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  1. #1
    Join Date
    Jul 2014
    Location
    Carseland
    Age
    60
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    Default new member

    My name is Tim. I'm 57 years old, and only recently realized that I probably have Tourette Syndrome. I haven't been diagnosed by a doctor, but the descriptions I've read sure fit.

    I've had lifelong motor and vocal tics. The earliest tics I can remember are from when I was about 8 years old. I used to roll my eyes and make squeaking noises in my throat. The other kids in class would turn and look at me and I'd look around, like "who did that? It wasn't me."

    I still have facial tics such as squinting and grimacing, and vocal tics such as grunting noises and other vocalizations. I don't have coprolalia fortunately. I probably have obsessive compulsive behaviour such as a need to sort and categorize everything and to know exactly where all my stuff is. This trait I actually find useful.

    Over the years I've learned to mask and redirect the tics to the point where I don't think anyone notices. My symptoms are mild and not at all debilitating. I look forward to exploring this forum and learning about other people's experiences and how they cope with Tourette.

  2. #2
    Join Date
    Apr 2005
    Location
    Ottawa, Canada
    Posts
    5,941

    Default Re: new member

    Hi Tim and welcome to the Forum! Glad you've joined us and look forward to your participation. Your insights and experience will be helpful to Forum members just becoming introduced to Tourette!

    Like you I learned about my own Tourette late in life and eventually sought an official diagnosis, for my own intellectual satisfaction.

    Once I understood the disorder, a great deal of confusion and personal misconception was lifted from my shoulders.

    Over the years I've learned to mask and redirect the tics to the point where I don't think anyone notices.
    A strategy most of us adults have had to figure out on our own to manage our symptoms. Interestingly, in recent years, Tourette specialists have organized many of the techniques and strategies that took us decades to figure out, and put them together into an eight week training program they teach to kids and adults to manage tic symptoms.

    We have an entire Forum section devoted to what is called Comprehensive Behavioural Intervention for Tics (CBIT)

    I probably have obsessive compulsive behaviour such as a need to sort and categorize everything and to know exactly where all my stuff is. This trait I actually find useful.
    Your experience is actually fairly common among people with Tourette and associated disorders like OCD where we have converted some of the features of our disorder into a life and /or career advantage.

    At this stage of your life, are any of your symptoms causing you any distress? Have you noticed any family members showing symptoms?

  3. #3
    Join Date
    Jul 2014
    Location
    Carseland
    Age
    60
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    6

    Default Re: new member

    Thanks, Steve. I don't have any children of my own, and I don't have regular contact with much of the rest of my family. I plan on discussing it with my half sister sometime. She may know more about it than I do. None of it causes me distress anymore, particularly now that I have a name for it. I'm not just weird, I have an identifiable condition.

  4. #4
    Join Date
    Jul 2011
    Location
    Toronto, Ontario
    Posts
    749

    Default Re: new member

    Hi Tim!
    I love the end of your post:
    "I'm not just weird, I have an identifiable condition."
    Welcome to the Forum for people with the "identifiable condition."
    Tina, Forum Moderator, TSFC Staff Liaison

    TSFC Homepage
    TSFC Membership

  5. #5
    Join Date
    Jul 2014
    Location
    Carseland
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    Default Re: new member

    Thanks, Tina. It certainly explains a lot of things and helps me understand myself better. Too bad it took 57 years to get to this point....

    ---------- Post Merged on July 31, 2014 at 12:11 AM ---------- Previous Post was on July 30, 2014 at 11:19 PM ----------

    The main point I would like to stress to young people with Tourette Syndrome, and their parents, is that it does get better. The symptoms may not go away, but you do learn how to deal with them. I hope you can get to the point where TS doesn't interfere with your life. Teenagers are always so self-conscious and so concerned about what others think of them, but as you get older, you become much more accepting of yourself and your quirks and eventually you really don't give a damn what anyone else thinks.

  6. #6
    Join Date
    Aug 2012
    Location
    USA
    Posts
    141

    Default Re: new member

    Hi Tim!

    Welcome to the forum; I'm glad you joined us here!

    A famous doctor once had this to say about just being yourself, quirks and all -
    Those who mind don't matter, and those who matter don't mind.

    I'm sure you've heard of.. Dr. Seuss!

  7. #7
    Join Date
    Jul 2014
    Location
    Carseland
    Age
    60
    Posts
    6

    Default Re: new member

    I had always associated Tourette with involuntary obscenity, and I don't do that. When the soccer player Tim Howard 'came out' I started researching it. I realized, 'hey, I do that!' Back in the old days, we didn't have the Internet to help us research these things, and there was much less awareness of conditions like TS. I do recall a doctor appointment where my mother asked about the tics and the response was, "he'll grow out of it." Well, no, I never did, but I did learn how to deal with it by my early twenties. I hope the increased awareness, and the experiences of people like myself who learned to deal with it on our own, will help young people to come to terms with TS faster through programs such as cognitive behavioural therapy.

    ---------- Post Merged at 01:14 AM ---------- Previous Post was at 01:00 AM ----------

    My initials are TS - Tim Sandberg

  8. #8
    Join Date
    Apr 2005
    Location
    Ottawa, Canada
    Posts
    5,941

    Default Re: new member

    My initials are TS - Tim Sandberg


    It's great to hear your experiences and personal observations, Tim all of which I can relate to.

    None of it causes me distress anymore, particularly now that I have a name for it.
    Like you, one of my most important breakthroughs was knowing it had a name, and I was not the only one in the world doing these things, because of the absence of awareness of Tourette when we were growing up.

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