,945

    Default Re: Tics While Asleep

    I should have someone analyze me while sleeping
    A referral to a sleep clinic would be the way to determine why you experience these symptoms, and to get the right treatment.

    People with Tourette are just as likely to experience sleep disorders, unrelated to the disorder, as the general population.

  8. #8

    Default Re: Tics While Asleep

    Quote Originally Posted by Steve View Post
    A referral to a sleep clinic would be the way to determine why you experience these symptoms, and to get the right treatment.

    People with Tourette are just as likely to experience sleep disorders, unrelated to the disorder, as the general population.
    Thank you. I'll make a (mental) note of that.

    I used to think it might be sleep apnea, but it's never happened QUITE often enough for me to be extremely concerned... and if I hold off doing the breathing tic long enough, it eventually begins to feel like I'll smother or suffocate, so that's why I've lately thought that it might be the tic or rather, the premonitory urge, happening in my sleep. But I guess I just don't know for sure.

  9. #9
    Join Date
    Jul 2011
    Location
    Georgia, USA
    Posts
    287

    Default Re: Tics While Asleep

    If you had the sleep test done and it was apnea. Treatment would have you wear a cpap mask that forces hair into your nose while you sleep. I would think that would be sooooo hard to get used. I can't stand anything attached to my face to begin with

  10. #10
    Join Date
    Aug 2013
    Location
    Southeast Pennsylvania, USA
    Age
    56
    Posts
    11

    Default Re: Tics While Asleep

    When my son's tics were at their most severe and he had trouble falling asleep, I would lay on the bed next to him. I could tell the second he fell asleep because his body would go entirely limp immediately and he was totally quiet and peaceful. Then I would feel that temporary sense of relief for him. His neurologist told me that tics don't actually stop, but that they just become almost undetectable at night. At that point I was grateful for undetectable. I believe that was about 6 or 7 years ago. He has been on the clonidine or tenex since then with very good results. He will be 18 on Saturday.

    Grammy

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